Fibromyalgia Action UK
39,664 members51,790 posts

Symptoms of Fibro?

Hi everyone,

I’m writing because, basically what I thought was normal. Obviously isn’t. For years I have woken up from terrible nights sleep. I waken all night. In the morning when I get up I feel like someone has beat the life from me. My body is aching. Especially my neck, shoulders and back of head. Even my chest is sore. I’m sore to touch. Slightest touch is so painful. Even my lower back and thighs.

Even my scalp is sore to touch

Some mornings I feel like I’m coming down with a flu. My head is throbbing. I have a normal routine for bed. I’m falling asleep at work.

If I don’t use a hot water bottle at night, my calves and feet throb with pain.

I don’t get swelling, just aching all over.

I’m cold all the time, I find the cold weather destroys me.

I’m so exhausted I don’t want to do anything anymore.

At work I use a hot water bottle and a heater at my feet so I’m not in severe pain at work.

Does this sound like Fibromyalgia?

Doctors haven’t been helpful.

10 Replies
oldestnewest

Hi Hun, I’m so sorry you’re going through such a rough time atm. Fibro symptoms can differ from person to person. However, the majority of symptoms that you’ve mentioned are fairly similar to mine. It’s incredibly frustrating isn’t it. The exhaustion, lack of sleep, changes in temperature etc are so hard to cope with. You need to rest whenever you can and don’t overdo things. However, it’s not easy if you’re still working. I’m sure there’ll be people on this site that can give you advice and tips on how to cope etc. Unfortunately, my contract was terminated on the grounds of ill health. My initial diagnosis is a benign spinal tumour and I have fibro as a result of that.

I wish you all the best, take care, stay warm and gentle hugs to you. Feel free to talk anytime you want to Hun xx

1 like
Reply

I was diagnosed with Endometriosis in September so maybe it comes hand and hand with that? Thank you for your kind words. I’m recently married and I’m only 25. When you have a condition it affects regardless of age. It’s frustrating and I feel like I’m being tore apart. :( x

1 like
Reply

I feel the same. life has come to a stand still. can't enjoy what I used to anymore.

Reply

Oh bless you Hun, that must be so incredibly tough for you. You need supportive people around you if it’s fibro. I’m pleased you’ve got your husband with you.

I had endometriosis about 10 years ago. I’m not sure if it’s a trigger for fibro though unfortunately.

What is your gp doing for you? Will he refer you to a rheumatologist at the very least?

Please take care of yourself lovely and you can talk to me anytime xx

Reply

I had a blood test done recently. All was clear. I have been going to doctors about this for years. Same for the endometriosis that they told me i didn’t have. Which now I do. X

Reply

No antibiotics prescribed. What is it used for?

Reply

Hi Missmonroe21, I see you have been a member for quite a while now so it’s great to see you here posting. I am sorry to hear you are suffering so much and I can relate to a lot of your symptoms. However one of the issues with fibro is that it does share symptoms with various other conditions and as a result it can take numerous doctor/hospital appointments, tests and many months (in my case, years) until everything else has been ruled out. It is typically a Rheumatologist who will diagnose fibro, so I would ask your GP for a referral. I know you have said your doctor has not been helpful but if your symptoms can not be attributed to your Endometriosis and all other avenues have been explored, then your GP shouldn’t refuse unless he has a genuine clinical reason not to.

In the meantime I hope you keep posting as you will receive lots of support and advice from our friendly members. You may have already checked out our main site but I have put the link below just in case you haven’t as there is plenty of useful information and links on there.

fmauk.org/

Also I notice you haven’t locked your post. You don't have to do this but you are likely to receive more replies if you do as many of our members are not keen on responding to unlocked ones, as they can be accessed by people outside the community. Instructions on how to do this can be found on the link below but if you get stuck, please don’t hesitate to ask for help.

healthunlocked.com/fibromya...

Take care lovely and good luck. x

Reply

Hi missmonroe21,

I have so much pain in bed at night too. I wake up feeling as you say as though I have been beaten up. Im not sure why this is but Ive read its something to do with the nerve endings and also being in bed so long overnight makes you stiff.

I know this isnt much help to you but at least you know it does seem to be an unpleasant feature of fibro and you;re not on your own.

Best wishesxx

Reply

Aww bless you youre so young. Im 63 now and have had fibro 20yrs but my daughter has it and shes only 28. Breaks my heart to see such young people struggling with it. We both went gluten free 18mths ago and it does help a lot but you have to be vigilant. Anythings worth a try tho.xx

Reply

Sounds normal fibro to me. Could be thyroid though. Guessing most folks think you are nuts when you tell em that.

Reply