Experiences with

alli

Hi AllI have had chemo for high grade B cell and Richters Cll. In remission for 2 years but now regressed with nodes in 3 areas. Am on Watch Wait to see how fast growth is. They say possibility of an inhibitor drug called Zanubrutamide if growth of Richters gets faster.

Hey allI was considering starting a supplement for inflamation as can't take most like anti inflammatory meds as ckd. Does anyone know about it or used it? TIA

Hi allI have just discovered this forum. I've been diagnosed with AIH and I'm currently on steroids to try and bring my deranged numbers down which is working. I started in 60mg and down to 40mg daily with no current talk of dexreasing. I'm also on prograf and this will be for life.

Hi allI recently posted about my grandfather and his struggle with his many health conditions. Sadly he passed away Saturday, such a shock it was and yet we haven't got any idea how he died despite all those health concerns. Totally heartbroken and lost. Danielle

Hi AllI have been soldiering on with my PMR relying solely on pred for what is coming up to 4 years I think. I am sustained by reading all your requests and advice daily. Sadly over the last year I have noticed I am having more and more difficulties locating a word I need to use.

Hi allI have moderate aortic valve regurgitation and partial right bundle branch block. Onset of symptoms recently and now on medication but GP still hasn't referred for Echo after 8 years of no monitoring. I am really anxious particularly now i have an arrhythmia. Anyone else live with this?

Hi allI went for my bone scan last week and unfortunately osteoporosis has been diagnosed. My GP has suggested the injection denosumab (Prolia,) injection every 6 months, I have done some research on this treatment, possible side effects a bit scary.

Good morning allI have run out of my methylfolate supplements I have been on B12 injections for a few years now and been taking supplements too. Just wanted to know if its necessary to keep taking the supplements, it just gets so expensive with the cost of living. I take B1,B2 & methylfolate.

Hi allI had a fall on a wet marble floor which I think started this off. I also have osteoarthritis in my lumbar spine, so this is quite painful & stiff first thing of a morning, but I can cope with this once I start moving and take my medication (Naproxen).

Hi allI was diagnosed with PA about 6 years ago. For years I lived with the worse anxiety. Once I started loading doses and got on a regiment(3 jabs a week) my anxiety was practically gone. I mean I would get nervous(normal type of nervous) but anxiety was all but gone.

Hi allI have just had my 3rd injection of Tyenne Biosimilar after being on Tocilizimab since approx 2019. My skin has become much more sensitive in the last couple of weeks. I have had a rash on my neck and chest, and now my arms.

Hi allI have my blood test booked for Friday at 8.10am Is that time fine? Not diagnosed and not on any meds. I know only to have water only. I only ask cause I have seen some posts say ideally just before 9am. Thanks

Hello AllI posted a week or so ago while I was in my tww after embryo transfer. I got my BFP. Since then I'm getting injections every morning. However I've started bleeding. The doctor told me to expect this. But I'm so worried. I bled a bit the stopped. Now started again.

Hi allI have had a problem with my hip and GP sent me for an x-ray and I have damage in my hip, I also have pain in back,knees and ankles and I'm worried I have damage to these joints. My Ra hasn't been controlled for three years and I'm currently on methotrexate injections weekly.

Hi allI had an MRI in December which was basically a bit of a shambles (not reported correctly) they THINK I possibly have DIE of the rectosigmoid. I got referred to a specialist centre which the appointment just keeps moving further and further away.

Hi allI was diagnosed with PMR in March 2019 after sudden onset of symptoms. CPR 95.3, ESR 71 which came down quickly after 15mg pred. Reduced to 5mg first year which continued for a further 3 years, then down to 2.5mg in the 5th year.

Hi allI finally went through with it! Firstly, I couldn't have the usual pain relief as I am sensitive to codeine, tramadol and morphine! Anti sickness gave me an anaphylactic shock when I was 17 so they trod carefully with that one!

Hi allI was diagnosed with endometriosis in 2020 (never told stage or anything like that) and scans I've had show probable adenomyosis as well. After my laparoscopy my pains came back fairly quickly and have escalated.

Hi allI had a really nasty cold/cough which has left me with a bad cough and a flare up of asthma. Currently on holiday in India and although I am taking Fostair with a a couple of shots of ventolin inbetween, the cough is not dissipating. It's particularly bad at night.

Not like me at allI normally run hot!