Fibromyalgia?

[Sylvanian]

Hello fellow travellers, I just got connected and as I live alone I hope to find some relief in communicating and getting a better understanding of my condition from the experience of others.

Does anyone have particular difficulties around the throat, neck and shoulders, and does your pain vary in intensity? Does speaking affect your condition? Do you find temp. relief from deep relaxation. I feel I'm where I am because of some fairly severe traumas in life leaving me with a vulnerable nervous system. Anxiety, difficulty with motivation, and reduction in capacity to concentrate.

If you share these things in common with me please tell me something of your story which might be of help. This is a constant struggle to come out on the positive side, and I have some blessings that I am grateful for to help maintain a balance.

Many thanks, Sylvanian.

[Wal46]

I'm so sorry this is happening to you. Your a dear

[neesey1005]

I have major difficulty in concentrating (what was I saying?😒 ) and getting motivated -and what I call. "Mini anxiety". -because I worry about little things - ie : is the door shut. where's my bag, did I turn the cooker off? - is my OH ok? is the dog in ? some days I am chilled out though - luckily my OH is Always calm 😊😊😊. - welcome to the fibromyalgia gang 🎇🎇🎇🎇

[Hidden]

Hi

I'm sorry that you are a fellow sufferer.

In answer to your questions...

I suffer constant pain in my neck, arms, shoulders, lower back, hands, fingers, wrists, ankles, feet toes, knees. With phases of terrible pain in, elbows, chest, bust, and more sever pains in all areas that have constant pain. Every day awake with shaking internally and sometime externally, and a headache/migraine. Can't sleep well and have irritable bladder, difficulty swollowing and brain fog. I have depression, due to all of this too. Probably forgotten something. 👍😊

Like you I've had a traumatic life and experiences, loosing a baby, pcos, several ops including full hysterectomy in my early 40's, hereditary glaucoma.....Which I've read can lead to nerve damage and Fibro. It does seem that sufferers have quite a few health issues.

I have found that a lot of the meds they gave me didn't help or I had bad reactions to.

I take nothing now except for aspirin, Volterol gel, extra vits and hemp tablets.

It seems that we will have to live with it and pace ourselves, I'm learning that if I do something one day I pay for it. We just have to adapt the best we can.

Like you I felt lonely and lost, not anymore, since joining this site. Everyone is supportive and very kind. You can ask questions. Post something nice or funny or have a moan, someone will respond. It has been a god send and I hope it is for you too. It's nice to know that others are in the same boat as you.

I am sure that you will be pleased that you've joined. 👍😊

Take good care of yourself and keep smiling 😜

Best wishes.

[Sylvanian in reply to Hidden]

Its not fair that you should have constant pain of such severity. I pray to the mysterious Powers to let some light through to you and others driven almost to beyond their endurance. One can only stand back in awe and admiration of your courage and fortitude. Be of good cheer, some relief may well be near.

[Hidden in reply to Sylvanian]

Thanks.

Have a nice evening and take good care of yourself.

[rosewine]

Unfortunately tonight I am not up to making a longer reply but I would just like to say welcome to this lovely supportive friendly forum. Look forward to your future posts.x

[Sylvanian in reply to rosewine]

I too, wish you well Rosewine, thanks for your effort through your difficulties. Hope you have support.

[rosewine in reply to Sylvanian]

Thank you I do have a hubby but unfortunately he suffers with anxiety and depression at least we don't spoil another couple as they say. Take care.x

[Sylvanian in reply to rosewine]

I don't care much for that expression, I suppose people like to use humour in difficult situations, but whatever about the apparent mercilessness of pain and suffering, there must be a reckoning somewhere, and I hope you two are building up a vast reservoir of riches.

Try not to overlook any support that might be available to ease your burden. I am somewhat of a loner, but I find generally I get the help I need from somewhere.

[rosewine in reply to Sylvanian]

Yes I tend to use what I call gallows humour as sometimes the stupid situations I find myself in make me laugh as the alternative would be crying. I can't say I always find the funny side of things but I try to. I joke with my close friend who like me has gone beyond the call of duty looking after others will little reward apart from a clear conscience that when we go there will be feather beds laid on for us.

No unfortunately we do not really have any support as I have no close family and his are worse off health wise than us. Majority of my friends are fit and healthy so can't encompass what our world is like.The other two close ones are worse or as bad us. We muddle along fine most days just wish the NHS was rather better in some areas especially the mental health side as they are sadly lacking in this area.x

[TheAuthor]

Hi Sylvanian

I sincerely hope that you are feeling as well as you possibly can be today?

Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site, FMA UK which hosts loads of useful Fibro information:

fmauk.org/

I want to sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

[Sylvanian in reply to TheAuthor]

Thanks Ken, I shall check it out.

[TheAuthor in reply to Sylvanian]