Coping with fibromyalgia : Hi my name... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,987 members67,154 posts

Coping with fibromyalgia

Fitzy81 profile image
10 Replies

Hi my name is Lisa I am 38 I have had fibromyalgia for a couple of years now but these last few weeks have been really bad I have been in bed most of the time how do u cope with the pain

Written by
Fitzy81 profile image
Fitzy81
To view profiles and participate in discussions please or .
10 Replies
YASMINTINA profile image
YASMINTINAFMA UK Volunteer

healthunlocked.com/fibromya..., morning, there are times I read and for me personally there are days in bed and patches where a flare has kept me in bed longer, it is very hard, I tend to ride it out with bed rest until it passes, medication from doctor, soak in Epsom salts to relax muscles, some people have tried a tens machine for pain ?? I use a rub in pain relief gel on my worst areas which is normally back shoulders neck. I try not too think too far ahead until I feel I can get up and tackle the house etc, my iPad is helpful ,for company, a good film or drama on the tv, and we get to support each other here and a helpful chat is always good xx ps I posted a link should you want to lock your posts for more privacy as only our community can see.

Fitzy1981 profile image
Fitzy1981 in reply toYASMINTINA

That's just like me it's horrible but thanks for replying u have really helped

Hi hun,,over the years of suffering has anyone explained "pacing yourself"? That can seem impossible for some but its essential to store energy when its good and not use it up,,I've done it many times and lost days and weeks recovering.

Fitzy1981 profile image
Fitzy1981 in reply to

Thanks for replying no one has explained anything really

in reply toFitzy1981

You will get the best help from Fibromyalgia u,k web sight and lots if tips on here.

Fitzy1981 profile image
Fitzy1981 in reply to

Thank you

Midori profile image
Midori

I find that forcing myself to get out of bed and gently moving helps. For me, staying too long in one position makes me stiff until I almost set like concrete!

Also, staying in bed will cause your muscles to lose tone, and make you less able to regain fitness when you are able to move.

It may be the easy option, but you are likely storing up problems for the future. You are still fairly young, and gentle exercise helps.

Fibro is a thief, it steals ability if you let it.

I have decided to treat it as my enemy and fight it all the way; I'm determined not to lose any more of my abilities, and I have lost a lot over the years, rockclimbing, horseriding, fencing, ballroom dancing. It is not taking any more from me without a fight!

cheers, Midori

Fitzy1981 profile image
Fitzy1981 in reply toMidori

Good on u it makes it worse for me cause I have other health problems and my mobility isn't good I walk with a frame but thank u for your advice

Midori profile image
Midori in reply toFitzy1981

I too walk with a rollator, or sometimes I use a wheelchair. I'm a week away from 72, (UGH!), and I've had enough of Fibro kicking my backside. I also have multiple conditions, but I only have one life, and I going to live it as best I can, and for what time is left to me.

Cheers, midori

Fitzy1981 profile image
Fitzy1981 in reply toMidori

Do u know u are right I can't let this beat me thanks

Not what you're looking for?

You may also like...

Tips for coping with fibromyalgia.

Hi , my name is Kelly and I was diagnosed with having fibromyalgia back in June of this year I am...
Kelyoung75 profile image

Coping with Depression

Anyone, have any tips on coping with severe depression apart from the obvious. Am reluctant to go...
Purple500 profile image

Sleepaholic with fibromyalgia

Recently diagnosed with fibromyalgia (August 2019) and have been attending a fibromyalgia clinic...

Working with fibromyalgia!

Hi everyone I'm a young man 20 struggling with fibromyalgia and have been since 12-13 however took...
MatthewTait profile image

Living with fibromyalgia

Hello my names Alice and I'm 25 years old and for 10 years I have been struggling with pain and...
Alice2701 profile image

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.