Has anyone been prescribed Nabilone o... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,452 members66,497 posts

Has anyone been prescribed Nabilone or Sativex ie cannabinoids for Fibro???

8 Replies

My Consultant at Pain Clinic tell me the above are only prescribed for people with neuropathic conditions. It is still argued wether Fibro, should come under the auspices of Rheumatology or Neuro/ie Phsycological ilness.

Any views on this. Hope today and life is on the up for you, x

Read more about...
8 Replies

I have No ides where the ca Nina lids.....came from!!!!! See above? It should read cannibinoids!!!!

LindseyMid profile image
LindseyMid in reply to

Hi cassmama9, I've edited the title so it now makes sense! It did take me a moment to work out what ca Nina lids was supposed to be!

Yes!I. I call it my Butterfly mind!!!! But, that's the least of our probe, I think!!!!

Enjoy the good days lol x

LindseyMid profile image
LindseyMid

No, I haven't been prescribed them, but it would be interesting to hear if you can get them and what benefit you get.

Cannabinoids have been studied to some extent as treatments for Fibro with promising results (see links below to research articles)

ncbi.nlm.nih.gov/pubmed/214...

ncbi.nlm.nih.gov/pubmed/200...

ncbi.nlm.nih.gov/pubmed/185...

ncbi.nlm.nih.gov/pubmed/179...

We consider Fibro to be neurological. Rheumatologists traditionally see the most Fibro patients because 1, it was used to be thought that Fibro was rheumatological and 2, ruling out rheumatological conditions is a big part of diagnosing Fibro. But many (most?) neurologists are not aware of this. There are plenty of rheumatologists and other non-neuro doctors carrying out neurological research into Fibro around the world.

Neurological is not the same as psychological.

Cazie50 profile image
Cazie50

No, not been prescribed, it would be interesting to hear about it.

Rach1977 profile image
Rach1977

Wow, never heard of these drugs, however very interested and will read the link Lindsay has placed on here. Do you take them? x

venitamaclean profile image
venitamaclean

I have tried them, I friend us to take it for ms, doc,s will not give it to fibro patients, it did work for me and I wish we could get it off doc,s, ask doc,s about it, the more we shout scream we might be able to get them change their minds x

Bartyboo profile image
Bartyboo

Hi, I just joined today I'm a fellow fybro sufferer and have psoriatic arthritis and am prescribed Nabilone (cannaboid) it really helps, but you have to go down the route of trying everything else first and yes it does help take the edge off pain. You can only be prescribed it through a pain clinic though xxx

You may also like...

Has anyone been prescribed morphine patches?

has been discussed at all but last week another fibro sufferer told me she is on morphine patches...

just wondered if anyone has been prescribed morphine patches for pain?

of scarring my chest . a consultant on the pain management team prescribed me the same drug but on...

has anyone with fibro ever been diagnosised with Proctalgia fugax?

clear he told me i also suffer from above? i wonder if any other fibro peps also suffer this?

Has anyone had fibro in the head?

with severe pains in the head. Doc examined me and said it could be shingles or a fibro flare in my...

Has anyone been tested for auto immune disease before fibro diagnosed?

they keep coming back clear but I am still not convinced I have Fibro and would welcome any...