Hi all, I am new to this forum, I have found the posts and articles fascinating, as with many people, I’m sure, it’s so good to know you are not alone and in my case feel like you must be insane as the symptoms are not visible. A couple of comments if I may, my consultant does believe there is a connection between Thyroid problems and fibromyalgia, I’m just throwing this out there, perhaps he sees a higher number of people who suffer with both? The article on thyroid testing and many others I have read do confuse me in that there is no reference with regards to having no thyroid gland to test, mine was removed as it was cancerous approx 25 years ago and I remember thinking, great! Now I will start to feel better, I’m still waiting!!!! Despite taking levothyroxine and having occasional blood tests (measuring what? The synthetic hormone in my blood?) I have never felt well, this then (arguably?) resulted in fibromyalgia, possibly a coincidence, all I know is I didn’t feel well before the cancer diagnosis and have felt progressively worse since, I have had to take early retirement because of the fibromyalgia, this has not helped my mental well-being and added to the myriad of problems that fibromyalgia brings leaves me as one very unhappy lady! Thanks for listening!
Thyroid cancer and fibromyalgia - Fibromyalgia Acti...
I was diagnosed with fibromyalgia about 4 years ago. I’d been going to GP with fatigue, shortness of breath and huge goitre for several months. Saw an Endocrinologist at local hospital who declared it was “just a goitre, non cancerous, it’s common. “ He lost interest then, sent me packing and nothing more has been done. I do notice that whenever I eat gluten ( very guilty of that the last 2 weeks) goitre enlarges, fatigue returns and even muscles seem to “burn” more. Apart from avoiding gluten I think I’m just stuck with a goitre as bloods always come back normal. But def a link between thyroid and my fibro symptoms.
With no thyroid and on levothyroxine you always need to get FULL thyroid testing
Just testing TSH and Ft4 is completely inadequate. As Lou1054 says....suggest you take a look at Thyroid UK on healthunlocked.
Over 100,000 members. Many forced to get full testing privately to get thyroid issues revealed
Fibromyalgia can be interlinked with thyroid problems, poor conversion of Ft4 to Ft3, and/or low vitamin levels, and/or gluten intolerance or lactose intolerance.....all cause low Ft3 which can contribute to fibromyalgia
As 06hollyberry has noticed ......gluten intolerance is very common problem for many thyroid patients
For full Thyroid evaluation TSH, FT4 and FT3 need to be tested. Important to do thyroid test blood tests as early as possible in morning and before eating or drinking anything other than water and last dose levothyroxine 24 hours before test
EXTREMELY important to test vitamin D, folate, ferritin and B12
I was diagnosed with Fibro 2011...but i believe ive had it since late 90s.....definitely 2000-2001!
The 24th of this month im spend 3 weeks (mon-fr) home weekends for 2 weeks straight at St Thomas' hospital gassiot house London pain management.
Go to you gp and see if you can have a referral there..
I'll update after March 6th. Ive been told it doesnt remove the pain but helps you live a better life...Not sure how thats going to work but willing to try.