Wondering if anyone else has experienced waking up with pins and needles in your skull it’s the same feeling when you have pins and needles in your hands & legs. However I went to my doctors yesterday and explained it is happening very frequently & it goes after a good few minutes but it’s a horrible sensation. The doctor said it’s part off your fibromyalgia. I just felt I was fobbed off. She didn’t say I would send you for a scan or anything else. Has anyone else experienced something similar. Thanks for taking the time to read my post.
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Nannyfibro
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Hi yes l have and still get it l was told by a neurologist that it is symptoms of a migraine, but it still happens more or less daily go back to your GP And tell them you want a scan unless you stick up for yourself, No one takes any notice l am sorry l sound so hard But l have had to make myself like this. Wish you well
Thanking you Awful, I will wait another week and will go back to my GP and tell them I’m not happy with what the doctor said yesterday and will request a scan.
It’s been happening for about 3 to 4 months now it last a good few minutes I feel as if thousands off ants scrambling in my scalp And pins and needles I have to shake and rub my scalp quite rigorously to shake off the awful sensation however my left hand half side off my face hair stands it’s really a weird sensation. I do have pains in my neck and it’s stiff. It does easy off gradually. I do feel really fed up as the doctors really cannot be arsed. with great difficulty I bring myself to make an appointment and to be fobbed off just demoralises me even more. Thanks for responding and your help. I will start to make notes. Thanks again have a wonderful evening
I have this sensation. It tends to come in later in the day. I actually had a CT scan this week regarding headaches, dizziness....
Had the all clear and was told it is down to migraine. My neck has been very painful lately and also behind my ear. Although l am reassured. I am still keeping a private appointment with a neurologist that l have at the end of the month. These migraines l have only started 18 months ago. Same time as l was diagnosed with Fibromyalgia. So l want to discuss what type they are and what l can do about it..they also suggested it could be due to me taking HRT. Been on it 15 years following a total hysterectomy.
I had to insist on a scan and you should do the same. Even if it is down to fibro. It's good to get peace of mind.
Yes. I get lots of weird sensations. Got told same. In both US and UK.
I have had a head MRI (not for this but due to having severe problems with memory). All clear.
So I tend to believe it is fibromyalgia-related.
I wonder if there is something going awry in our neurologic systems which has to do with whatever is the same (mal)function that makes us experienced such widespread pain and makes us so hyper-sensitive to things which didn’t hurt in the past (like a hair grip, stubbing my toe, sensory input, laying on my own ear and having pain in the ear canal, etc.).
I pray for greater understanding of fibromyalgia as I think it’s barely understood, even by those who are very skilled and are studying in universities and laboratories.
Also, because it’s not understood what the function of these very odd and numerous symptoms are, treatment has not yet been developed.
I also pray for peace and the ability to cope—for each of us.
Gosh no that's probably one area that I hav'nt had pins and needles in, sounds awful. Hope it goes soon, wonder if any other fibro has this , bad enough having scatter headaches , gosh the sensation of pins and needles in your head must be horrible. Big hugs
I get that too, along with numbness in hands. Itching on hands and feet. Having had Fibro for a long time I attribute almost everything to it or to reaction to meds. and peripheral nueropathy. I don't know really. I hurt, I'm tired...have Epstein Barr virus and I think Cymbalta has caused high blood sugar. I feel I have no life...I just look at others' lives ...but have a great family. Just were presented with 4th grt. grandson. Have had depression for a long time. It's a battle. I don't think the Drs. really know whats going on either. I think I was supposed to answer another post about duloxitine but I'm not sure who. M.A. in USA
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