What should your Vitamin D level be? - Fibromyalgia Acti...

Fibromyalgia Action UK

59,986 members67,154 posts

What should your Vitamin D level be?

tigerlily72 profile image
13 Replies

I have another post running as I've just been diagnosed as vitamin D deficient at 35 nMol/L - as you can see this is too low.

The figures for the UK are on the right hand column.

I hope this helps someone and perhaps encourages someone to push their GP or whoever to be tested.

I have an appointment next week with my GP to discuss. x

Written by
tigerlily72 profile image
tigerlily72
To view profiles and participate in discussions please or .
Read more about...
13 Replies
Rose54 profile image
Rose54

Hi

I do agree with you I think that all vitamin levels should be tested .

Unfortunately its down to your GP if they agree to do them or not and of course its all about their budget ,Many even wont prescribed vitamin tablets on prescription but advise a healthy diet is all you need.

Problem is that many on benefits do not have the income to purchase these tablets independently.

Their are several places that you can get vitamins tested privately but again its cost

tigerlily72 profile image
tigerlily72 in reply toRose54

I totally agree with you. Also, depending on how deficient you are, otc products aren't always enough or a sufficient strength to resolve an issue. I've got a pre payment card as I pay for my prescriptions. I'm hoping my GP will prescribe for me as she's fairly good normally.

Rachelle400 profile image
Rachelle400

Hi

I had terrible pains, not fibro, they felt different and quite severe. My gp suggested testing my vitamin d and my level was 13. I later saw the consultant at the pain clinic and he said it can take a year or two even with taking high dose supplements before the level in your body is high enough and stable! My pains improved drastically after 2 or 3 weeks of taking high dose vitamin d.

Always worth asking your gp.

Thanks

R x

Sid_Arthur profile image
Sid_Arthur in reply toRachelle400

Hi Rachelle,

There is such a thing as a "temporary palliative effect" known to be felt with this HORMONAL system (which sadly does not last & . . . . .) - for which the basic biochemistry has been established for well over a decade.

See the link in my post on this thread for a relatively straight-forward introduction to this:

healthunlocked.com/fibromya....

I hope that's of help - I REALLY DO ! Supplementing is NOT always the right thing to do given a low "calcidiol" test result - it depends on other things too, like HOW the level became and is remaining LOW.

Sid ;~)

20 May 2018

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

tigerlily72 profile image
tigerlily72

Blimey, that is low! I've since been reading elsewhere it takes months and months to recover. But it's good to know you started improving after only a few weeks 😀

I started taking 2 tablets a week today after rheumatologist wrote to my doctor saying my level was 20 whatever that means something else to go with vitamin b12 deficiency.

Rose54 profile image
Rose54 in reply to

Be careful i was taking B12 1000pg after being told mine was low and having a three month course of B12 tablets from GP ,

Latest blood results show abnormally high levels and high light to see GP or practice nurse.

GP told me all bloods in range it was only that i have access to my test and check myself i found this out

Hi I have been having b12 injections every 3 months for last 3 or 4 years.

KnackeredKaty profile image
KnackeredKaty

I live in UK. My GP told me 75 was normal but according to this chart 75 is still low!! I take 1000u daily anyway. I haven't done much research on vitamin D. I think I need to read some more. I read some research lately where people with psoriasis all have low vitamin D but scientists don't yet understand why that is.

tigerlily72 profile image
tigerlily72 in reply toKnackeredKaty

I'm in the UK too. From what I've been reading and finding out, doctors have no idea how to treat this properly and what they consider "normal" can be far from it. Another site and forum I'm on recommend an ideal level of around 250.

KnackeredKaty profile image
KnackeredKaty in reply totigerlily72

I'll have to look into that. Thank you.

Sid_Arthur profile image
Sid_Arthur in reply totigerlily72

Hi TL !

Please read my reply on your other thread for this, which goes a LONG way to explain the limitations of JUST measuring ONE metabolite, and trying to draw conclusions from this ( - for the WHOLE population !):

healthunlocked.com/fibromya....

The link to the Fearless Parent article in the above post is the MOST important introduction to the immensely COMPLEX (prohormone) "vitamin D" biochemistry I've found to date. Hope its of help to you too !

Notably, JUST supplementing on the basis of the standard (UK) "vitamin D" ( - or calcidiol test) is KNOWN to be the WRONG thing to do in an (identifiable !) portion of all the cases: DO therefore BEWARE ! ! !

Sid ;~)

20 May 2018

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Sid_Arthur profile image
Sid_Arthur in reply toKnackeredKaty

Hi K-K !

SOME scientists, researchers and clinicians too already KNOW what's almost CERTAINLY happening in a whole range of conditions like psoriasis - but MOST of our (UK-based !) medical profession continues to remain in the DARK over this, failing YEAR-after-YEAR to examine the REPORTED biochemistry. According to this it IS clear that measuring JUST one metabolite of the prohormone ( that has been misnamed !) "vitamin D" is NOT sufficient to allow a good enough interpretation of what is going on in the WHOLE of the population.

See my reply to Tigerlily's other thread on this: healthunlocked.com/fibromya....

Hope that's of help !

Sid ;~)

20 May 2018

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Not what you're looking for?

You may also like...

Get your Vitamin D level checked!

Hi all, I was diagnosed with Fibromyalgia last year. I recently went to see my GP as the pains in...

Vitamin D what a revelation

Hey all hope you're all okay. After 4 days of utter despondency I'm feeling better. I went to see a...
Jackjac1 profile image

Vitamin D

Hi, I have read a lot (on here and independently) about a connection between Vit D deficiency...

Vitamin D

Hi everybody i hope you've all had a good day or at least as good as it can be, I'm hoping someone...
rosie-2015 profile image

Vitamin D

When I saw my new rheumatologist who diagnosed my fibromyalgia he suggested it might be worth...
panda60 profile image

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.