Fibromyalgia(AAHHHHHHHHH!!!!!!!!!!!!!!)

Well after feeling not right for over a year i decided with my list of ailments to go to my G.P and low and behold she 99% diagnosed me there and then with fibromyalgia after seeing a specialist a few weeks later it was 100% yes i had it, where do we go from here then well it is horrendous i feel tired , depressed cant remember things ie phone numbers that are only6 digits long! come on whats all that about?? my balance is hilarious some days i am in the shop and i have hold onto the check out as i think i am going to fall over, sometimes at home i just fall to the side , i dont drink before anyone thinkd that may be the cause!. My sleeping is a joke i go to bed at 11pm and am up walking my dog at 5.30 am (poor dog) but oh how i wish i had slept all that time i ache, i too have put a duvet under my shhet i have supports and cushions my bed looks 10 foot high lol and still nothing . As for medication i take 8 to 10 co codamol aday 40 mg citralopram and 3x amitritilyne and i am on 20 mg transdermal pain patches you would think i would be out for most of the day, i miss my 2 grandsons i cant have them alone it is just too much they are nearly 4 and 2 years old. I drive but only to shops and back, i cant see me ever working again, which is a shame, i have also got carpal tunnel in my hands and they are like ice most of the time and the strenghth in them has gone i only quarter fill a kettle and cant lift heavy things, i wear wrist supports which help a bit, the trouble is i look ok (well whatever that is) and you would not know anyhing was wrong but thats the trouble unless you got fibromyalgia you cant possibly know how it feels and what it is like even close family and friends cant understand so i just put on my mask and say yeah i am fine (i wish) well i will get off my soap box now i have had my rant. but i do say there is always someone worse off than me and sometimes it does work. So take care all you fellow suffreres and just remember your not alone. Diddle xxx

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  • after being diagnosed with m.e 12 years ago the dr has now told me i have fibromyalgia the pain is unbearable sometimes i to havent much strengh in my hands thank goodness for this site although our loved ones love us unless you are a fellow sufferer know one can fully understand how we feel sometimes i feel i must sound like im constantly complaining about the pain but i just needed to talk to some one now i have found this site i know i can thanyou

  • sorry i meant thankyou

  • We are all ears here, its a great site to be part of, laughs, answers ,and plenty of friends all like us xx Judy

  • that has made me feel a lot better thankyouxx

  • Loved the rant Diddle - well said! Hey you can take my dog for a walk too as he loves it but sadly I can't do as much as I did! Deleted the last comment as I missed out too many words. Argh the brain fog! ^**^

  • hI AGAIN THANKS FOR ALL GETTING BACK ITS NICE TO HAVE YOU ALL THERE . YEAH I HATE TO SAY TO MY PARTNER WHEN HE COMES ROUND EVERYNIGHT I IN SO MUCH PAIN BLESS HIM HE WALKS IN AND SAY HOW ARE YOU AND MY MOUTH SAYS FINE THANKS BUT MY HEAD IS DEF NOT SAYING THAT BUT HE DONT WANT TO HEAR THAT EVERY NIGHT BLESS HIM. WE USED TO WALK FOR MILES IN THE SUMMER WITH THE DOG, 4/5 HOUR WALKS BUT I CANT DO THAT NOW IT WOULD KILL ME, BUT LIKE I SAID LEAST I CAN WALK SO ALWAYS SOMEONE WORSE OFF, BUT SOMETIMES I DO FEEL SORRY FOR MYSELF I THINK WE ALL DO IF WE'RE HONEST. OH WELL I AM NOW GOING TO HAVE MY MUCH LOVED HOT IN FACT VERY HOT BATH AND LET THAT HEAT SEAP INTO MY BONES. YOU ALL TAKE CARE NOW AND VERY GENTLE HUGS TO YOU ALL LOVE DIDDLE XXXX

  • Hey Diddle,

    Loved the rant, it certainly makes you feel a touch better and hun your certainly not alone, We all suffer the same as you chuck and know exactly what you mean,

    When friends + family say I'm looking well my favorite reply is "I'm getting good at my disguise arn't I" well it always makes me feel better when I'm feeling awfull

    You look after yourself and take things a bit at a time and slowly, thats the best way I've found xxx

  • hI AGAIN THANKS FOR ALL GETTING BACK ITS NICE TO HAVE YOU ALL THERE . YEAH I HATE TO SAY TO MY PARTNER WHEN HE COMES ROUND EVERYNIGHT I IN SO MUCH PAIN BLESS HIM HE WALKS IN AND SAY HOW ARE YOU AND MY MOUTH SAYS FINE THANKS BUT MY HEAD IS DEF NOT SAYING THAT BUT HE DONT WANT TO HEAR THAT EVERY NIGHT BLESS HIM. WE USED TO WALK FOR MILES IN THE SUMMER WITH THE DOG, 4/5 HOUR WALKS BUT I CANT DO THAT NOW IT WOULD KILL ME, BUT LIKE I SAID LEAST I CAN WALK SO ALWAYS SOMEONE WORSE OFF, BUT SOMETIMES I DO FEEL SORRY FOR MYSELF I THINK WE ALL DO IF WE'RE HONEST. OH WELL I AM NOW GOING TO HAVE MY MUCH LOVED HOT IN FACT VERY HOT BATH AND LET THAT HEAT SEAP INTO MY BONES. YOU ALL TAKE CARE NOW AND VERY GENTLE HUGS TO YOU ALL LOVE DIDDLE XXXX

  • THANKS FOR THAT TRAYLOU HOPE NAME RIGHT, NOW GETTING IN THAT BATH AND THE THING IS I AM ON SO MUCH MEDICATION CANT EVEN HAVE BAILEYS ON ICE TO RELAX WITH AFTERWARDS LOL LIFE NOT FAIR IS IT HEY NEVER MIND I WILL SETTLE FOR TUB OF PRINGLES 2 CO CODAMOL AND BLACURRANT JUICE MAYBE THROW COUPLE OF ICE CUBES IN HAVE GOOD NIGHT EVERYONE NIGHT NIGHT AND WILL BE ON HERE AGAIN SOON.

  • hI AGAIN THANKS FOR ALL GETTING BACK ITS NICE TO HAVE YOU ALL THERE . YEAH I HATE TO SAY TO MY PARTNER WHEN HE COMES ROUND EVERYNIGHT I IN SO MUCH PAIN BLESS HIM HE WALKS IN AND SAY HOW ARE YOU AND MY MOUTH SAYS FINE THANKS BUT MY HEAD IS DEF NOT SAYING THAT BUT HE DONT WANT TO HEAR THAT EVERY NIGHT BLESS HIM. WE USED TO WALK FOR MILES IN THE SUMMER WITH THE DOG, 4/5 HOUR WALKS BUT I CANT DO THAT NOW IT WOULD KILL ME, BUT LIKE I SAID LEAST I CAN WALK SO ALWAYS SOMEONE WORSE OFF, BUT SOMETIMES I DO FEEL SORRY FOR MYSELF I THINK WE ALL DO IF WE'RE HONEST. OH WELL I AM NOW GOING TO HAVE MY MUCH LOVED HOT IN FACT VERY HOT BATH AND LET THAT HEAT SEAP INTO MY BONES. YOU ALL TAKE CARE NOW AND VERY GENTLE HUGS TO YOU ALL LOVE DIDDLE XXXX

  • I must say I enjoyed your rant, you said how most of us feel. I was diagnosed with fibro bout 15/16 yrs ago after a messy divorce. I would love a bath but unfortunately thats no longer possible, it takes so much out of me its not worth the pain after (also I cant get in or out of 1 now). I was medically retired from work bout 10 yrs ago and really miss my job. I finally found a job I loved and then after 3/4 yrs my working career was over. I too miss walks out etc. My hands ache and someone said about only quarter filling kettle because of pains in their hands. I wear hand splints and this helps but I bought 1 of those 1 cup kettles, I fill kettle with jugs of water and it dispenses water 1 cup at time. Must admit its a god send, you should try 1. I'm on that much medication I rattle when I walk...lol. I'm on 35mg transdermal patches, gabapentin 300mg 8 x daily, robaxin 750mg 6 x daily, tramadol as and when needed and escitalopram. I use tens machine especially on my hips and shoulders and find that helps. My hubby asks me everyday how I'm feeling and feel like I'm always complaining of the pain. Must admit hes been great, dont think he realised how bad things were till we married 6 yrs ago. I have 3 grandkids, granddughter who will be 5 in July, 2 grandsons, 1 of 4 and other 7mths. I also have step granddaughter whos 3 and my step daughters due her 1st baby anytime now. I love to see my grandkids but not as much as I love to see them go home. They are to young to understand nannys not able for them everytime they call. I really wish I was able just to be able to take them for walk to local park and watch them on swings.

    Does anyone else suffer from cataracts. I went to opticians 2 yrs ago in June and was told my eyesight was perfect but by Sept I realised something was wrong. When I went back to the opticians he told me I was suffering from cataracts in both eyes but the 1 in my left eye was growing faster than anything he had ever experienced. I had op few mths later. (I took my mum to all my apps so people in waiting room would think it was her and not me, I was in pieces because I was only 43 at time) Does anyone know if theres any link between the 2 or anyone else suffer. I must admit I was in bits and thought whats next.

    Sorry for ranting on but once I started I just needed to get it out to others who understand.

    Soft hugs to everyone xx

  • Bless your heart but i know how you feel totally so thats what is so nice on here you dont have to hold back you can let it all out because you all understand. well perhaps one day things will get better we got to have hope and look to the future. I dont know about cataracts and a link with fibro if you type that in google it should come up . you take care and if you want a rant well this is the place we cant give you a physical hug but we can appreciate how you are eeling. have a good day love and very gentle hugs diddle x

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