Hi all,
hope everyone is as well as they can be. After having fibromyalgia for 8 years. I though I had gotten used to it. Turns out I haven't!
This year has been tough pain wise but I think I have found the exhaustion harder. It's hard for family and friends to understand how bone tired I get.
So today I'm grateful for this site. Where people understand.
Thank you
gail xx
Hi gail76 sorry to here about the pain you are in often family dont understand.
The feeling of being exhausted can be very difficult.
Please do keep us upto date so we can support you.
Good luck on your journey.
Thank you x good luck to u too
Hi gail76 im sorry you have had such a bad time this year my friend. I'm sorry to say but I've had fibro for about 30 odd yrs now and my family still don't really understand the fatigue lol. I remember for years my x hubby used to call me lazy & forgetful, don't remember anything & always something wrong with me etc etc. Hence he's my x lol. It's not easy my friend. I either sleep for England or can't sleep at all. Just because you have been so bad this yr.doesnt mean that can't change though. You may have had lots of stress, not even this yr.it could have just taken a while to effect you. I do hope you feel better very soon.
Luv Jan xx
Thank you, I'm realising I have to make some life changes and trying to listen to my body ! It just hard because my nature is to be on the go all the time. But there's lots I can do so I'm trying to focus on that. Xx
Your very welcome my friend ☺ it doesn't happen overnight, in fact if your anything like me, it takes a lifetime lol but the most important thing with fibro, is pacing yourself, not overdoing things. It's easy to forget when your engrossed in doing something, especially things you enjoy doing. I do a lot of art & craft stuff when I'm feeling ok & if I sit to long, I go to get up & i can't, because I'm so stiff & then the pain comes & I've learnt now, not to do it. A lot of it is to try to minimize flares & it is an art in itself lol. Look at the spoon theory, this teaches pacing yourself & very good.
Luv Jan xx
Your so right. Take care
Hi Gail
I've had Fibro & ME for 36 years and still haven't truly accepted it.
For me the pain is worse but we are all so different.
Have you ever gone onto our mother site fmauk.org and printed off the information about Fibro that's on there?
You can show it to your friends and family. It may help?
In my eyes anything is worth a shot.
Trying to learn to pace ourselves is incredibly hard.
All these weather changes aren't helping my pain either 
Take care of yourself
Lu xx
Thank u , that a good idea I will print some off xx
Ah the tiredness is so hard to deal with, it's every day all day, I go to bed tired wake up tired, I've asked the doctor if there's anything he can give for it and nope nothing , and then it makes it harder to deal with the pain, I swear fibro gets worse as the years pass, mine certainly has xx
Mine has too. I've turned 40 and its just got much worse. I've heard that it is all down hill from 40 but I didn't think it would be this quick! Xx
Hi Dionne0208 I think you are absolutely correct about Fibro getting worse as time goes on as mine has too! I wouldn't wish this condition on my worst enemy and that is saying something! Lol. That's something I've found helps me a lot - if I laugh. I can laugh at absolutely anything now and it does seem to help a little. Only thing is I have a very loud laugh so people look at me as if i have lost the plot but I'm not sure I had it in the first place haha. See what I mean - im exhausted this morning and hurting like mad across my shoulders particularly today but I try and laugh at something as often as I can. Take care of yourself x
I think your right. If we didn't laugh where would we be ! U take care too x
Hi gail76
I really am so genuinely sorry to read that you are having such a bad time and I sincerely hope that your symptoms ease for you my friend. It may help to talk toy our doctor about how you are feeling and ascertain if they can tweak your medication for you to try and help? I want to sincerely wish you all the best of luck and please take care of yourself my friend.
All my hopes and dreams for you
Ken x
Hi I have to say I know exactly how you feel. If I had the energy I would scream and I bet that you would too. If its of any help and I don't know as I haven't tried it myself yet I was reading an article yesterday that said the first thing to do is to accept your condition and current effects it has on you and that that is the 1st step to helping yourself. Now I've had FM since 2009 and I've tried always to fight against it and it doesn't seemed to have helped me at all. I've been in bed now for about 2 weeks with no energy no appetite and pain from top to bottom - maybe it's time instead of getting angry or depressed every time I have an "attack " maybe I should accept it and see what happens. It can't be any worse to the other ways I have felt over the last 9 years. Hope you feel better soon. I'll be thinking of you x
Hope u feel better soon. I think your are right. I get very angry with myself and it doesn't help. I'm working on excepting fibromyalgia but it hard. I'm great I'm out of bed though.
Take care xx
Hi Gail76 just noticed that you have made it out of bed well done you!! I never manage to get up till after lunch - if I push myself to get up earlier I have to go for a long nap late afternoon. So am answering you from bed now and am just about to go to sleep. God FM is horrific! I HATE IT!! I haven't accepted it yet after 8 years and don't know if I ever will. X
I can so much understand how you feel. I only have a few hours after getting out of bed to get anything accomplished ! After that I become pretty much useless !
I'm quiet sure nobody except all of my fellow sufferers can truly understand the sheer exhaustion !
Very good description ! LOL
Hi Gail WOW do I know how you feel!! The other problem I find is making arrangements to go somewhere then not being able to as you're so exhausted and friends in particular get fed up with you letting them down!! Unless you have FM/ME it's impossible to understand how it feels. I have had FM for exactly as long as you and funnily enough have had a bad year this year too!! If you want a natter anytime give me a shout. X
sick and tired of being sick and tired
So fed up of being tired
being alone
Tired, tired, tired!!
how do you all cope with being do very tired
