Pain

Hi I've been reading a lot of different posts and stuff but none of them explain why it hurts so much for me to do things like walking. I've been diagnosed with fibro as well as hypermobility syndrome but the majority of my pain is in my back. I mean yeah I get pains in my feet, knees and ankles but it's the pain in my back that stops me from doing much of anything. is this right for fibro or has my Dr just told me it's fibro cos they couldn't find anything else or to shut me up?

I am so limited on what I can do cos of the pain in my back. it hurts to sit, stand, walkeep and even to lay down.

11 Replies

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  • Hello and welcome to our friendly fibro forum where you will find advice, support, help and a chuckle to brighten the day.

    Have you seen our Mother Site fmauk.org ? Here you will find information about all things fibro and includes guides and links.

    Many of our fibro friends struggle with crippling backache and it does seem to feature highly in the list of the symptoms.

    I guess you have had xrays and blood tests? If you have and everything has come back negative then fibro tends to be the default condition unfortunately.

    Have you tried gentle swimming or exercising in a warm pool? Sometimes your GP can refer you for hydrotherapy and also a Pain Clinic. Both of these options will help you cope on those very bad days.

    I am glad you have joined us and hope to see you around the forum.

    Kay

  • Hi sorry I guess I didn't really introduce myself very well. thank you for your reply and actually no I didn't have any xrays or blood tests it was after an mri that I was told I had fibro. unfortunately my Dr just tells me to exercise which just hurts and last time I went pain clinic they said I was doing the right thing by pacing myself when trying to do everyday tasks that hurt like hellthough when I went it was for my endometriosis which I also have.

    Does fibro back pain get worse with the cold but doesn't improve with heat? the pain I have never eases up just times when it's bad and days when it's crippling. is that normal?

  • Hi

    I am surprised you have had no blood tests. You may have inflammation of your muscles or joints which could be indicitive of some kind rheumatic condition. Please go back to your doctor, or see another if the present one is dismissive of your concerns.

    A blood test should also be taken of your Vitamin D levels, a low level can cause painful bone aches.

    Have you seen a rheumatologist? If not then ask for a referral.

    I am sorry to say that people have to be really proactive with their health and health professionals. It is easy to be written off as a fibro sufferer by lazy or unimaginative doctors. Please find out all you can by going to fmauk.org. and then you will know what to ask for.

    Kay

  • It was the rheumatoid Dr that diagnosed me after the mri showed nothing.

    Thank you for all the help and information you are giving me.

    Mel

  • Have you tried going to a chiropractor or getting massages? I find most of my pain comes from my muscles, I get patches of sensitive skin but that isn't as common as my muscle pain.

    My muscle pain is constant and global. Through juicing, stretching, massage, foam rolling, chiropractic adjustments, exercises that strengthen muscle to prevent injury and overall diet changes I have found great pain relief in the past. But that doesn't mean it will work with everyone. But I think if someone is capable and willing of trying it then it could help.

    I have over the past year let my dietary improvements slip and have increased in pain, so I feel confident that diet is important in my journey.

    I hope that you can find things that help you.

    Good luck××

  • Thank you for that but unfortunately unless the Dr refers me to it I cant. I struggle financially all the time and really can't afford something like that.

  • Maybe you could ask for a referral since other people have found improvements with it, and it should be seen as a good healthy choice by a dr. Our at least, I feel that way. And I don't know how all that paper work works, so I'm sorry.

    Maybe just an increase in raw fruits and vegs, getting lots of fiber and live enzymes and antioxidants. That might help you improve. I love carrots and lemons and ginger. I try to eat a lot of leafy greens.

    I add ginger to my chicken noodle soup. I just throw a large hunk in there and it adds a great flavor to the soup. I also add powdered tumeric. Just increasing natural healthy healing foods. I really feel helps me and may help you.

    Good luck ××

  • Thank you :)

  • Hi Melchiahkain

    Welcome to the forum and it is wonderful to make your acquaintance. I am so genuinely sorry to read that you are suffering and struggling with your back and I sincerely hope that you can find some resolution to this issue.

    I do often wonder myself if a great deal of doctors blame Fibro for everything as it is easy and convenient to do so? I also wonder how many sufferers have other conditions that go undiagnosed as a result of this?

    I have pasted you a link below to the NHS Choices cache entitled: ''Causes of back pain.'' So I sincerely hope that you find this useful:

    nhs.uk/Conditions/Back-pain...

    I want to sincerely wish you all the best of luck, and please take care of yourself.

    All my hopes and dreams for you

    Ken

  • Hi Melchiahkain, I'm sorry you haven't been able to get the answer you would like from others with FMS. We all seem to have a wide range of parts of the body which have been introduced to "meet my friend pain." Many of us have exactly the same symptoms in the same area of the body, but no two bodies are the same.

    Where about sin your back is the pain you talk about?. I get pains in my neck, shoulders, between the shoulder blades, lower back, hips and also have a lot of sensitivity around the rib cage. In short the whole of the back. The pain between the shoulder blades increAses badly according to the amount of stress I feel when it then travels up the neck to my jaw, then into a headache too.

    I had an appalling assessment from an ATOS Dr years ago - I can still see his face and remember his name it was so bad, he noted that my Fibromyalgia was as a result of stress.

    These days I say that stress defo. increAses ( my iPad seems to be enjoying putting cap. A's in the word increAses- lol) stress definitely increases the pain.

    Like you I've had a complication in with other illness 's and problems. I had Chemo which makes my feet hurt more, my joints are worse and perhaps the rib pain is something to do with that.

    I think we all find that we can't stay sitting or standing or walking for too long because of pain and the stiffness sets in just to complicate things too.

    Sorry about the long post. I hope ive helped a little.

  • Thank you so much. I get the pain all down my back from the shoulders. The worst part for me is the small of my back but it is all over. You have all helped me a lot thank you.

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