Head Pins and needles

[bubbatetley]

Hi , to you all fellow sufferers of Fybo.

I am a newbie here and rather a scared one,

Does anybody suffer with head pins and needles

also arms and legs .

Any advice greatly appreciated.

Thankyou and take care

Kind regarda

Bubba

[JamesPDeans]

I do, in my arms, but I believe that is due to spondylitis.

[Ninapod]

Hi BubbatetlyYes I do have pins and needles on my head and my face. It is a weird sensation and can be a minor prickling to a really intense sensation like insects running on my scalp. On my face it feels like burning. I haven't really done anything to try and stop it but just accept it and distract myself with something else. Because it is so weird, it is sort of comforting to know someone else has it and you are not the only one! I find changes in temperature, air conditioning in the car, exercise and weather (sun, wind) can set it off. Sending you kind thoughts and gentle hugs.

[Patdoyle in reply to Ninapod]

Yes I get this too. Nice to know I’m not alone. Neurologist never knew what was causing it either

[bubbatetley in reply to Ninapod]

Sending kind thoughts and hugs to you too.

[Woodwalker]

Hi well I would say that my first main symptoms were a weird tingling in my head that accompanied my constant painful headaches (for over a year) and also in my hands/forearms and feet/calves. It randomly would be in differing areas and sometimes in all of the areas. I noticed it was a bit different to pins and needles in the usual sense and the closet I could relate it to was a sense of burning tingling. I do get this tingling at times when a flare comes on quickly and once had such an attack whilst out that I ended up in A&E as I came over so rough. But for now they have mostly subsided or are of less intensity.

Hope this is helpful

[bubbatetley in reply to Woodwalker]

Hi Woodwalker thank you for the reply. So have you been diagnosed with Fybro and what medication do you take.. [hope youl don,t mind me asking] I have these pins and needles everyday , especially in the head for over a year now, the GP has given me Gabapentin but, I hate taking them.

Have a good weekend

Best wishes🙃🙃

Bubba

[Woodwalker in reply to bubbatetley]

Yes diagnosed with Fibro after aprx 2 years of headaches, pains, weakness, cramps and fatigue. Often have POTS type symptoms too. Possibly all triggered after the first Covid vaccine although can’t be completely determined.

I take Amitriptyline, Escitalopram, both in minimal doses or else the fatigue gets worse. I have regular acupuncture, practice CBT daily for stress relief and also try to keep up with an exercise schedule as much as I can as I find this helps with the pain. I’d say I’m still in bed half the week but I’m definitely much better than I was so symptoms have definitely eased. The tingling and head pain come back very quickly if I overdo anything physically or mentally.

[bubbatetley in reply to Woodwalker]

Sending kind thoughts and hugs to you.

[Thxyc]

I get what I describe as tingling sensations. Mainly in the back of my neck, going down my back, and into my head, just at night in bed. I have come to learn it is associated with extreme anxiety in my case. Good luck and hope this helps 💐

[bubbatetley in reply to Thxyc]

Thank you Thyxc, glad to know I'm not alone. Scary though!

Gentle hugs and best wishes🌸

[bubbatetley in reply to Thxyc]

Sending kind thoughts and hugs to you.

[Kazzza1976]

Hi . Yes pins and needles was my first symptoms. I regularly get pins and needles in my scalp, arms and hands. I try to distract myself when this happens. Sending you love and gentle hugs

[bubbatetley in reply to Kazzza1976]

Thank you Kazzza, glad to know I'm not alone. It's scary though!

Gentle hugs and love

[Kazzza1976 in reply to bubbatetley]

it is scary and you are welcome

[Meandme1990]

Yes I get it very badly all the time sometimes it really scares me

[bubbatetley in reply to Meandme1990]

Sending kind thoughts and hugs to you.

[Inthepark]

Yes I get this too it’s horrible I also get what I can only describe as electric shocks I call it zapping it only lasts seconds but it’s the worst thing I’ve experienced in my 35 years of dealing with fibro I did mention this to my go but he had no idea what I was talking about .

[giraffe8 in reply to Inthepark]

Sorry you are suffering too. By the zapping do you mean episodic sensory shock sometimes called exploding head syndrome ? It is most unpleasant and scary.

[Inthepark in reply to giraffe8]

I’m not sure what it is but I will read up on what you have told me . It reminds me of the game where you have to run a metal object across a wire and if you touch it it’s makes a zapping noise it’s awful and I’ve noticed it’s happening more lately I’m waiting to see a specialist about my jaw so I will ask him about it . Thanks for letting me know what it might be much appreciated . 😊

[bubbatetley in reply to Inthepark]

Sending kind thoughts and hugs to you.

[bubbatetley in reply to Inthepark]

Sendind kind thoughts and hugs to you.

[bubbatetley in reply to Inthepark]

Sending kind thoughts and hugs. I have this all and every day. It really scares me.🌸🌸

[Blonde29]

Yes I do, i get them in my head and face it's horrible, I was worried I was going to have a stroke it was that bad I'm having the right now in my face with 😪.

[Bigrockcandymountain]

hi yes I have suffered from this I was terrified I had tickles and tingles in my face like some thing walking on me . Very intense tingles on my scalp as if my scalp was burning. Bad headaches my doctor prescribe me lexam 10 mg A light antidepressant .It has helped control it..

I also suffered early on with my legs my arm numbness id wake up in the middle of the night and both my legs would be numb couldn’t move. It eventually stopped by itself it’s like my body is going through all these different stages . Hope this helps you x

[bubbatetley]

Thank you for replying. I suffer with this all and every day. I'm going to ask my Gp about Lexam. I too have it in my arms and legs.

Sending hugs and kind thoughts🙃🙃 to you.

Take care