Morning all,
I have fybro, rheumatoid arthritis, and arthritis but appear to be falling over often and breaking bones. I am 53 and it's getting me down. Does anyone else suffer with this?
Thank you for any opinions and advice in advance.
Morning all,
I have fybro, rheumatoid arthritis, and arthritis but appear to be falling over often and breaking bones. I am 53 and it's getting me down. Does anyone else suffer with this?
Thank you for any opinions and advice in advance.
Hi there 🌼 I’ve not experienced this myself - I also have fibro and RA. I’d definitely consult your GP and potentially ask for some physio sessions if the GP thinks it appropriate. Sometimes physio exercises can help improve your balance. Really hope you heal from your broken bones soon - and manage to turn a corner x
Hi S21lyb,
Yes I can relate to all of it, I have exactly the same problem, I’ve been told to use a stick now but I’m only 55 and don’t want to look older than I already feel with the fibromyalgia and CFS too.
Well as we speak I’m in hospital and have been since last Thursday a neurological breakdown and my head was shaking to one side, I was all over the place and my legs wouldn’t move and had cramp in my left calf every 2 minutes 24/7 for 4 days and now they are looking into other things, I can’t walk and I’ve got a walking frame to help me start walking again xx
Oh goodness. Sounds awful. Sending you best wishes - please do keep us posted when you can xx
Thank you loneEra, but to cap it off I’ve just come off the venaflaxin 300mg to nothing, just lost my dog 5 weeks ago and had a consultant talk to me with every one in the room listening including the auxiliary nurses making the beds, I told them I didn’t want him again to find he was right in front of me this morning with someone else but I’d already told them I didn’t want him, accusing me of being an alcoholic because one of my liver function tests showed 900 that of an alcoholic but not the fact that I’ve been on opioids for 16 years and the with a loud voice saying they were doing other tests for HIV, STD’s and oh any other auto immune problems, I have never ever had anything like that in my life, it was a breach of patience rights, no I’m stuck with him and I’ve still had no apology 😔😢
Hello Josie-Anne. You poor dear - you are having a truly dreadful time. That was so unprofessional of the Consultant.
Like you - I’ve been so disappointed by some clever medical people. Academically they are probably brilliant but emotionally they are retarded.
Honestly - don’t take anything he has said to heart. Stay calm and ask to be treated by somebody else. You have got enough to cope with, without being humiliated by the specialist who should be looking after you.
So sorry to hear you have lost your dog. too. It’s such a dreadful loss - knocks you sideways for a long time. I know how sad you are feeling.
But you do have us on here - and I feel upset on your behalf. Try to stay strong and look after yourself.
Xxx
Hi saluhouse,
I didn’t get chance to be treated be someone else, he came every day after I told them I didn’t not want to see him which was against my patients rights, I am going to put a complaint in but they all close ranks and being on a small island it’s hard to get consultants, he was a locum, I stood up to him on the Friday morning to find I was being discharged without my knowledge, I’m under the mental health team after losing a father figure I looked after through until the end which I ended up with a breakdown, they told my partner to ask where my discharge package was, the sister and nurses look bemused, so eventually I had the physio come to the ward and now they are coming today with the rehabilitation team as I can’t walk, I came off venaflaxin to quickly advised dosage from my psychiatrist from 300mg to nothing in 4 weeks and had a neurological overload, they thought I’d had a stroke as I couldn’t move my left foot, my body was twitching and I couldn’t get my words out properly and my left side is weak and after all that I came home to no dog when I needed him the most 😔🥲
Hello Josie Anne. So sorry to hear you are having such an awful time. Hopefully the physio will be sympathetic and helpful. You really do need a lot of support at the moment.
I do understand how much you are missing your dog. They do give you such unconditional love don’t they? I do so miss my little Zoe. She was a naughty feisty little terrier - and I adored her.
Thinking of you and wishing you well.
Xxx
Oh, no. That’s dreadful. So sorry to hear you were treated like this. Some consultants really have no idea.
Hopefully you can manage to get another consultant. But if not, just do what you need to do to get better - and out of the hospital - and then if you feel like it, make a written complaint afterwards.
So sorry to hear about your dog as well. Devastating 😭
We’re all here if you need to vent at any point xx
Hi loneEra, I’m out if hospital, discharged and I wasn’t even told, I had that unprofessional consultant every morning even though I said I didn’t want to see him which was against my patients rights, I stood up to him on the day he discharged me, I am under the mental health and because if everything that had gone on my partner was told to ask where my discharge package was, what package they asked, because my condition was still bad and I couldn’t walk I needed a 4WW, my left side is still weaker than my right as it doesn’t want to move. I’m so upset that before I had this neurological overload through coming off venaflaxin so quickly which my psychiatrist told me I can’t walk properly, I can’t get my words out and to cap it all off I have days where I laugh, cry and get irritable very easily, venaflaxin and fluxatine which she wants me to go on is a new name for the old Prozac, I had a hell of a time coming off that that I didn’t know where my head was at, I was just crying in a corner by my dogs bed, begging for it to stop, my brain is still trying to balance out and work for itself for a change, I just feel so weak 😔🥲