Worst night ever

[army1]

I awoke at 3.50 today in so much pain, this has been my worst night since diagnosis 8 years ago. I have a Dr who does not take Fibromyalgia seriously and after 50 years at the practice am not in the mood for changing. Stay safe everyone.

[LoneEra]

Sorry to hear you’re having a really bad time. I would suggest asking your GP for a referral to a rheumatologist - they will hopefully come up with a proper treatment plan for you.

If you feel brave enough, I would even write to the GP and say you don’t feel your fibromyalgia is being taken seriously and that the symptoms are not being managed. You can also explain how this is impacting your quality of life.

In my experience, the GP is much more attentive when there is a written record of things! Over the phone, they just brush you aside again and again.

Good luck xx

[army1 in reply to LoneEra]

Thank you for your kind words and advice, my wife was kind enough to send a letter to the GP but we think it didn't get past the clerical staff and the standard reply make a telephone appointment to speak to a locum. He was kind and understanding but could not help at this moment.

[LoneEra in reply to army1]

That’s a shame. So frustrating for you.

If you write to the GP again, try addressing it to the Practice Manager - and essentially make it a complaint about the lack of care. This should hopefully make them pay attention.

Unfortunately, you have to be quite pushy at times to get the treatment you need. This doesn’t always feel great.

Hang on in there. This really bad patch will pass xx

[Mollie22]

Your right loneEra gp mostly do brush you aside . They say only got 10mins and only want to talk about one pain. I was told to phone up again for another appointment. I have pain all over body. Finding it hard to sleep. Only get broken sleep. Hope your ok army1 and get better abit better. It would be good to even speak to a regular doctor its always different doctor. Xx

[army1 in reply to Mollie22]

I have not spoken to my GP for 11 months only a locum. Take care

[LoneEra in reply to Mollie22]

I know!! I called my GP on Jan 7th and asked for an appointment to talk about my pain relief. They said the earliest phone appointment I could have was Feb 9th...an absolute joke!!

I wrote them a semi stroppy email and then got a call the same day. It’s hard enough having chronic pain and fatigue without all the stress of getting proper care! Xx

[army1 in reply to LoneEra]

One phone call I made said it was due to covid so why was it the same 2018-19

[LoneEra in reply to army1]

Yeah, been the same at mine for years too!

[Country-gal]

Oh Hun, that's awful! I'm hoping you can find a better dr. As we need one who works with us not against us! I known also to well the pain your in! I am like that every night! For some reason I don't know why but my pain seems to get worse at night! I finding having a warm soak in an Epson salts bath helps relax my pains, so I'm able to get some rest! Sending you hug gentle hugs from Canada Countrygal🙏❤️🤗

[army1 in reply to Country-gal]

Thank you for the kind words and understanding, take care with your own health

[Canbedone]

Sorry to hear that army1

You have real Rheumatic issues and likely pain amplification from Fibro. You need a sympathetic Doctor and a Rheumatologist. I found Naproxen works well for inflammatory pain.

If you have pain amplification then Anti-depressants (SSRI's) work well - you don't need to be depressed . They correct the Serotonin cycle in the brain and that can reduce of remove pain amplification.

I have found only about 40% of GP's sympathise with Fibro sadly. But having said that some really get it and a very helpful - generally younger Doctors with recent training.

Sometimes I wish I could lend some Doctors my condition for a few months so that they Sympathise. Best wishes to you.

[army1 in reply to Canbedone]

Thank you for replying to my post, I will keep trying to get help. It's 20.53 and my pain as started as usual.regards

[Bramble71]

I'm sorry you're having such a rough time.

Is there another GP practice nearby that you could join? My last GP (I've just moved) was very good with my Fibromyalgia; he was the one who put together all my symptoms and referred me to a Rheumatologist. I'm hoping that my new surgery will be as good. But if not, I'll join another one. We're in too much pain and distress to be fobbed off.

[army1 in reply to Bramble71]

I hope you do well with your next surgery, I find things very hard to change any thing at this time due to PTSD, new faces new drugs and any change of routine.

[MALC19 in reply to army1]

HiI totally understand how horrible these conditions are.

I have had CFS for nearly 30 years and was diagnosed with fibromyalgia 2016 along with a lot of other medical conditions that are basically invisible conditions.

I am on a lot of different medications but i have to say, if you can get referred to a pain clinic they can do a lot to help with your pain and once you are in the system they can refer you on to other specialists.

I do get that having PTSD leaves you feeling very alone with no understanding (my husband was in the army too) but you really need to get some help with everything you are carrying on your shoulders.

I was treated so long ago initially and i came across some very dismissive medical professionals but i did find a couple of really nice, kind and caring ones too.

Could you not ring your GP or send a letter to the practise manager, writing private on the envelope?

I do understand your reluctance to speak to your GP and at the moment at least you do not have to see them face to face so please try to get some help for yourself.

I know you would feel so much better.

Take good care of yourself.

😊😊

[army1 in reply to MALC19]

Thank you for taking the time to help me it much appreciated. Stay safe

[MALC19 in reply to army1]

Your very welcome. You keep safe too 😊😊

[Midori in reply to army1]

Is your doctor an older person? I find that younger GPs are more on the ball regarding Fibro, in the main. Often, older GPs are just cruising until they can retire, so don't want to keep up with the latest research or thinking on the new ways of treating the older diseases, or those who have been renamed.

Quite often it is an idea to see a newer GP in your practice, as they are more up to date.

I don't have a great deal of trouble with mine, as I'm happy to tell them I am a retired nurse, and you don't take off the knowledge with the uniform!

😀Cheers, Midori

[army1 in reply to Midori]

It looks like alot of people agree that a young GP is often more open to taking things seriously. Thanks

[Dizzytwo Moderator]

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[Blublu112]

Hi, same here, 60yrs at the local village surgery, my GP told me that Fibromyalgia is an exclusion term they use when they cannot find an issue with your body.