ESA : Hi got news this week that I have... - Fibromyalgia Acti...

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Bigears16 profile image
4 Replies

Hi got news this week that I have been put in the support group and at end of March I will receive the higher amount which I know is great news as desperately need the money as pip still not sorted yet, it’s just I got so down about it as i feel that at almost 42 I’m now on the scrap heap and useless I have worked from age 13 until November last year where I pushed myself way beyond my limits I still tried to continue working while on crutches and heavy meds for my fibromyalgia and osteoarthritis of my spine. I lived to work and I’m taking bad with now not working and accepting help from other when I used to be the one helping ( was a care manager) xx

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Bigears16 profile image
Bigears16
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4 Replies
rosewine profile image
rosewine

I know the feeling and can entirely sympathise. I too lived for my job I used to love to go to work not only because I loved my job and felt it was worthwhile but also the company and interaction with others. Like you I am a very independent person and hate asking others for help. I can only liken what I went through initially as a sort of grieving cycle where you go through all the different gamit of emotions. It wasn't until I worked my way through them all that I started to have some acceptance of my change in circumstances.

I often say to my husband that they could have my home, money, etc if I could have my health back. I have realised that a miracle isn't going to happen (well unless they suddenly come up with a miraculous cure and I am not holding my breath) so now try to make the best of the changed life I have. I will be first to hold my hands up and say it doesn't always work but I do have a greater acceptance now. I think it is a big psychological hurdle to get over and the younger you are the more difficult it must be. Sometimes people find that a few sessions of counselling help them to find a new path.

Thinking of you, wished I had more concrete advice to offer. I am pleased that you have the ESA and hope you get your PIP sorted soon.x

Suehad profile image
Suehad in reply to rosewine

Your story sounds so like mine. It is difficult to accept you can no longer work. You have to accept that you are now a different person and adjust your life accordingly....sounds easy but much harder in practice.

Painny profile image
Painny

So so pleased for you, at least you have a less of financial worries when you get the highest rate, best wishes x

Bigears16 profile image
Bigears16

Thanks I will get my head round it all at some point xx

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