I'm so sick and tired of waking up in pain every day. The feeling that someone has given me a good kicking during the night. Surely this is my not my lot in life?
Sorry for the vent. It's just another day that I need to get things done but my body doesn't want to work properly. 😮💨 A million tasks to do in a shed load of pain.
It's ok to vent, let's face it we all need to at times. Funnily enough I said much the same about a week ago.I always feel like my "get up and go" got up and left, permanently! Occasionally I have a spurt where I I feel good, but those seems to happen less and less now.
Believe me, you are not alone. We are all here to listen. We understand your pain and frustration, so vent away.
Sending understanding hugs your way. Look after yourself 😊
Keep strong. Hopefully they will find a cure I go on a trial in July a completely new way of looking at fibro so here’s hoping keep positive. Keep strong sending hope and strength. Have a good day all the best day you can
what sort of trial are you going on and can anyone take part. Keep well. X
Fingers crossed the trial goes well. Are you able to update us on it ?
Sending empathy, you feel like you’ve done the marathon in your dreams and someone stole your energy during the night, im fed up with the weather (my little rant ) as the cold affects me more and it’s nearly May , just some warm Sunshine that actually stays might help instead of feeling like the tin man (women 😩) 1st thing in the morning , my brain is planning what I need or want too do , very frustrating for us , yesterday I gave into some pain meds too tick some tasks and tried too pace as best I could , take care xx
We all share your pain and frustration, waking up in the morning is a bit of a disappointment as the pain is still there a constant unwanted partner. It's the restless legs that bug me I bought a hot tub and head straight for that day or night and it helps. Anyone had what I believe is called a fibromyalgia hug? It's similar to chest pains and very close to the symptoms of a heart attack. I have had these and four heart attacks and can't tell which one is which, rather troubling as I don't get it checked all the time as I would never be out of AE.
I have been having the same every day. I had a breast scan last year and lumpy breasts they did a biopsy and was told I have fibromyalgia in my breasts. Like we need some more pain in parts I thought we wouldn’t get pain. I would like t actually have very much sleep about an hour a night and never any REM sleep. It’s a a horrible disease. Wish everyone a good day ❤️xx
Restless legs and arms is a nightmare, thank goodness you found something to ease them. I have been having chest pains and I'm actually being seen by a cardiologist next week for the pains. Blood tests have come back fine, my heart rate is good, cholesterol is good but every now and again I have pains in my chest area. I have never heard of a fibromyalgia hug, although I'd rather have neither a heart problem or the fibro hug. I hope it's the latter just to put my mind at rest. Please take care of yourself and maybe just get a check up from the docs just for piece of mind. 😊
Hiya Flame,
Everyone on this forum gets days like this. U aren’t alone we are fighting with u. Just break tasks down n do your best. Gentle hugs 😊🤗
Im having one of those days too hun. Woke up with a bangin head and pain all on my left inside. 😪 spent this morning just sobbing. I know we have good and bad days. But it just seems when I have a bad day, it lasts so long and overwhelms me. Im only 45. I only found this forum today, so, I am hoping it will help. I didn't realise so many people have it, I have felt like I am the only one, my family don't understand, so I feel so alone
Morning I'm 61 and have been suffering for years on lots of pain relief,but they don't work no one cares , family don't understand, doctors doesn't want to no ,just give you more pills,and they don't work ,I'm constantly in pain,and so tired ,I don't sleep because of pain,gets me down,I have arthritis as well,I can hardly walk,so depressing I have had enough now x
I was at the end of my tether yesterday when I woke up again in severe pain and just let the tears roll. So I came on here to just release my frustrations because nobody I know understands like the wonderful people on here how we suffer everyday, that we are not alone and that we are believed. Everyone's comments I received from my post got me through yesterday so if you ever need to talk or rant like I did, just talk on here and you will always be supported by people who know. I'm sending you gentle virtual hugs. 🤗
I only joined the other day and I feel like I have more support in the last couple of days then I have done for the last 3 years of my life with this condition. It feels such a lonely condition. 😪
Hi Susanengland. Come on, no more talk like that now. Although I can understand it. Felt that way many times. Before all this rubbish began I hated the thought of taking pills of any kind, now I’ll take anything. You should tell your doctor if things are getting on top of you. Maybe you should try anti depressants. There’s no stigma attached when you have this awful disability and they might help change your whole way of thinking. I’m off them now, but they helped when I was feeling like you are. When I woke up this morning, after having a few week’s feeling relatively normal, I felt as if I was at deaths door. Now, I’m not so bad. Never allow those “ I’ve had enough “ feelings to beat you. As hard as it is, they’ll go away. And there are doctors who care. Nurses as well. Many of them have helped me through some very bleak moments. If you’re not happy with the one’s you’ve got, change them. Move to a different practice. Fibromyalgia has got to be the most misunderstood ailment out there. I went through five different doctors in the same practice before finding a decent one. Never give up
I ended going through 4 gp practices and 9 different GPS, with some funny diagnosis - ranging from having a psychotic episodes and there for it was coming out physically blah blah blah
It feels like everutime some one asks from your close circle are you ok and you say, you are having a bad day- I get the rolled eyes and "what's wrong now" makes me so angry that no close to me understand enough to care or ask questions. 😪
That’s not a good environment to be in Mazymoo. Having someone who understands and is supportive can make a world of difference. I really feel for you if you’re not getting that. I always saw asking for help, especially professional help, a weakness, but there are people out there who are brilliant at what they do and can help you feel that little bit better, which is sometimes all it takes. Accepting you need help is half the battle, as sometimes you can’t fight this on your own. It’s soul destroying. The problem is; and it’s understandable, because it’s at you all day long; is thinking too much. You have to try and take your mind off it. You’ll go to dark places. I’ve been to them on many occasions, but you have to get out of them. Believe it, or not, and I’m no computer gamer by any means, but I’ve gotten into Minecraft. It’s the only thing I can do that doesn’t take much effort. My hands ache, but it’s something. If you can find something to distract you, it’ll help. If not, speak to someone about your mental health. It doesn’t mean you’re going mad. You’re a human being and we weren’t meant to deal with this sort of thing. I always used to try and think of people worse off than me, but this is a crippling disability, so maybe time to think of yourself and get the help you need. If people don’t want to listen, or are fed up with you, then maybe they aren’t the kind of people you thought they were. That’s not your problem, it’s theirs. Stay strong. A little faith and hope go a long way.
Thank you for your kind message and advice. I feel alot better talking on this forum. Very nice people who know just what we go through just to complete a day. 😘
I hear you and I absolutely understand! Lovely to see all the support in the other comments. It's a very lonely condition. Big gentle hugs x
Hi Flame_lily. I don’t know if I should be replying to you just at the moment, because I’m in bed, exhausted and in pain yet again. This is such a wicked ailment. So many times I’ve thought it’s going away only to have the rug pulled from beneath me. I thought the pain killers I’ve recently started taking we’re beginning to work, paracetamol and codeine, but I’m not so sure anymore. I’ve got it bad unfortunately. I’m drifting off again quite regularly and going into an hallucinatory state. It’s the weirdest feeling. Interesting, but worrying. Just holding onto that lifeline, unable to pull myself forward. What I’m trying to say is rest. I’ll call you Lily if you don’t mind, it’s easier. Just rest Lily. Often you’ve just got to rest. Imagine swimming in an ocean with no land in sight. You can’t be expected to continually swim. Turn on your back and just float. Wait for your energy to return and start again. I haven’t even got the energy to send you a virtual hug, because that’s all we need sometimes. Push the negativity to the back of the shelf and forget thinking that way. Embrace the pain if that makes any sense, because you do have to live with it. Take care Lily. My thoughts are with you, especially today.
Well then today I shall send you very very gentle virtual hugs 🤗 and thank you kindly for your encouraging words. The analogy of floating on my back in the water is perfect as I absolutely love doing that in real life so I'll remember your words. Thank you again.
sorry to hear it’s one of those bad days, I’m still reeling from a long flare up .Hope tomorrow is a better day for you x
I know the feeling, I feel the same nearly every morning. I have decided to try acupuncture. I let people know how I get on.You are never alone when we all think of each other.
Sending you gentle day wishes.
it’s the horrible cold weather, I’m longing for the sun on my bones and yes it’s like someone has kicked the living daylights out of you every night constantly being in pain. I send everyone the biggest of hugs with this disease. ❤️🤗
I have no words because I feel the same. Gentle hugs and positive thoughts xxx
I feel ya pain, I have a herd of elephants 🐘 trampling all over me.It feels like groundhog everyday, I would love a pain free day.
But I just try to keep smiling and carrying on.
I had a bad flare up last December, I was so sick and tired of being alive, doctors don’t know what to do or don’t care much they just give me more pills, I am on Pregabaline 150mg/day and Sertraline for my depression 100mg /day, I cannot work much and is very difficult to make ends meet.
So when in December when I been to the doctor he told me to try acupuncture, cupping and acupressure massage but I paid everything from my pocket £1000, it was working for a while not pain free but it was better, now I have another flare up, I have constant headaches , no will to do anything and pain everywhere.😞. I cannot take it anymore and I am only 43 years old, no one to give a hand of help, doctors are lost when it comes down to this illness.
So disappointed about everything 😔
Oh huni. You sound so low. I am hearing what you are saying .Last year things had got so low, I tried to take my life. My husband found me and
And sorted me out. But, then I had to take the risk of telling the Dr, who thankfully very kind and put me on touch with lots of people, who I am till seeing. But, I still have my days, I am on 45g of mirtazipine, which helped me sleep for the first week, as I was going 3 days without and then hallucinating. I am on a high dose of fentynal, which obviously needs to come down, but my mental health has been affected so bad that I forbid to leave the house. Which is another drama in itself. It's just easier and painless to stay where it's safe and in not hobbling around In tears.
Have you put in for a claim for PIP yet? You must do it, it's a severe ballache, but we'll worth it
Xxxx sending hugs.
I must say that's a very good way to describe it. I notice as night goes on more pain and stiffness comes. the constant trips to the bathroom become more difficult. By the morning trying to move to get a cup of tea not easy. Sorry you suffering it is not easy I been suffering since early 30 s now late 60 s Every thing is painful jaw bladder bowel the list is endless ,
lights too bright noise too loud x
sick and tired of being sick and tired
how do you all cope with being do very tired
Tired
tired tired all the time
