Pip: So I sent my pip form off and got... - Fibromyalgia Acti...

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Pip

Annab124 profile image
63 Replies

So I sent my pip form off and got a face to face assessment, I’ve got declined pip an achieved 0 points as the lady basically called me a liar as I looked fine on the day , I explained I was having a good day with my Fibro but she ignored this completely ! she asked how I got to the assessment centre an I said my dad but she concluded on the paper work that I can plan and make journeys on my own ! She said I made good eye contact when I didn’t as I was so nervous ! She said I can prepare meals myself as I got my bank card out my purse with no difficulties . She basically lied about the whole thing

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Annab124 profile image
Annab124
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63 Replies
FRreedman profile image
FRreedman

Ask for an MR, and prepare for an appeal. Start by keeping a diary of EVERYTHING you do, every time you have to stop because of pain or exhaustion, every time you need somebody else to help you finish, complete or continue a task.

Annab124 profile image
Annab124 in reply to FRreedman

Thank you xx

Annab124 profile image
Annab124 in reply to FRreedman

I called today for a mr , if they say no again, any idea how long it takes for tribunal? X

FRreedman profile image
FRreedman in reply to Annab124

I believe they say within 6 months, but I am not sure.

in reply to FRreedman

I'm in Derbyshire I've been waiting 20 weeks for my appeal tribunal services have told me I'm only half way with another 26 weeks to go yet !!!

Angelic17 profile image
Angelic17 in reply to Annab124

Hi Anna , I was refused pip so sent in MR I was then declined so appealed to the tribunal , it took from January 2019 to August 2019 that I heard back and was awarded the daily living component , when appealing go through everything you can’t do on a bad day and say why , forward copies of any hospital or doctors diagnosis, I would also ask a family member to write a letter and outline how your disability hinders you daily ,

Good Luck with it all , it is stressful but worth it in the long run if you win x

Shortstuff2 profile image
Shortstuff2 in reply to Angelic17

Hey Angelic, congrats on your award! I’ve also been successful via appeal. Have DWP responded to it yet? Mine was exactly the same wait - Jan to August!x

Angelic17 profile image
Angelic17 in reply to Shortstuff2

Yes I am now in receipt of pip , give them a call and ask for an update , tell them you have received your tribunal letter , fingers crossed you hear soon x

Farmerboy profile image
Farmerboy in reply to Angelic17

Remember all the documentation for your PIP assessment will be available to the MR and tribunal hearing who are and will only be interested in how you cope manage the PIP descriptors. They will not be interested or take Ito account a worsening of your health conditions.

Farmerboy profile image
Farmerboy in reply to Angelic17

Hello, when applying for or appealing your PIP award do not describe your worst day or days. PIP is based on the majority of days most days not when I have a bad day. Your diagnosis, hospital reports will hopefully have been sent in with your pIP application form and I hope you have copies. The MR or tribunal hearing are only interested in how you cope manage the descriptors in your daily living activities. Moaning, stating comments or remarks made by the HP at your assessment will not be of any interest to the tribunal members or any worsening of your conditions.

Farmerboy profile image
Farmerboy in reply to Annab124

Hello if you apply for a MR and no change the next step is a tribunal hearing which I am sorry to say is 12 months waiting time and longer in most cases. When preparing for your MR or tribunal remain focused on the PIP descriptors you are contesting and send in several examples of what happened or happens when you try or attempt to the descriptor you are contesting. On no account mention lies or false statements made in your report or assessment as the MR and tribunal are not and will not be interested in these views or your comments.

Mistrylady profile image
Mistrylady in reply to FRreedman

FRreedman sorry to be a numpty but what does MR mean ?

FRreedman profile image
FRreedman in reply to Mistrylady

That's okay. Mandatory Reconsideration. Basically they just go over what was put down originally, and are supposed to look again to see if there are any points that have been missed. 99 times out of 100, they don't, they appear to just rubber stamp the original decision, which is why we advise appeal to the Tribunal, which has a massive success rate (Ajay probably knows the exact figures better than I do.)

Annab124 profile image
Annab124

Thank you ! I have already made a mr over the phone today but I may send in a note from my doctor too to support my claim x

Alone717 profile image
Alone717 in reply to Annab124

Hi Anna, do not just do MR over the phone but pick your report to pieces and write on every single thing that you do not agree with; I wrote 26 pages altogether (took me some weeks as very bad swoolen and painful fingers) most get turned down at MR so be prepared to go to tribunal and all that you have written can be used at tribunal, good luck x You have 28 days from date of decision letter to send in your MR ; such a pity you have done it on phone because you could have got an extra 28 days if you had left it until the 28 days were nearly up x

Paddy1970 profile image
Paddy1970 in reply to Alone717

And if they uphold the original zero points, as they did with my son - request a tribunal hearing. It is a long wait (You can ask where has the shortest wait is nearest you when you get your letter from the tribunal service) but well worth it. They will back date it for a certain amount of weeks. Good luck 😊

Annab124 profile image
Annab124

So shall I still write my own an send it off anyway then x

Appeal Appeal Appeal!! Absolutely awful x

And go to see citizens advice. And photocopy every piece Of evidence you have. X

Annab124 profile image
Annab124 in reply to

Thanks so much! Really appreciate it xx

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff

Hi, cab, welfare rights or similar organisations can often help with submitting your MR /appealing and some will attend the appeal with you if it comes to that.

If you drop an email to head.office @ fmauk.org (without the spaces) I can email some guidelines on appealing.

I recently used an online link to write my husbands - i can see if I can find it again.

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff in reply to Hazel_Angelstar

This was the link we used

advicenow.org.uk/pip-tool

Annab124 profile image
Annab124 in reply to Hazel_Angelstar

Thanks so so much xxx

Alone717 profile image
Alone717 in reply to Hazel_Angelstar

Be wary of usig CAB as they are under the DWP's thumb and have heard really bad reports about them.

Rosepetal60 profile image
Rosepetal60 in reply to Alone717

I second that. I was given wrong advice by CAB regarding PIP. I would not recommend them for this type of form.

johnsmith profile image
johnsmith

She did not lie. She is working to laid down criteria. You need to find your local charity who give benefit advice. You need to have them explain how the point system works. And then write a letter of appeal explaining why you are deserving of points.

You need help from those who know case law.

I got zero points in my PIP assessment as well. I am now waiting for tribunal date.

Annab124 profile image
Annab124 in reply to johnsmith

She did lie! there’s following guidelines that saying the complete opposite to what actually happened /: I feel bad for people who are even worse off than myself . It’s such a stressful process

johnsmith profile image
johnsmith in reply to Annab124

It is a very stressful process. You have one criteria and they have another. You say in reason for appeal: "she failed to record this and she failed to record that." She had no stop watch to time how long I took to do an action.

Lying is one person's word against another. It does not go very far if at all at a tribunal. You need representation and you need to present sound reasons why the assessment was wrong. At the mandatory re-assessment they will ignore your sound reasons. At the tribunal you need to present yourself as a reasonable person.

Annab124 profile image
Annab124 in reply to johnsmith

Thank you !

Shortstuff2 profile image
Shortstuff2 in reply to johnsmith

My assessor absolutely did lie - regardless of them following different criteria. She wrote the opposite of what I said throughout most of it - my partner was with me & witnessed it all. According to her report I was all singing & dancing - for example she claimed no breathing difficulties when the day before my inhaler was increased (doubled) in dose due to worsening breathing difficulties..! Also had a consultant assessment where lots of my movement around arms & neck etc was recorded at no higher than 70% - which she recorded was 100% movement a day later- such a shame I didn’t feel this miraculous recovery.. She claimed no signs of anxiety despite several times stopping to check I was ok as she noticed & commented on the fact that I was sweating, trembling, becoming increasingly panicked etc. - she actually then stated in report - ‘no signs of anxiety - did not appear to be sweating, agitated, trembling’ etc. So a total lie to what actually happened. The list honestly goes on but it was In October so I can’t remember any more finer details. I’ve backed up each of her ‘mistakes’ with sound arguments relative to the criteria, but to say they don’t lie is frustrating when that’s what happened! 0 points awarded - same at MR. They are also disputing my appeal. All decisions fully relying on her report.

Vivalaviv profile image
Vivalaviv in reply to johnsmith

As you were not at the assessment how can you make this statement ? They lie to make you fit the criteria. Thats a fact

johnsmith profile image
johnsmith in reply to Vivalaviv

What are the meaning of words? Different peer groups determine what words mean. There is also the issue of two different people looking at different subtleties.

The assessor is looking at best performance as an indicator as to lower point scoring. The assessored is looking at their difficulty at doing a request. The two give different recorded results.

Alone717 profile image
Alone717 in reply to johnsmith

What do you mean she did not lie ? my assessor lied about everythng.

Annab124 profile image
Annab124

Thank you ! I love the support on here x

johnsmith profile image
johnsmith

I know it happens a lot. You say in reason for appeal: "she failed to record this and she failed to record that." She had no stop watch to time how long I took to do an action.

Sheila-Squirrel profile image
Sheila-Squirrel

Appeal. The person assessing only has to be a “health care professional” That’s not the same as a doctor so you could end up with a nurse or physio. Each professional in their own right but they may not have expertise in your condition. Also the system has been set up to be a tick box process. There’s little room for qualitative information rather than yes/no answers. Lots of people assessed are set up to fail before they even get to a face to face assessment.

Farmerboy profile image
Farmerboy in reply to Sheila-Squirrel

The PIP ascessment is not about your illnesses, disability or diagnosis, its about your ability to preform the PIP descriptiors in a safe, repeatable and timely manner, the HP who does the assessment dose not need specific training about your illnesses but will have enough knowledge and experience to know what symptoms and difficulties each and every claiment is likely to have that will impact on their abilities to preform the descriptiors.

Vivalaviv profile image
Vivalaviv in reply to Farmerboy

The problem is they dont have any knowledge of specific illnesses / disabilities. Thats why assessments are a farce

Farmerboy profile image
Farmerboy in reply to Vivalaviv

Why would and should they they ate not there to diagnosis your illnesses or give a prescription, no they are there to access your abilities in relation to the PIP descriptiors, the fact that you we or I have a illness or disability the acessor has enough knowledge to know what your mine illnesses, disability has on our ability to to preform the PIP descriptiors in a safley repearable and timely manner, they the acessor knows more about our disability and illnesses than you and I. I'm not a car mechanic yet I know what they're talking about form my personal knowledge and experience.

Alone717 profile image
Alone717 in reply to Farmerboy

You must be having a joke here mate ???? saying that the assessors know more about our conditions than us ; mine knew sweet f...all about any of my 10 plus life changing severly painful conditions that keep me housbound and isolated from society; you are def working for the DWP.

Farmerboy profile image
Farmerboy

Sorry you got refused PIP, when you put in for your MR do not or make any accusations about the assessor, the MR or if you continue on to a tribunal hearing will not and are not interested in your personal assessment details. Firstly when preparing your MR concentrate on how your conditions effect you in your daily living activities in relation to the PIP descriptors giving examples of the difficulty you experience when you try, do or attempt to preform the individual PIP descriptor you are describing for your MR application.

Alone717 profile image
Alone717 in reply to Farmerboy

I totally disagree ; I said the assessor lied about everything and wrote 26 pages (over several weeks ) to go with my MR . They lied and should not get away with it; they are doing this th a lot of people and it is up to us all to say it like it is.

Farmerboy profile image
Farmerboy in reply to Alone717

The PIP ascessment is not about your illnesses, disability or diagnosis, its about your ability to preform the PIP descriptiors in a safe, repeatable and timely manner, the HP who does the assessment dose not need specific training about your illnesses but will have enough knowledge and experience to know what symptoms and difficulties each and every claiment is likely to have that will impact on their abilities to preform the descriptiors

Alone717 profile image
Alone717 in reply to Farmerboy

I know all this; your reply has nothing to do with what I replied about the assessor lying; it it up to all of us really ill people to call them out on their lies or nothing will ever change. And most of the assessors no NOTHING about our illnesses; do you work for the DWP ?

Farmerboy profile image
Farmerboy in reply to Alone717

No I don’t work for the DWP, not knowing your actual concerns referring to the inaccuracies in your report of your assessment. May I recommend that you take your complaint up with the assessment company as I am sure they may be interested in your concerns, but be warned very few people get a positive outcome to their complaints.

Alone717 profile image
Alone717 in reply to Farmerboy

Yes I already have complained to asos and also complained to the NMC and the assessor I had should be dismissed and I will not rest until he is; and I would like to add I have had a positive outcome to all my complaints but it does not stop here for me as I will fight on for everyone else against the blatant lies they tell making us even more unwell because of the stress they make us suffer when we are already dealing with soooooooo much ill health.

jacksprat92 profile image
jacksprat92 in reply to Alone717

makes me wonder if farmerboy is an assessor

Alone717 profile image
Alone717 in reply to jacksprat92

Yes VERY FISHY; and I suspect he/she is not here to help us.

ljay2012 profile image
ljay2012

Hi, I’ve been through this too. I’m currently awaiting appeal with my 18 year old sons pip. Been waiting over a year, I’m told it depends where you live, as to how long waiting time is. He was awarded 0 points even though he had been receiving DLA for many years. His problems are far worse now and 0 points. so unfair.

Davesgal0509 profile image
Davesgal0509

I had my face to face last week and I'm awaiting a decision. The lady I saw was really nice and understanding but it's very hard to judge it in that environment as there face can be saying one thing and fingers typing another. I have severe anxiety depression and PTSD alongside my fibro and was an absolute mess on the day! The advice given above sounds spot on always appeal it's just sad that even in this modern day fibromyalgia is still not recognized by some as the debilitating condition that it is 😞 good luck x

SLM23 profile image
SLM23

It’s happening quite a lot, I’m sure they must pick names out of a hat or something. They do, the exact same thing happened to me last November/ December. I knew it was a load of cr*p because even before I had fibro I had/have mental health problems that previously I’d been scored 11. Appeal it! Citizens advice can help with the process

Edited by admin

Annandpaul2004 profile image
Annandpaul2004

Same scenario as mine im afraid, go to mandatory reconsideration, if the same then to tribuneral. The tribuneral is the only way to get justice but it s a long wait. I have fibro arthritis depression/ anx and diabeties . Got 0 points as well at tribuneral I got 16 points.

I'm in Derbyshire I've been waiting 20 weeks for my appeal tribunal services have told me I'm only half way with another 26 weeks to go yet !!!

Farmerboy profile image
Farmerboy

Yes I fully agree on the me tel health issues a very complex health issue, but the PIP ascessment is not about your illnesses disability diagnosis or mental health. When you we and I filled in our PIP application form we where asked questions in relation to the PIP descriptiors of why we can't preform each task, activity the descriptiors. The acessor at the F2F ascessment checked your written answers, with questions to asatain that your answers submitted are in line with what is, could be excepted of someone with your, illness, diagnosis or disability. Mental health is the new health problem for the UK, I can't cope, stress, worry, bereavement, dedt problems relationships, marriage, work where does it end.

Sheila-Squirrel profile image
Sheila-Squirrel

Unfortunately there have been many assessments made where PIP has been refused only to be overturned on appeal. Something that costs money that could be better used to get it right first time. Yes there will be people who try to cheat the system. They are a very small percentage of the claimants. Nobody wants to claim PIP because in reality that means they have a disability. I’m sure we would all prefer to be contributing able bodied people. I have CRPS and have had issues with it being understood by doctors as to how it affects me on a daily basis so what chance do I have with a face to face assessment? We have to become our own experts and learn the language they use to describe descriptors so that we stand a chance of being understood. It may be nuances or semantics but that is probably a bigger issue in the assessment process than people think. Unfortunately the assessment centres also are contracted to the government and not controlled by it. There’s too many management levels. The assessment centres are under pressure to get the job done quickly. Mistakes will be made.

jacksprat92 profile image
jacksprat92

please don`t give up hope, i was awarded 0 points for following a route etc, my husband who is my appointee put in for a mr over the phone, followed up by a letter and i was then awarded 10 points for the same descriptor, i know i was a lucky one so i feel for the rest of you and wish you hope

worried4me5 profile image
worried4me5

Sorry to hear that. It is so infuriating when that happens. I had a similar thing for ESA, so have an idea how you must feel.

I hope you are going to appeal the decision and best of luck.

Ax

0dd_0ne profile image
0dd_0ne

That's exactly what happened to me, only difference was I had a home assessment (I didn't ask for one but was given one anyway). I explained I was having a good day. I was dressed in pull on joggers and t-shirt, the report said I had no difficulty dressing because I looked neat and tidy (not sure how I was supposed to look?...), my daughter makes and freezes meals for me because I can't prepare a meal, but the report said I had no problem making a meal. I was asked to stand on one leg, which I managed briefly when holding onto the windowsill. The report said I did it unaided! It was full of lies! Because I could do certain things on that day, they've ignored the fact that I can't do it repeatedly and safely, even though I explained this to her many times! That the week before I couldn't walk to my bathroom without stopping to rest! I've requested a mandatory reconsideration but I'm not holding out much hope for it. They stick together and won't like to admit their assessors lie through their teeth!

Elvis2424 profile image
Elvis2424

Hey, people have pushed and pushed me the last 12 months to apply for pip and this is the reason why I haven’t. I’ve heard that they make you feel like a liar and worthless. People don’t understand that we’re living with an invisible illness, yeah we have good days and days. Days and we can’t get out of bed and dahs where we can shower, a bit of make up and maybe even be able to do our hair, but inside it’s not the same story. This is what makes me confused and angry about the whole thing. I really hope you appeal everything and get what you deserve x

Waula130370 profile image
Waula130370

Appeal you have to ring pip and ask to appeal they do lie they lied about me I've been disabled for 23 years and the assessor said in 18 months I would be fit and well lol he must know of a wonderful cure for osteo arthritis and severe depression ect that my own doctors don't know about x good luck and

Angela52afloat profile image
Angela52afloat

I’m so so sorry that you had a bad assessment outcome, the horror stories some people face on here is terrible. I received today my answer and I got enhanced on both thank god. The lady I had was lovely and seemed to really care and was quick from applying in may. It seems to be a bit like a driving test to me...so many fails and a few passes a day etc . Please don’t give up ...keep fighting Sending gentle hugs your way xxxx

Farmerboy profile image
Farmerboy

If you put on your MR and tribunal appeal that the assessor said this or that, she , he lied on what I said, didn’t write down this or that. The tribunal will not be interested in the here say of your assessment but the fact of if you can or cannot full fill criteria of the PIP descriptors in your ability to preform them in a safe, repeatable and timely manner, any worsening in your conditions since your original assessment will not be taken into account either .

Farmerboy profile image
Farmerboy

I am not cutting ribbons, just telling the truth as we at another national charity forum posters know as Disability Game Changers have came to understand how PIP, ESA and other benefits work on appeals and tribunal hearings.

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