Suffer every minute everyday

[connie]

Constantly feel low I cry alot always in bed if I try to do something maybe 20 is alli can manage b4 I'm back in bed I feel so useless and a burden to my family I used to be on the go all the time I was so strong I dont see any light I've had stupid fibromyalgia for arond 15years it defo gets worse well it did for me I'm so tired and yes I'm anti depressants as well as morphine tablets and medicine also naxoprocene dont hold much hope just turned53 xx

[Hidden]

Hi

Please do not feel useless and a burden on your family, it isn't your fault!! You need your family around you now more than ever. Have you got someone you can talk to . You can pm me anytime, please take care. Lots of love and hugs Lynne xxxx

[connie in reply to Hidden]

Thankyou I tell them I hurt but they so used to it they just say ok and walk away

[Hidden in reply to connie]

Hi

I think you should your family and friends this forum and maybe take one if them with you to your next appointment and ask your consultant to explain things to them, maybe they would sit up and take notice then!! love and hugs Lynne xxxx

[Hidden]

Hi 👋 At 55 I can relate to the bed issue as I am very familiar with mine. 🛌However, this is not a sign you are useless and/or a burden to your family. It is just your way of coping with this illness. We all used to be stronger and could do lots of things but we have to adapt and just do what we can at a much slower pace. It’s nothing to be ashamed of, it’s just the way we are. You are only 53 and have years of love,joy and laughter ahead of you ( with a bit of pain on the side) . Keep going and perhaps see your doctor again and explain what is going on. Good luck Hun and think of all the lovely things in your life, like family. Big hugs 🤗. Xxx

[YASMINTINA FMA UK Volunteer]

healthunlocked.com/fibromya..., morning, it’s tough as most of us know how fibro can change your life so much, even if it’s 20 minutes making a dinner, putting out the washing, just do small things when you can , your family will know you are doing what you can when you can, I found when I went through this I was constantly thinking about what I could not do and it was wearing me out even more, as I was constantly beating myself up, speak to your doctor again about the medication your on, it was a change for me that has settled me down completely as had anxiety/depression, after trial and error this has made such a difference. If you have a good support network behind you that will help, empathy and understanding is what we need, amd when you feel like it have a chat here with people that understand, I found reading other peoples stories/experiences helped , i didn’t realise how many thousands suffered from this awful condition, stay in touch with your doctor/practitioner nurse they can monitor how you are doing and sometimes a change in medication could improve your depression, I am in my fifties so I completely understand xx