Bloods back !: Hi lovely peeps my... - Fibromyalgia Acti...

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Bloods back !

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Hi lovely peeps my vitamin d is very low and I'm high risk diabetes but I've cutt out all sugar but I did get crazy sugar cravings in the night so need bloods re done any helpful info ? Is it linked to fibro x?

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30 Replies

Highly zoonie I'm under 9 stone 5 foot 2 so right weight I was getting mad sugar cravings in night id eat chocolate cake anything sugary I'd wake up shaking for it then go bk to bed I take magnesium and I eat so healthy now I eat spinach bananas I cut out all sugar so I really don't get it ??how come people with fibro are low vitamin d ?x I'm also having night Sweats don't no if it's fibro diabetes or both x

SlowDragon profile image
SlowDragon in reply to

Nights sweats is frequently low B vitamins

Ask GP to test B12, folate and ferritin

Common for B vitamins to be low when vitamin D is

Dr Gominak on the interconnection

When she says optimal vitamin D at 40 that’s 40ng/ml - in UK that’s equal to 100nmol vitamin D

youtu.be/74F22bjBmqE

in reply to SlowDragon

Thanks for that I will look x

Painny profile image
Painny in reply to

Vitamin d deficiencies related to lack of sun, we don’t have in U.K., I have been told by my go I should travel twice a year to a hot country....!? Food for thought

gemmahughes1987 profile image
gemmahughes1987 in reply to Painny

Do you get a prescription for that holiday 😋

Painny profile image
Painny in reply to gemmahughes1987

Haha.....no, hope you are joking 🌕🌞🌝⭐️☀️🔥😀

gemmahughes1987 profile image
gemmahughes1987 in reply to Painny

My in law moved to Spain she also had fibro couldnt brush her hair before she went shes practically cured now can lift her arms no shoulder problems

in reply to Painny

Sun light is the Catalyst not the source of Vit D You absorb Vit D from your food if sat fat present as that metabolise it so you absorb it.Vit C needs fluid in food

IE there either Fat or water soluble one reason red milk isn't great for woman.

One of the best milks to get is Waitrose Duchy blue top not only great taste (unlike corner shop reconstituted pee which has had all the nutrients stripped from it as the fats are the cash in milk.) But has decent amount of goodness as good fats unlike Chocolate and lots of other things many stuff in there face while shunning milk and butter!

Vit D also controls Cholesterol as everything in body is interlinked

Midori profile image
Midori in reply to Painny

Chance to do that would be a fine thing, but how many of us can afford to go on holidays? :)

I can't, I haven't had a 'proper' holiday in more than 30 years. My hols consisted of a weekend camping maybe twice a year, and now I can't drive any more that is out the window! My last passport expired 30 years ago. Found it the other day and laughed at the photo!

GPs often don't understand the financial status of their patients.

Cheers, Midori

Sleepnot profile image
Sleepnot in reply to Painny

Hi,

I stay quite tanned all year round as people often ask me during the winter months where I have been. Just in UK. I tan easily in the sun too, always have, but I have a permanently low vitamin D.

Lack of sun isn’t always the answer. X

ShootingStars profile image
ShootingStars in reply to

Sun is required by all humans for the body to produce vitamin D. If any person is not exposed to enough sun, they will be vitamin D deficient, even if they have no health problems. People who don't feel well most likely do not leave their house a lot and go out in the sun for a long enough period of time so their bodies can produce healthy levels of vitamin D. Not enough sun causes vitamin D their deficiency.

in reply to ShootingStars

Sun light makes the Vit D work! it's in what you eat but without the rest of the system it passes through

Worst thing for it is Fizzy drinks esp coke/Dr pepper etc as outside acids deplete the body of Calcium/Vit D

ShootingStars profile image
ShootingStars in reply to

Hi Oscarbravo. If sun was required to make ingested vitamin D become active, then all of the people around the world that take D supplements or eat the very few foods that contain vitamin D and who do not get much sun exposure, are taking D and it is not working? That’s not quite how vitamin D works.

All human bodies can create vitamin D if they are exposed to direct sunlight. This is called vitamin D synthesis and it occurs when skin is exposed to direct sunlight.

Sunlight is not required to activate ingested vitamin D. Vitamin D is not naturally found in many foods, and you’d have to over eat these foods daily to get anywhere near enough vitamin D. Salmon and mackerel contain the highest levels of natural D. The only problem is, you’d have to eat over 12 ounces every day to get close to 2,000 iu vitamin D. For many people, 2,000 iu daily is not even enough. Some foods have been fortified by adding vitamin D. Milk does not naturally contain vitamin D, it is added when the milk is processed.

Thanks zoonie x

😅well off to Sicily soon see me grandad and painy if I was poor that would be offensive 😂😂😂only joking x

Painny profile image
Painny in reply to

Looooool, travelling in Europe is much cheaper than travelling inland, I have been to Croatia many times each time I spent less than travelling to Scotland, enjoy it 🤪🤩

Lol I'm a carer for now don't think I will continue much longer waitting for Rhumatologist to diagnosie me saving up hard s is hubby don't get help as of yet but some times I cry because pains to much but I made a promise to take me girls to see there great grandad it's not easy but I can do it x

Painny profile image
Painny

I am dreading my retirement age as I do not have any pension, my travel days was when I had a job till recently, I am now joining the list of dispossessed, poor, homeless, those who go to food bank despite being in a job then I am told why do you care so much about others to the point of making yourself ill 😯

in reply to Painny

That's because your a kind person I am to it's hard especially when your constantly in pain I've cared far to much for people that don't deserve it that hasn't helped my fibromyalgia at all some of those people being family members were are they now I'm ill ????still being selfish it hurts x

Painny profile image
Painny in reply to

sad but this forum is another family, once I was told one could make family outside a blood relationship. For me any relationship is give and take even from a family. Please look after the No 1 who is YOU

TAKE CARE 🤗🤗🤗🤗🤗

margaretpaloma profile image
margaretpaloma in reply to Painny

I live in Spain, the climate is far kinder to the sort of problems I have, even so the winters are harder than the summers when sun and daily swimming help. And the cost of living is less. Sadly that is going to be much, much harder soon for 'ordinary folk'.

margaretpaloma profile image
margaretpaloma

Hi Lauren, I eat hardly any sugar, but when I slip and eat a little I want more for a while. Craving sugar when you give it up is not unusual. But stick at it, once your body gets used to it you will actually find many things are too sweet for you so not mind 'missing out' on them.

The next thing is something I feel passionate about and post a lot. I saw an endocrin three years ago because I struggle to keep my weight down. To keep a very long story as short as I can he did blood tests and told me I am insulin resistant. He then did a detailed history and said my symptoms, and past blood tests have indicated this for years, but no-one had checked. Again from history he thinks mine came from undiagnosed PCOS but there are other causes. If you have it you are at far higher risk of going on to develop diabetes. My blood glucose had been hovering round the 95-105 for years (thats just pre-diabetic). It also makes it hard to control your weight although you say you do not have that problem - thankfully.

You can sometimes change this with diet and exercise - but that's hard with fibro. I take metformin, and my IR and glucose are now perfect and my weight is under control.

As you say you need more bloods ask for that to be done, for some unfathomable reason it rarely is. My endocrin says anyone with borderline high glucose, and anyone with a weight issue should be checked.

As I said this gets me quite worked up because my quality of life would have been so much better if one of the many doctors I have talked to had just done this simple test.

Painny profile image
Painny in reply to margaretpaloma

I always have craving sugar but I occasionally get it from eating dates or yesterday I bought a large butternut squash, it will go into the oven and will take it out when the skin has roasted or crispy. So delicious and yummy and sometimes when I feel the squash does not have enough natural sugar I add a tiny bit of organic honey 🍯 and there you go....I’m in heaven. I also eat a lot of vegetables fresh. I am lucky to live in London with lots of Mediterranean groceries. I eat tons of fresh parsley, coriander you name it....they all have good fibres, sometimes I think I should have been a cow 🐄😀😀 this is my joke of the day and now on my way to the gym 🏹🏋️🤸‍♀️

in reply to margaretpaloma

Hi Hun do I did some research and people with fibromyalgia not all some are v d deficient and have problem with insulin ????in May 2019 scientists found glucose levels to be higher in fibromyalgia patients xxx good job I did my research x docs useless o probably no more than him about this there's so many symptoms it's scary x

margaretpaloma profile image
margaretpaloma in reply to

Hi Lauren, OMG my medical history is complex, fit, well and very slim until I was 39, when I was told I had ME, had problems on and off since then although I did 'get my life back' and have a successful second career. My 'crashes' seemed to be linked with when I was on the pill, and when I was on/off HRT . The more I learn the more I think it is all linked and the more I curse the doctors who failed me, despite my asking many times for help.

At the moment I am told I probably had PCOS, but that can't be confirmed after menopause, I am Insulin resistant, controlled with metformin, I have had both hips replaced in the last three years because of osteoarthritis, which I now have in one, or possibly both, shoulders. I am overweight though finally I can at least control that and not put weight on if I just look at food. And recently I was told I have fibromyalgia.

Just looked up some of the medical papers you may have seen, yes there is a strong link, and just possibly being on Metformin is the reason my fibro is not as bad as many of you seem to be.

My dream, should I 'win the lottery' would be to get all the various 'experts' in one room and ask them to sort it out between themselves not just pass the buck backwards and forwards.

margaretpaloma profile image
margaretpaloma

Zoonie, has your wife been checked for insulin resistance - see my detailed post to Lauren

gemmahughes1987 profile image
gemmahughes1987

Not that I know of from my experience with fibromyalgia wait and see what your bloods cone back as, I had low vitamin D but only craved sugar when I had gestational diabetes when pregnant with my son.

Medical61 profile image
Medical61

Probably more likely that you are not getting enough sun. If you stay indoors a lot of the time you are at high risk of low Vit D.

deejames profile image
deejames

And is better for your carbon footprint

ShootingStars profile image
ShootingStars

In most modernized cultures, the majority of the population works indoors all day. Even in sunny climates people can not get enough sun exposure and they can be vitamin D deficient. Some people in sunny climates still need to supplement D year around.

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