Sick and tired of being sick and tired

[EmmaGiggles85]

Struggling with daily life… fibro is overtaking and I’m sick and tired of being sick and tired. I also have a vitamin D deficiency, hypothyroidism, Hashimoto’s thyroiditis, depression, type 2 diabetes, anxiety and I suspect I have adhd. I am on levothyroxine, metformin, amitriptyline, vitamin D and fluoxetine. I can’t work and had to give up the MSC I was doing last year. Counselling didn’t help as the counsellor told me that he couldn’t think of anything worse than having fibro and adhd and that he feels sorry for me as I’m grieving for the life I’ve lost. That felt great! Life just seems too hard at the moment and I can’t remember a day I was pain free. Sorry for the rant. I just needed to get it out there xx

[AllthatGlitters]

Hi Emma I know how it feels. I live with other conditions too. Fibro, endometriosis, adenomyosis & deficiencies and to top it all off going through the menopause aged 40.I don’t have any advice but lots of us know exactly how you feel x

[EmmaGiggles85 in reply to AllthatGlitters]

Thanks for your reply! I don’t know if I wanted advice or if I just needed to moan to people who got it! It’s just nice to hear from people who are going through the same as me I guess. Sorry you have multiple conditions too. It’s debilitating isn’t it xx

[AllthatGlitters in reply to EmmaGiggles85]

Yes it certainly is debilitating, never thought at my age I would be going through all of this. It is never ending. Some days are better than others. It’s better to speak to others who get it, as those who don’t will never understand what it’s like x

[Konstruktorka]

I am sorry you feel like that I have been diagnosed recently as well and in pain for last few months and completely understand what you are going through

I wish you more better days and all the best

[crochetjoy]

Hi EmmaI don't really have anything to add except I know how you feel and I empathise

I have fibromyalgia and arthritis and feel kind of lucky it is only 2 things... I have a close friend who has multiple illnesses and she is so positive, I just look at her and think I should be positive too but we are all different and each of us is unique

Hang in there, love to you

[k77a in reply to crochetjoy]

Yes that's so true, we are all so different very different true. l think me being smiley & positive when I'm out & about is an act , to take away from the pain I'm in

[Hidden]

Hi Em. I have subclinical hypothyroidism, vit d deficiency and gp diagnosed fibro but seeing rheumatologist in April to confirm. I also suspect i had undiagnosed adult adhd! It would explain a lot to be honest. Did u know u had adhd? Would love to discuss as fibro and adhd together are terrible. I have hyper days and low days. It's very confusing. I feel isolated and alone. Been off work for 5 months. My job is very physical and I just can't do it. Xxxx

[KaliAka]

Hi EmmaI feel the same , have ME , under active thyroids, high blood pressure brought on by Fibro , Acid reflux.

I was diagnosed December , gradually phasing into work again sales , 3 days a week now , trying to get back to Full time and my body says no. I'm afraid to give up as I'm not sure what benefits I would get and if it would be enough to keep going. I get fed up sometimes and other days I feel brilliant xx

[k77a in reply to KaliAka]

Wow .l have been doing crafts for 10 years & when l got my diagnoses, l refused to give up my passion! It has been extremely difficult to continue , but l have as l can do it at home.I did a craft show the other day & and had a couple of sales , & lots of people having a look around my stall. Coz l am still paying back my student debt l feel " forced" to keep going with my crafts, yes l do enjoy elements , of it but it is exhausting! I feel for you, with the going back to work. My fear is that l will be on benefits long term, which is not what l wan t.But l heard today , from CAB , that you can work with a disability & claim pip. You might want to check pip out.Working from home means , l can lie down so consistent regular work outside the home , would not work for me l have tried it part time & it wasn't viable.

What work do you do?

[Butterfleye]

Hi Emma, I know how you feel I've had M.E since I was 13 and Fibromyalgia since I was 26 (I'm now 44), I also have depression. I've been going through a rough time the past year and it's not easy in the first place trying to explain to someone how poorly you feel all the time, not only the obvious symptoms like pain and fatigue but the wierd ones like my eyeballs being painful, my hearing being so sensitive I'm having to wear ear plugs around the house, my head so tender I can't brush my hair, my feet being painful and my face hurting (there are many more!!) but also the emotional/mental side of things like all the friends I had at school moving on without me and loosing contact, not having children and the life you thought you might of had and even after all these years I still don't think I've come to turns with it. Sorry couldn't offer anything helpful, just know you're not alone and this is definitely the right place to be.

Emma. xx

[Ellenlow18]

Hi. Sorry to hear you’re going through such a bad time. I have Fibro , Arthritis and Osteporosis. I had 6 different different pelvic fractures over the past year. I now still go out with my friend who has multiple conditions including Fibro as Ive finally got the right painkillers that work for me which keeps the pain manageable for several hours..Its trial and error though but I’m fortunate I have a positive outlook in life as it doe help. My friend was indoors for 2 years but now comes out shopping with me and go for lunch etc..Persevere with trying different medications at different strengths. Amitryptiline makes some people very tired all day so you should consider that. Find a support team near you. There’s probably a local group on facebook …it does help talking to fellow sufferers. Good luck and message if I can be any help. Ellen

[rag276]

hello emma. i wish there was something I could say to cheer you up, but I have not. i have taken amitriptyline for a long time the dosage has changed up and down over the years. i have other conditions as well as fibro, and they all require some form of medication. i suffer the same tiredness and the wearing way it steals your time and energy. a doctor once told me 'my conditions are not life-threatening - but they will take my life ', he was not kidding and that is very true and I hate it. the foggy heads, the lack of concentration, sleepless nights, constant pain, to name but a few. all I can say is at times it will be better and you may get a combination of meds that will help, keep trying and I wish you well. (by the way if you do come across a good combo let us know!!) i find as I age my doctors want to change my meds and not all are for the better. stay safe.

[JayCeon]

Hi Emma, sorry to hear it's been getting too much for you! Not that I'm any better off, but meds were bad for me, so I had to concentrate on physio and supps. And it was only the 3rd (4th) psychologist who could empathize (like yours seems to have tried) and support me cope (like yours failed) at the same time... So: hang on in there, hope you find alleviances all around and over....