I’m writing because, basically what I thought was normal. Obviously isn’t. For years I have woken up from terrible nights sleep. I waken all night. In the morning when I get up I feel like someone has beat the life from me. My body is aching. Especially my neck, shoulders and back of head. Even my chest is sore. I’m sore to touch. Slightest touch is so painful. Even my lower back and thighs.
Even my scalp is sore to touch
Some mornings I feel like I’m coming down with a flu. My head is throbbing. I have a normal routine for bed. I’m falling asleep at work.
If I don’t use a hot water bottle at night, my calves and feet throb with pain.
I don’t get swelling, just aching all over.
I’m cold all the time, I find the cold weather destroys me.
I’m so exhausted I don’t want to do anything anymore.
At work I use a hot water bottle and a heater at my feet so I’m not in severe pain at work.
Does this sound like Fibromyalgia?
Doctors haven’t been helpful.
Hi Hun, I’m so sorry you’re going through such a rough time atm. Fibro symptoms can differ from person to person. However, the majority of symptoms that you’ve mentioned are fairly similar to mine. It’s incredibly frustrating isn’t it. The exhaustion, lack of sleep, changes in temperature etc are so hard to cope with. You need to rest whenever you can and don’t overdo things. However, it’s not easy if you’re still working. I’m sure there’ll be people on this site that can give you advice and tips on how to cope etc. Unfortunately, my contract was terminated on the grounds of ill health. My initial diagnosis is a benign spinal tumour and I have fibro as a result of that.
I wish you all the best, take care, stay warm and gentle hugs to you. Feel free to talk anytime you want to Hun xx
I was diagnosed with Endometriosis in September so maybe it comes hand and hand with that? Thank you for your kind words. I’m recently married and I’m only 25. When you have a condition it affects regardless of age. It’s frustrating and I feel like I’m being tore apart. x
I feel the same. life has come to a stand still. can't enjoy what I used to anymore.
Oh bless you Hun, that must be so incredibly tough for you. You need supportive people around you if it’s fibro. I’m pleased you’ve got your husband with you.
I had endometriosis about 10 years ago. I’m not sure if it’s a trigger for fibro though unfortunately.
What is your gp doing for you? Will he refer you to a rheumatologist at the very least?
Please take care of yourself lovely and you can talk to me anytime xx