Please tell me I'm not the only one struggling to come to terms with fybro. I am worried that the pain I've been suffering is something else. I've just come back from the hospital after being sent by my doctor because I was getting tightening around my chest and pain in my arms for all test to come back clear and to be told its prob the fybro. my worry is any pain I get now other than the usual pain I have in my hips knees and shoulders do I just take it as the fybro what if I think it is one day for it to be something more serious I said this to the hospital and they said its best to get it checked out but I don't want to be taking up hospital time as I know they are busy but I don't want to miss something either I hope this all makes sense sorry for long post
Recognising fybro pain : Please tell me... - Fibromyalgia Acti...
Recognising fybro pain
I’ve had exactly the same pain. I feel like coming to your house putting the kettle on so we can both eat biscuits and moan about this heart attack horrible pain that scared you to death.. I’ve even had breathlessness and pain down my arms.. it’s a horrible tightening burning pain.. it’s just bl**dy horrible.. I’ve been that scared that I’ve got it in my head my life is over.. or will be soon.. bl**dy fibro pain.. it sucks !!
Could not agree with you more, l have the pains now, today is my PIP so don't know how l will get on will post when l know. Hope your pains ease a bit, it is the most awful pains today is the day l dread and so much pain all over and in my chest as Well, l do wish you a little better gentle hugs. Xx
Sadly Fibro can affect us in many ways all over the body. You are best to get checked out. That is what health care is there for. Even if it's just to put your mind at rest otherwise you will be worrying at the time and that can bring on symptoms to.
I understand completely how you are feeling, I too struggle with a diagnosis of fibromyalgia. There’s two reasons one the permanency of the condition knowing I’ll never get full relief from these symptoms or pain free days. Two that everything I feel will be related to fibromyalgia and I’ll get dismissed by medical professionals when I seek support. How will I differentiate between Fibro and other things. I also have thoracic outlet syndrome, myofascial pain syndrome and rotator cuff tendinitis (all related to a car accident in 2015). I was not a worrier prior to this but the anxiety and fear this condition brings is something else. every day is a challenge and getting through each day makes you braver than you think you are x
Yes hi I have fibo I have pain in my arms and I get chest pain too.its awful. But yea it's good to get check is well.
I'm the same, cant come to terms with that what I really have, is it fibre! Forever wondering what this and that pain/ sensation/ feeling is now. Can be having a coffee with the one friend that hasn't turned from me, get a strange pain, keep listening and chatting but my mind is saying oh noooo, now what!
hi, reading your post has made me think about my recent health issue. What you describe is what I felt in the middle of April. Tightening in the chest, pain in my rib cage and a terrible aching in my arms. I put up with this pain for 5 hours, nothing would take it away, so in the end my husband rang the NHS helpline and the lady there told him to give me 4 aspirin immediately and she called an ambulance. Long story short ---- I was taken in and had tests and scans and they found that I needed an operation to remove my gall bladder, which I had on 15th May. Am fully recovered now, no more pain and the stone they removed from my gall bladder (yeh they gave it to me), was the size of a nutmeg. So my advice to you is to ask to have a scan and see if your gall bladder is playing up. btw - I too have fibro and osteoporosis, arthritis, and it is sometimes hard to tell what is causing the pain. So persist at your doctors and get it checked out.
It is quite amazing that the Fibromyalgia pain seems to be just about everywhere! Even in the hands, so that one can imagine having carpal tunnel syndrome when it is more often likely to be Fibro. The pain can be so very severe, that you feel you must have been run over by a truck! Thankfully, it can wax and wane to a degree at times so that you feel just about able to cope with it. But no-one can possibly understand the over-bearing pain, when they are normal. It can be trivialized by another, when they cannot have the slightest idea what it is like to live with it, which is often in addition to other illnesses. It is finding out what works for you, preferably leaving out the taking of such strong drugs or pain-killers, which can do far more damage. I was put on a beta-blocker in 1980 which, after being left on it for 7 years, just finished my legs, so been disabled since then. I have coped for years with taking more herbal preparations, which just do not have the severe side-effects, though they take longer to work.
I totally get where you are coming from! Not sure i have still come to terms with the fact i have fibro! I keep getting very breathless which is currently being investigating and on top of everything else its scary.
It sucks!!!
Yes I get breathless too. Off and on. Saw cardiologist last month and he said I had a leaking mitral valve but not bad enough to make me breathless. Can only assume it’s the Fibro.
Its bizarre, through cts scans i have had done they found a shadow on my lung but they dont think it would make me breathless. I have to have test for copd now but now i am thinking like you say it could be the fibro! Take Care
One of the other "normal" conditions is costochondritis in some patients like me, is a chronic condition. I would recommend you to look for the symptoms to give you peace of mind as for us, fibro sufferers, any unanswered question, there are a lot of gp that knows nothing or near nothing about our condition, gives us anxiety and this, triggers fibro.
I hope this helps
I can really relate to what you say. I was in hospital over the weekend for chest pain and admitted to cardiac ward, but tests showed that I have Pericarditis. So it’s good that I went to hospital because I almost didn’t, thinking it would just be fibromyalgia pain. Pericarditis is inflammation around the heart.
Take care x
Hi, I hope the hospital did blood tests on you. There is a specific blood test that diagnoses if you have had a cardiac problem. I am a nurse and I have never known this specific blood test to be wrong. I know it's hard to deal with, I still struggle with my diagnosis and still get anxious about what doctors will say when I'm not well. I am still undergoing tests and waiting for results for even more conditions that I do not want. I do get chest pain and pain in my arms sometimes, but I am asthmatic and have degeneration of my spine around my neck, so I expect to have pain most of the time. At the same time, you shouldn't ignore chest pains, you should always get checked out. As for accepting fibro - look after yourself first, rest when you can and have fun when you can, everything else can wait.
Hi i just wanted to know how or what you do for degeneration of spin
I have been diagnosed with this too sincerely Rene
I have been seeing a chiropractor for all of my adult life. I get chiropractic adjustments to my spine at least once a month. When the orthopedic doctor told me I have degenerative disc disease he told me to keep doing what I am doing because it is obviously helping.
I know its hard I'm laying on my bed hurting every ware. I don't know what I'm going to do, but if you find something please text me at poteetrene1@gmail.com thanks and God bless
Fibros have a higher risk of dying from cancer and heart issues. I'd doubt they get these probs more but more likely they feel stupid keep bothering their GPs. Or they are getting fobbed off as anxious. Anyone can get something serious, even fibros so you will need to get stuff checked n cheer when it's not cancer or something horrid.
It's such a nightmare of a thing I keep going everyday best I can in the last few weeks I've had to cancel things I had planned because of the pain I was In which really gets me down I push myself to the limit sometimes because I have a young daughter who I don't want to let down but I pay the price for this in the end but every flare up brings on a new pain I was sure this chest pain wasn't fibro but the tests were fine I will take ur advice on board and if it happens again to the extent it did yesterday I will go again thank you all for your input its really reassuring x
Hey, don’t worry I’m the same. I just try not to worry or stress about it. GP and co make me feel like a hypochondriac. I also have osteoarthritis in my right knee. I get the chest/rib pain too, yes it’s part of Fibro too. Try not to stress.
Your right that's how I feel all the time like a hypochondriac I feel like saying to them I hope u get fybro then u will understand
It’s not a nice feeling, especially with all the symptoms we have to deal with. It makes me feel hopeless and suicidal. Like I’m harassing them. I guess just got to suffer in silence.
Never settle Fibro786! You deserve better than that. I get the helpless feeling as it gets so frustrating that you have to fight for everything. I spoke to my GP only a couple of weeks ago about that exact issue of feeling like I was harassing them all the time. He calmly said that no one knows my symptoms and my body better than me, particularly when dealing with complex symptoms and conditions. It is the system that is letting me down and I have every right to seek answers. If he for a moment thought I was being unreasonable about my requests he would be first to tell me! That made me feel so much better, that I was right to keep pushing..... and to be fair, if we don’t look after our interests who will?!
Look after yourself and be supported by this wonderful group who truly understand that feeling of hitting your head against the proverbial brick wall! X
Good evening Echoblue, aww, your GP sounds amazing, very caring and understanding. I’ve had loads of blood tests and ultrasounds over the years and they’ve all come back clear. So when I went to the rheumatologist, he finely diagnosed me with fibromyalgia/ME. It’s hard to find the strength to fight, but I will as I’ve a very active 6 year old to look after. Thank you and take care of yourselves xxx
Yes, have blamed all sorts on my fibro over the years.
After about a year or so on a concoction of various painkillers including Naproxen for the fibro pain I happened to be at the GP about an unrelated issue and GP said I looked very pale so would I mind if they checked my blood. Later that afternoon I got a phone call that I was so anaemic I needed to go to hospital for a blood transfusion! Long story short I was breathless, very slow at walking and extremely tired .... all of which I had put down to my fibro and asthma. What had actually happened was I had a gastric bleed from the Naproxen! Apparently I should have been on Omeprazole or similar to protect my stomach but no one thought to prescribe it!
As someone else has said, if there are any new symptoms or something is different than normal, get it checked out.
This happened to me last year (before my FM was diagnosed). The doctor knew exactly what it was as it had happened to him too. He said that he was airlifted to hospital whilst skiing as everyone thought he was having a heart attack. My pain started in the chest and radiated up to my jawline and arms. It turned out I needed a stronger medication for my GERD as I had taken some codeine for my pain and it had aggravated my esophagus. You might want to investigate that with your GP? With all the tablets people pop with pain it has a knock on effect.
I'm the same, I get pain and don't know if it's the fibro or something else, but going to the docs isn't any help either because they now tend to put everything down to fibro pain. Before I was diagnosed with Fibromyalgia, they put all the things I went with down to anything they could think of, like "Oh it's because you're getting older now" or "You've had three children and it takes it's toll" or "It's linked to your Psoriasis, Hypothyroidism, Asthma, etc., etc., " Now every time I go it's... "It's your Fibromyalgia, it has many signs and symptoms and causes all different things." So I try not to go, keep an eye on the pain and if it acts differently from what I'm used to I go to the nhs website and see what they say about the symptoms before I decide to do anything else. The bottom line is, if you're convinced it's something different, see the doc. Your health is as important as anyone else's, so don't think you're wasting their time or taking an appointment up, you have a right to be seen just as much as anyone else.
Teeth surgery n pain after 
What happens prior to Fybro flare
fybro and esa
I'm back😄
