sick and tired of being sick and tired

[Wongle1]

hi all I’m in England don’t know if everyone is or not even though fibromyalgia has been part of my life for a long time it only decided to introduce itself to me about a year ago I am trying to find out about medication got the gabapentin doesn’t help the pain.

Night sweats/itching/brain fog/ headaches/pain wherever it decides to pop up/depression/ constant stabbing/pain in my right side (that the docs called intercostal neuralgia etc I know you all know the score, I wake up everyday and think is this the day I just think that’s it I’ve had enough

[Loobielu]

Hi Wongle1, yep I'm sick and tired of being sick and tired too 😏. I'm also in England. I've tried amitriptyline but couldn't tolerate the side affects and it didn't help much. Given up on paracetamol and ibuprofen too. For me it's pacing myself, heat, avoiding stress and acceptance that life is different now. It's tough. I'm sure lots of better advice will follow. Hang in there, don't give up and be kind to yourself. Gentle hugs x

[Su55anr]

Hi Wongle1, I’m in the uk too. I think it’s a case of trial and error with medication to find one that works for you. I take methatrixate and coedine (sorry about spelling) which work about 70% of the time for me. Go back to your Consultant and ask for change of meds. I use heat & ice packs to help with flare ups too. Try to stay warm & pace yourself. If I go out one day the next day I stay at home. My life is very different but you do learn to adjust. Take care.

[Wongle1 in reply to Su55anr]

thank you I’m all ready on venlafaxine top dose, gabapentin and many more so called helpful tablets that if I actually took them all I would be a slobbering half baked idiot lol.

Where abouts in England are you?

[Su55anr in reply to Wongle1]

I live in the north east of England . About 50 minutes south from Newcastle.

[Wongle1 in reply to Su55anr]

my late hubby was a Geordi we lived in Durham Sacriston then we moved down here to Basingstoke as he had terminal prostate cancer and he wanted to spend what little time he had with our daughter and grandson sadly he only had 6months x

[kenjod]

Hi from Australia. It took a few trials to get something that helps me with pain that didn't have awful side effects - just on amitriptyline & paracetamol now though nothing works completely for me. I am looking into trying medicinal cannabis.

[Yassytina FMA UK Volunteer]

Hi there I live in the UK too, quite understand here how you feel, some good advice from people and yes I would differently go back and see your GP, Just mention again about the depression , it’s quite understandable why us fibro s can suffer with this and even anxiety too. I’m differently for the pacing method , some days more than others if need be , and I find after catching a bug /viral colds etc, /any infection it seems too take us longer too perk up more. Always better too come on for a chat and let it out, we can empathise with each other .Take care .

[Wongle1 in reply to Yassytina]

thank you I was just saying I’m in Basingstoke be nice to find or have a group x