I was just I have fibromyalgia, I be in so much pain day and night I wake up in the morning stiff can hardly move. I struggle going up and down steps, I have hot and cold spells my joint pop all the time I have headaches, I forget alot when am in the middle of a conversation I forget what I was talking about, it hurts to make love to my husband, the worse thing is while am making love to him I can't reach a climax because my body hurt so bad am so afraid that my next move will be in a wheelchair I already walk with a cain does anyone else have these problem?

10 Replies

  • I need to talk to others who suffer the same way

  • Hi hayes1224

    Welcome to the forum, and I genuinely hope that you find it useful, informative and loads of fun! I have pasted you some information below relating to Fibro Groups whereby you could meet and discuss such issues with like minded people who together, you can share your problems and try and find solutions:

    FibroAction Support Groups:


    Fibro Support;

    I have also pasted you a link to our mother site FibroAction which hosts loads of useful Fibro information:

    I want to wish you all the best of luck, and I sincerely hope that you find the answers that you are looking for.

    All my hopes and dreams for you


  • You would benefit from discussing these issues with your GP or nurse practitioner at the surgery, they are able to offer good advice and will help you, don't be embarrassed they've heard it all before. Best wishes. Lou x

  • Hi vicky1968. I have Fibromyalgia, Rheumatiod disease and osteoarthritis in many joints along with some other newly diagnosed nasties. I have a lot of the problems you are experiencing. Its hard isnt it? I am finding it hard to come to terms with. I thought I was coping ok but then I lost my job through ill health and Ive started to feel useless. Its the pain that gets me down the most and I feel I am becoming a nightmare to live with. My mood swings are terrible lately and I have been taking it out on my husband who is a Saint for putting up with me. I have also become really clumsy and I am seeing my GP on Tuesday about this and the pain but I dont think there is anything he will be able to offer me. I am waiting for an appointment for pain clinic. Sorry I dont have an answer for what to do. Just wanted to let you know you are not alone. Gentle hugs Joolz.x

  • Hi Flossyjoolz, I sound like you and getting worse. Awaiting pain clinic, tried to get B12 injections today doctor pooh hooed it. Been Hypo 20 years. Cervical Spondylosis, and osteoarthritis in foot. Where will it end. So tired and depressed.

  • It gets you down doesnt it the viscious circle of pain, insomnia, tiredness and frustration of not being able to do what we used to. Then we get told we are depressed. I have just got back from seeing GP about clumsiness and again about the lump I have still got in my throat (since May). He says the clumsiness and the extra pain is the fibromyalgia but also taking pain killers can make you clumsy and drop things. What are we supposed to do about the pain then? He dismissed my throat problem again. He was also surprised that I have lost my job through ill health as he put it "there are employment laws so he doesnt understand how they got rid of me" My reply was "They dont employ zombies because that it what I have been like since April. I am sure I am hypothyroid but drs having none of it. Told me weight gain is because I cannot be as active as I should be. No S*** Sherlock!. I just want to cry again today.

  • Oh so sorry to hear that again Flossyjoolz. I cried yesterday and if it wasn't for my partner who does not live with me but is older and understands, I don't know what I would do. I ache all over, at hospital Monday (my birthday), for my foot. In agony I will be 58 and always been fit and active now I feel as if I am not in the right body. I asked my doctor about the pain and she said wait and see what they say at the pain clinic (right how long for that appointment), in the meantime keep taking Meloxacam and Paracetemol, even when I said it does not help. I am not giving in and I am reading everyday about thyroid on this forum and others. I have learnt so much. We need to arm ourselves with as much information as we can, but unfortunately the doctors/specialist don't like that they would rather you skuttled away and take antidepressants. Not this girl...... Good luck!

  • Happy Birthday for Monday. No antidepressants for me either been there and made things worse. Lets hope pain clinic helps both of us and we dont have to wait too long. I have got some NDT to try for thyroid. Good luck and gentle hugs. Joolz.x

  • Many thanks Flossyjoolz for my birthday wishes. Ironically I have gone back on cynomel mexican since yesterday and meloxacam again, has eased pain. Feel the difference with T3 cynomel, nhs very weak. I am also getting some armour. Could you pm me details of yours also please. Many thanks and good luck!

  • Hi vicky1968

    I am so sorry to read of the struggles that you are facing at this time, and I genuinely hope that you can find some resolution and relief to these issue. I was wondering if you had ever considered joining a Fibromaylgia group whereby you would meet like minded people who can share their experiences with you and maybe help one another with problems as they arose?

    I have pasted you a couple of links below to Fibromyalgia directories whereby you could look for groups in you area:

    FibroAction Support Group Directory:


    Fibromyalgia Support:

    As for your pain and cognitive dysfunction, it may be advisable to discuss this with your GP or Medical Specialist and get a review of what medications you are taking and see what others they can offer you as there are a good selection of drugs that may help with your Fibro?

    I want to wish you all the best of luck, and I sincerely hope that you can find the answers that you are looking for.

    All my hopes and dreams for you


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