New symptoms

[Lodgemanager]

Hi All

I was diagnosed with fibromyalgia a year ago but have suddenly developed new symptoms. Does anyone else have skin tingling like pins an needles. Also sometimes I feel like I’m walking on air. All a bit scary!

[Marie2505]

I have had fibromyalgia for over 15 years and was diagnosed by a rheumatologist. Pins and needles, tingling or numbness are very common symptoms with fibromyalgia

[Lodgemanager in reply to Marie2505]

Thanks for your reply. I’m getting lots of new symptoms which I haven’t had before. How do we know it’s down to fibromyalgia? Does anyone get pain around their ribs like a tight belt?

[M0AL61 Moderator Volunteer]

Yes, these are common symptoms with fibromyalgia x

[Lodgemanager in reply to M0AL61]

Thank you

[Marz in reply to Lodgemanager]

Have you been able to eliminate other conditions that could be linked to Fibro ? Low B12 - under 500 - can be the cause of pins and needles and tingling along with many other symptoms ... Have you been tested ? Docs often declare you fine/normal/ok when bumping along the bottom of the range. One of the many reasons why it is important to have copies of all test results with ranges. Pop them into a Wellness File so you can monitor your progress and check what has been missed. 😊

Surgeries should have on-line access to records so worth checking ...

Also test Folate - Ferritin and VitD.

[Lodgemanager in reply to Marz]

Thank you. I take a multi vitamin so not sure if I have a B12 deficiency. I have low level of white blood cells. Is this normal with fibromyalgia?

[Marz in reply to Lodgemanager]

Am wondering if you were tested for vits and minerals before supplementing ? If you were low in anything then a multi-vitamin rarely contains enough to help. Not possible to increase the dose as you may overdose on one of the ingredients. So better to test and supplement what you actually need. Multi's often contain fillers as well as cheaper ingredients ... just a thought 😊

Not sure about low white cells - what does your Doc say ?

[MARION7]

Pins and needles is new to me as well, every night for the last two weeks, as soon as I get in bed, it starts in my lower legs then spreads up my body, the feeling jolts me alert. Its horrible. Hope you feel relief soon.

[Vixen04 in reply to MARION7]

Have you considered you may have restless leg syndrome which is common with fibro? A bath with good quality Epson salts before bed is great or a magnesium cream rubbed into the soles of the feet. Magnesium isn't absorbed well orally, the best way is through the skin so cream, bath or foot soak is best. Just in case!

[Lodgemanager in reply to Vixen04]

Thanks for the tips. I take magnesium but will try the cream.

[Vixen04 in reply to Lodgemanager]

Fingers crossed x

[Lodgemanager in reply to MARION7]

Thank you. You too

[jimmyshoes]

oh yes ,or I stand up and cant as legs or feet are numb with tingling. as if Ive crossed my legs for for too long. plus much stinger pins n needels and stabbing paid in elbows and hands in palm of hand.its great …...

[Lodgemanager in reply to jimmyshoes]

I am going back to gp as lots of new symptoms I haven’t experienced before. Could I have been mis diagnosed. A lot of the symptoms relate to MS. How would you know if you had MS

[jimmyshoes in reply to Lodgemanager]

It is worrying when you research symptoms but you are right to go back to your gp. Request a referral and explain why. I've also found out have arthritis which I never k ewit was only consultant mentioned it.ifindit frustration g that e everything put down to fibro when in fact have some deterioration as well. It has answered why pain has been more severe recently

[Monroecindy]

Skin tingling....not walking on air yet....my best to u my friend....fibro is always exciting🤣

[harmony2]

Yes. Definitely.

See nhs.uk/conditions/fibromyal...

Under “Other Symptoms” -

“tingling, numbness, prickling or burning sensations in your hands and feet (pins and needles, also known as paraesthesia)”.

As Marz said Vita B can be tested and low levels treated.

Strength for your journey.

Harmony2

[Jetblack1]

Yes I recently found this out too.. I get it mainly on my face, sometimes It feels like something is crawling on me!!! Yet another symptom I'm afraid.

I also had a pain in my hand that felt like an electric shock, stkll wondering if that is fibro related 🤔

[harmony2 in reply to Jetblack1]

I get that crawling feeling around my jaw and mouth on either side. Kind of comes in batches and then goes away for a bit.

On my legs I get out what feels like a dozen ant bites. The first time I smacked my leg thinking ants had gotten on me!

I also get burning on the bottom of my feet another pain sensations in my lower legs, particularly if I let my feet droop off a couch or when laying on my back in bed I need to prop up my feet in a flexed position with a pillow.

I just can’t bear the thought of another medicine that’s going to make me groggy like the neurological medicines do.