Does anyone have issues with their voice and throat. Since the start of the year my voice has been very hoarse, I find throughout the day it gets worse and by the end of the day I can struggle to talk. Also at times my throat is tight when eating. As only recently being diagnosed I am finding there are many different issues of the this condition. So really not sure what is and isn't connected. I am still adjusting to treatment so as the week goes on I become more exhausted and my temper then tends to be a bit all over the place.
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Marieg1270
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I have this too, it’s called disphagia. I have to chew much more now and have smaller mouthfuls. The good thing is it makes me drink more water, which helps with lots of things.
I believe it can be a symptom of quite a few auto immune disorders and could also be a side effect of medication, co-codomol/codiene needs you to. Drink lots of water and you still get a dry mouth 🫤
Have you mentioned this symptom to your gp? Perhaps they can help with cause/symptoms?
Mine just said drink lots of water, it’s one of the Fibro things.
Hope that helps, so go have a glass and water and I’ll join you !
Hi my voice is sometimes croaky, but I put it down to my COPD. I also have a tight throat and struggle to swallow, again I think it's a mixture of my COPD and meds.
Hi my voice is very hoarse. I used to sing and had to stop. I’ve had over 3 yrs of Fibro but also have chronic asthma. I blame the inhalers for that. Never thought it might be Fibro.
my symptoms of voice hoarseness is very similar to yours Vontrap. Sometimes I lose my voice completely. I love singing but I’m noticing the change in my voice too. Up to now I’ve put it down to my asthma inhaler but it could be worsen by Fibro. It’s so hard to know the culprit. It does help my throat a little if I gargle with salt water. To minimise any more dry throat or hoarseness, I use a spacer with my inhaler pump!
Yes, me too! I'm forever clearing my throat and regularly lose my voice. Had camera down through the nose years ago & more recently Upper GI Endoscopy. All ok so now put down to fibro, neuropathy or meds 🫤 Just another wonderful addition to deal with I'm afraid 😔
Thank you I spoke with my doctor yesterday and they said they had no idea. I had a camera a few weeks ago and bloods everything is clear. Thought it was me going mad. This really is a horrible condition.
There are sooooo many things that can cause hoarseness:
Meds allergies ear/sinus issues gastric reflux the gut liquids spill back into the esophagus heartburn causing irritation to the sinuses causing drainage Medical conditions plus pollution. I have all of these and constantly clearing my throat.
For dry mouth after drinking more water there is a spray and gel lozenges by Biotene which works great. I used it faithfully until my GP said it blocked my thyroid meds from being absorbed. So sadly I had to stop using it. Check with your chemist about it GSK pharmaceutical made it in 2020.
If this persists after different home treatments see a an ENT to rule out causes like cancer. Don’t be scared just better to have knowledge and prevention whenever possible.
I was going to say tho I have fibromyalgia I associate my hoarseness/loss of voice with my struggle with hypothyroidism. Now , admittedly long after giving up teaching, ie using my voice a lot, with better T4and T3 replacement I rarely notice it. Also in the process got my folate, ferritin, b12 and vit D improved.
Yes, one of the first symptoms I had was a very husky breathless voice which became worse to the point of losing my voice altogether for more than 12 months.
This came on after a really terrible bout of ‘flu’??? which lasted weeks. This was the trigger for everything that followed.
Back to work but kept getting ill again and again.
As my job depended on talking most of the day, telephone, meetings etc., I was signed off work for months while they investigated. Vocal cords all clear etc.
Finally sent to NHS voice therapy which gave me vocal exercises to try, with limited success.
A work colleague suggested that voice loss could be down to stress….I think she was right.
Meanwhile, tiredness, utter fatigue, low iron blood count, pain moving around my body, general body aches, insomnia, breathlessness, walking and balance issues, started to develop and became worse to the point of being unable to function normally in day to day living.
Finally was dismissed from my job due to “continual absence” even though my GP had certified all my time away from work as sickness and I had specialist medical reports etc.
Single woman living alone, responsible for all bills and mortgage, now without income… … my stress levels increased after dismissal. I wonder why?
Had to take benefits while I fought to get my work pension. Took my case right to Pensions Ombudsman and he ruled in my favour. Pension was still a lot less than my full pension should have been, but hey, I felt vindicated.
All this more than 15 years ago now. Still coming to terms with the state of my limitations although I’ve slowly and resentfully managed to learn pacing is the only way to keep the ME/CFS, Fibromyalgia, at bay slightly.
So…. please take care of that voice of yours. You need to try to get back to health if possible. The younger you are the more hope for recovery or at least improvement there is.
One of my Doctors at that time said my voice loss was “My body shouting for HELP”. Wow!
This is a weird (and not so wonderful illness) that takes different people in different ways, we all generally have the same type of symptoms but to various degrees.
Every one of us has a story of medical tests ad infinitum.
I send you all best wishes for the journey you have started….be kind to yourself and rest and keep hydrated.
Thank you that makes so much sense. I had a flu virus before this happened however was already in the throws of Fibromyalgia from the loss of my Dad. Like yourself living alone, trying to cope with bills, mortgages and health making sure my mum's ok and completely stressed.
Hello Marie, Yes, I get similar symptoms but my mouth waters too much now and can be sat watching TV then start choking on my own saliva. My GP gave me travel sickness meds to stop me over salivating. But the throat problems swallowing is the same as you. I think it is related to Fibromyalgia and you need to keep up your fluids. I drink between 4-5 x1.7 litre bottles of water with a little sugar free squash in it (to keep my bowels moving as I’ve had bowel surgery in the past). I get bloated too but my GP told me to drink more. It helped my throat but caused more problems elsewhere. 🤷🏻♀️
Hi I was attending a appointment with a speech therapist (my brother was getting treatment for throat cancer )
.She said there was something wrong with my voice and I should go to my GP .I had a small white bleb in my tonsil bit like a tonsil stone but with vascular / skin over it .Had the camera down nose and they told me I had damage to voice box caused by gastric reflux(silent at night ) I didn't believe it at first as I had no typical heartburn symptoms .Put on PPI medication did speech therapy given gavicon advance .Doctor took me off gaviscon advanced put on peptic .By now I was having shortness breath chest pains checked for asthma no asthma but given pump told(maybe reactive asthma).Pump defiantly works !! In 2022 voice got much worse this time camera test (nose)showed no damage .Speech therapy helped alittle but didn't cure it .By now I was loosing weight not eating because I felt full up all the time and was bringing food up and it feels like food getting stuck .Swallow test showed some immotility food not passing down as it should.Had a Upper GI Endoscopy not tolerated well even with sedation so had camera down nose which was much better .It showed I had cell changes in my stomach not cancer thankfully but I do have to be monitored every couple of years .I still don't know what's going on with my voice though I'm waiting for another test to measure if acid is coming up to my voice box .I'm convinced it's the muscles not working as they should .
Nobody has said it could be Fibro ! But would advise you go to your GP as it could be something else .
HiI don't have trouble with my voice but I have to have a drink at the side of me when I'm eating because it's the only way I can get food down. I find sparkling water the best thing to help me as the bubbles propel the food down. Sparkling water doesn't bloat me either. I do have many other conditions which I won't bore you with right now
hi. Yes I was a singer and my voice has got very hoarse over the last 5/6 years. I cough a lot now as well which doesn’t help. Thought it was my asthma but had that for many years and wasn’t hoarse. Quite possible it’s the Fibro 😫
yes I totally understand this post. Yes I too get a hoarse throat and too find sometimes even swallowing saliva hard to do.
I had a barium swollow and it was said that it could all be to do with the M.E and fibromyalgia as that could see I struggled at times with the swolleing even though tubes etc where clear. Obviously these conditions can effect our muscles etc and exhaustion can obviously all play a part in this.
It’s all about pacing and trying to manage these conditions. I hate when this is said to me as obviously you can’t always tell until it’s too late and you’ve gone past that.
I am still coming to terms with the fibromyalgia on top of M.E but like so many have said we do have so many other symptoms with these conditions and each person is different but when reading these posts it helps you not to feel so alone.
I hope this helps a little bit too. Just remember your not alone. Xx
Hi ya. Im newly diagnosed with Fibro for the last 4 weeks ive had a hoarse voice. I spoke to a gp they advised i reduce my sertraline to 100mg & keep my Amitripaline to 20mg, just seeing if that helps over the next couple of weeks as it could be a medication clash?! I guess time will tell. Take Care
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