Fibromyalgia Action UK
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Is your fibro worse after sleeping?

Everyone says sleep is so important for fibro sufferers but I am in so much more pain after I sleep. I wake up more tired than before I went to sleep, am very stiff and so weak I can barely walk, and really foggy also. It's my worst time of day whether I am sleeping in the daytime or at night.

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As soon as I wake up I have to wait at least 1 hour before I get up

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That is probably a good idea but usually I have to go to the bathroom as soon as I wake up. I am going to try that, though, and maybe do some gentle stretching before I actually get up. xxoo

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Mine is worse if bad nights sleep yes but better if I slept well. I always feel like I’ve been ‘run over by a bus’ on waking but just sometimes it is worse depending on how I slept. :)

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I tend to sleep long and in a deep sleep. I think it is worse after I sleep long periods.

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Strange you seem like opposite but as non refreshing sleep is known to be a symptom, you could be sleeping but missing this part hence feeling worse. Taking Mirtazapine helped me sleep better and now I feel not as bad in the morning :)

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I am just the same as you. I try to give myself time to come to and stretch a bit in bed . Although it’s an effort, I get myself into the shower, take some pain med and on good days I can then function up to a point.

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Morning yes trying to get going in the mornings can be hard, i tend not to arrange anything ie appointments early morning as try and get my head around the start of my day, that usually means making my mug of coffee just sipping away , then after ten minutes or so my 2nd cup , (I’m not a tea drinker) then a few gentle stretches and try ease into my day, are you able to have a warm bath ?? X

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I'm so bad after sleeping that I can't do one single thing for quite a while. I try to drink some water and then my coffee but I usually am in quite bad shape. Hard to explain.

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No I totally get it, I have sleep apnea and also cfs , I feel for you , my mind wants to do so much but if I’m having a flare day bed is where il be. Do you have any help ?? X

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Yes, my husband is always around though he may be in the yard or in the garage.

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Ahh sounds like mine pottering in the garage (we don’t have a shed) have you had the fibro very long ?? Pretty chilly today but here in Suffolk most of September has been pleasant. Are you in the UK then

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Sorry for the late reply. I am in the US. Have been sleeping. xxoo

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Hi again I thought you might be when you used the word yard Americans tend to use that word for garden, I’ve been to Florida twice now , I’ve chance to go next year with my daughter grandboys but since having these conditions I really don’t know , in my mind yes, but I know what can happen so quickly and you end up in bed, I found the people lovely and welcoming. We’ve heavy rain here in Suffolk today , our temperatures I think will soon get colder so I tend to hibernate more. How are you today ?? Xx

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Yes, we use the word yard.....our front yard or back yard. We use the word garden here if we have a sectioned off part of our yard for gardening vegetables or maybe even a flower garden. Our yards are generally grassy areas. Glad you've enjoyed your visits here to Florida. I probably would never go there because of the humidity but I think in the UK you are probably used to that. I've spent most of my life in California and then most recently here in Nevada when we moved 2 yrs ago to be near our grandchildren. xxoo

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1st time I went was sooo hot too much in August , then next time October so was more manageable, central heating on as feeling the chills today, not up to much as caught little grandsons germs bless, sore throat and achy never mind as it’s Sunday easy day xx

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Well take care of yourself and rest up today. xxoo

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It doesn't matter where my husband is pottering, he's no help to me! Don't know whether he it's that he doesn't understand or just doesn't care. His mornings are about leaping out of bed, greeting the day and doing whatever he wants. Mine are about hurting more than I did when I was exhausted the night before, not being able to bend anything, not quite making it to the bathroom, going downstairs slower than a slug, sipping lukewarm coffee to lubricate the meds, being quiet, trying to see through the dust in my eyeballs and wanting to cry or die, don't care which.

By the way, I'm from Lincolnshire originally and we always had yards, the garden was part of yard.

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I'm so sorry your hubby doesn't seem to be able to take care of your needs. Mine is no angel, for sure, and I often wonder if he hasn't contributed to a lot of my fibro....emotional stress and abuse in his silent treatment, etc. But he is better in our old age and does all the shopping and cooking now. I lived in a roller coaster marriage for many years.....this is horrible, I can't stand it....to well, it's not too bad right now.....up and down, up and down. I sure hope your situation gets better. xxoo

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Emotional stress is probably my cause. I can't blame my husband entirely, I've never been strong in that area, but he does seem to relish making me feel worse, bringing me down, then insisting that it's all my fault because he's so perfect. I nearly left him not long ago but decided being miserable but financially comfortable was better than being free and skint!!!! Not sure i got that right🤔.

Thanks for talking. X

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I totally believe that emotional stress or trauma can cause fibro...it depends on who you are and your genetic makeup as to how much you can stand. What one person can endure, another can't.

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I know what you mean because I am too. xx

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Chilly under the duvet heating on xx

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Feeling pain /stiffness on waking is fairly common. I find that the better I sleep the more pain /stiffness I have on waking..... Simply because I have not been moving so much during the night whereas a night where I'm tossing and turning and changing position... I'm constantly moving.

I set my alarm for an hour before I need to get up (and for 9.00am on days I don't need to be up at specific time)... I take my meds and also do some small stretches while lying in bed. This helps get my body moving but can take up to an hour after I'm up before I'm moving and morning stiffness eases off xxx

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it doesn't matter how much sleep I get if in the day or at night. I find I am at my best in the evening then I struggle to get to sleep when I go to bed. I get between 4 and 5 hours sleep a night. try not to sleep in the day but do have to when my eyes get so heavy. xx

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I seem to be better in the evening also. Have always wondered why.

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it's a nightmare. xx

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Hi I find that to so some of the things that may help which do for me is not stressing over things I can't change there and then and I found having my vit d checked helped to but as for the foggy brain I constantly remind myself of what important for the day and make notes and reminders of other things we live a chramed life but we must keep fighting on their are other much worst off chin up

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Same here it's all part of fibo.and foggy head .when you don't sleep foggy head a lot more

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I know exactly where you are coming from WorldOHurt. I have to hobble around for at least an hour before I am good for anything! 🙄 x

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Hi....Even after I overcome the disaster of getting out of bed I am still not good for anything.....lol....I hate this disease!

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I’m the same. I wake up in pain and can hardly move. More so when I’ve slept through as haven’t moved much. However once I start moving I feel better. If I’ve had broken sleep the pain and stiffness is still there but not quite as bad. I feel better mentally when I’ve had a good nights sleep. I tend to wake up with pain in arms, legs, hands and feet during the night and in the morning. However I’ve recently changed when I take my CBD oil to just before I go to bed. It helps me sleep better, but pain and stiffness worse in the morning. I go back to work tomorrow so got to get my act together. Xxxx

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Wow......I don't know how you can work...I sure couldn't. Good for you.

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I don’t think I have it as bad as some of you seem to have fibromyalgia. At the moment if I pace myself, sleep well and take my CBD oil I can function. Nothing like before though. I’m hoping work works out. Only working part time. Xxxx

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I feel the same way. Right now as I type I’m in extreme pain while lying in bed.

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That’s awful. I’m so sorry. Xxxx

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So sorry. You are not alone.

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I can totally relate to this. If l can sleep it’s never restorative sleep, l wake up stiff, sore, cranky and a not very pleasant fellow though l do try to be personable.

If l had any answers l would most definitely be sharing far and wide. So if there are any answers please, please, please share with us all :-(

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I used to feel the same, still Not the greatest time of the day, however what I have tried over the years have significantly improved my length of sleep and how I feel after I wake up. Finding a hyperbaric chamber, usually at an M.S. charity centre,(there are about 60 around the country) and going for an hour a day to breath oxygen at 2x normal atmospheric pressure for 80 sessions cured my brain fog and fatigue.now I go once a week for a top up, there is a study online about it in an israeli university where they treated people this way and it cured 75 % of them, it did not get rid of my pain, but it did clear my brain fog and fatigue and allow me to sleep better and wake up clearer headed. Also I found that cutting out inflammatory foods like sugar coffee and wheat, had a condiderable effect on my quality of sleep, so I would get3-4 hours before waking up and then go back to sleep for another 3-4 hours as opposed to waking up every hour.

Taking magnesium bis-glycinate at night and magnesium malate in the morning, also helps relax the muscles as you sleep, along with vitamin D3 and K2 an hour before you go to bed. I also take large doses of curcumin morning and evening as an anti-inflammatory, which helps sleep. For clear headedness vitamin B complex patches really work, I get mine from amazon and they are called vie patch.

I go to the gym every 2 days to a lot of stretching and do a bit of walking and cross training,which hurt for quite a long time and had to be very gradual but now my range of movement is greatly improved and I don’t stiffen up so much when I’m sleeping.

There is more you can do, however that is probably enough to be going on with.

Hope this helps.

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Thanks for telling some of the things that help you. xx00

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My husband and I have come to a lovely seaside town to relax for a few days. We’re living in a beautiful house in the middle of a golf course. We’ve done very little as I am so fatigued. Thought this relaxing break would do me good but I am in so much pain and can hardly function. Been in Pjs a lot of the time, watched telly and forced myself to take short walks. However, first two nights I slept well and felt awful on waking. Had a horrible night last night and have woken stiff, sore and exhausted! I hate fibro!

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That horrible that you can't enjoy a little getaway! I would never even plan such an outing as I am so bad. I hope you are able to find some enjoyment and that your fibro doesn't ruin the who trip.xxoo

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I used to get up once or twice during the night to go to the loo, go downstairs, take painkillers and potter for 1 - 2 hours. I've sinced trained myself to get up and go to the loo (anyone else get a painful bladder at night?) Then get straight back to bed. I can sleep for up to 12 hours but still never wake refreshed and could easily go back to bed! Having a long sleep does benefit me in the long run as i'm slightly more alert.I notice a lot of you state you don't move much - This is ME! I can go to sleep on my side with a pillow between my knees and wake up in exactly the same position 3 hours later! I think this is why we feel stiff and bruised in the mornings - perhaps muscle breakdown or lactic acid build up? If I'm getting up for work I set my alarm 1 hour before and take codeine and lie there slowly coming round and stretching before I get up. I can't stand getting undressed for a shower if i'm all warm, and have been known to skip this on occasions! It takes a good 3 hours before I start to loosen up a bit. I've now requested to work mainly afternoons to make getting up easier! I feel exactly like you all do 😣 This fibro has made a massive change to mine and my husbands life but you have to work with what you've got

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