I'm confused

[freya19]

Hi all. I went to the doctors on Friday, re: Medication review. Everything went ok until I mentioned to her that I've been having different pains about my body. To cut a long story short, I'm being tested for Sjogrens Syndrome. Has anyone else got this & is it related to fibromyalgia? This is all I need!

[honeybug]

My first attempt to reply disappeared sorry.

Hi freya19

😊🌸🌿🦋

I’m sorry you’re ill.

I’m across the pond and here we have a world renowned clinic known for excellence in diagnostics and care. Sorry don’t know how to make a link but you can go to

mayoclinic.org

and research anything from A-Z.

I have Sjogrens Syndrome which was diagnosed when I had nasal surgery.

Symptoms include dry eyes nose sinuses lungs. GI tract skin

I take Evoxac capsules twice daily Bactroban ointment three times daily for my nose Expectorant syrup for my lungs and moisturizer for my skin frequenty eye moisturizer drops

I’m sorry you are suffering so and hope you get it sorted soon.

Best wishes.

EJ. 😊🌸🌿🦋🙏🤗💗😘😇🕊

[freya19 in reply to honeybug]

Thank you EJ. I'll certainly have a look at your link.

[honeybug in reply to freya19]

You’re welcome dear. xx

[Mandypandy1969]

i have been tested but tests inconclusive after a lip biopsy. i have different aches and pains in my body. xx

[freya19 in reply to Mandypandy1969]

Omg! That sounds painful. Hope all comes back with good news for you. x

[Mandypandy1969 in reply to freya19]

you never know how you are going to wake up each day. first thing in the mornings i am as stiff as a board everywhere. x

[Al10 in reply to freya19]

Lip biopsy op, a doddle. If you can be brave about the two anaesthetic injections? ouch! But after? Omg, the pain!!!. Shocking. First day fine, second, not too bad, then after and for day after day after week after week. Very bad. Was good to read up forums to see I was not the only one struggling for so long. And of course after a few days it was setting off my fibro too. Still waiting on results. Don't know if knowing one way or another will be worth the pain!!! My surgeon did kindly say before, was I sure? I could run away quick, no judgement. Maybe I should have?

[freya19 in reply to Al10]

Thank you for your reply. Yes, sometimes you think your all alone with this horrible, debilitating condition. I just hope we all get the good news of one less condition to deal with. x

[desquinn Partner Volunteer FMAUK Trustee]

Sjogrens is a condition that many with fibro have with or instead of fibro. It relates to the fluid from within the body not being as plentiful as normal and can affect all areas of the body where this is needed. Nose, eyes and mouth are common areas where people will have issues but it goes beyond this.

[freya19 in reply to desquinn]

Thank you for your reply. Just have to wait for results to come back.

[Mandypandy1969 in reply to desquinn]

ny nose is always like i have a cold first thing in the morning. had a dry mouth for donkeys years. don't know if it's had anything to do with all the medication over the years. doesn't matter how much i drink, nose and throat always dry. eyes always feel heavy and i think people think i am on drugs. x

[desquinn Partner Volunteer FMAUK Trustee in reply to Mandypandy1969]

there are eye drops and pastilles and other things that can treat the symptoms. But you can have similar symptoms without having Sjogrens but treating the symptoms is the same.

[Optimystic]

I haven't been diagnosed with Sjogren's as my GP doesn't seem that bothered, but they did recommend eye drops for my dry eyes, Sterimar nasal spray for my dry nose and sugar free pastilles for my dry mouth! This has been going on for some years as have my fibro symtoms. I'm not sure if there's any benefit in actually having a Sjogren's diagnosis?

[caninecrazy]

i also wake everyday with painful dry eyes, i buy lacralube eye gel as drops are too watery for any effect for me. i have FM & lupus so sjogrens can be a possibility for me as they are all autoimmune conditions. which can run hand in hand for some people x

[freya19 in reply to caninecrazy]

Thank you for your reply. I shall look into getting eye drops.

[AnnieOakley62 in reply to caninecrazy]

I understand, as I also have sjögrens, lupus and fibro as well as osteoarthritis. People on here have similar health issues to my own, so it is very comforting to chat with people on here and know I am not alone.

I had the lip biopsy done as to

diagnose sjögrens also.

Thank you everyone for being so kind and wish a wonderful new year to everyone of you!

[ruthmel1]

I have dreadfully dry eyes. I use a lubricting eye drop, one of those sprays you spray on the lids and a heated eye pack. My Optician thinks mine is associated with my Morphine as is in part the dry mouth which I've had ever since starting SSRI's 18 years ago. I just drink like a fish!!