My story : Hi; I have recently been... - Fibromyalgia Acti...

Fibromyalgia Action UK

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My story

8 Replies

Hi; I have recently been diagnosed with fibromyalgia and safe to say I feel completely lost and alone. Many people don't understand what it involves and how much this all changes your life, at 23 my world has been turned upside down, it's hard to say what is worse the pain or tiredness, feel Terrible all the time, would love to talk to someone in same position as I am in, xx

8 Replies
Ramjets profile image
Ramjets

Hi Robyn, I am sorry you have been diagnosed with fibro but you have come to the right place to receive lots of advice and support and hopefully you won't feel so lost and alone. Our friendly members are always willing to share their experiences, thoughts and even the odd joke here and will no doubt welcome you to the forum. However I would like to mention that you are likely to receive more replies if you lock your post. You don't have to but many of our members are not too keen on responding to unlocked ones as if unlocked, they can be accessed outside of the community and read by internet search engines. Instructions on how to lock your posts can be found on the link below but if you get stuck please don’t hesitate to ask for help.

healthunlocked.com/fibromya...

You may also wish to check out our main site at some point as it contains plenty of useful information and links including how to search for local fibro support groups in your area:

fmauk.org/

In the meantime I would like to welcome you to the forum and look forward to getting to know more about you. Take care. x

Dizzytwo profile image
Dizzytwo

Hi there, let me wish you a very warm welcome to our group :) Yes it can be very daunting when you first get a diagnosis. I am so glad you found us. We have a fantastic support team with our wonderful members. They are always happy to offer help, support and advice where and when they can:)

As our lovely Ramjets has already explained you may get more replies by locking this and further post's. If you need help with it please just ask any of the admin team. I hope you have a wonderful weekend xx

Momo

honeybug profile image
honeybug

Hi Robyngisbourne8 👋

Welcome to our community 💕 I’m sorry 😐 to hear about your diagnosis at 23.

I got mine at 34. It has to be more iintense for you because you are so young.

🌸🌸🌸🌹🌹🌹🌹🌸🌸🌸

Most people regardless of age when chronically afflicted will find out very quickly who their true friends are. They are the only ones who will be with you through everything knows you better than you know yourself 🌺🌸🌺🌸🌺🌸🌺🌸🌺🌸🌺

It may be hard to believe that you will in time find a new normal and find many coping skills. Coming to this site will be one of them because of the caring and sharing of experiences and aids to assist you in this journey because we are all in it together You will have many new friends here so please don’t feel alone.

🦋🌺🦋🌺🦋🌺🦋🌺🦋🌺🦋

I’m so sorry that you are suffering I hope you will feel better soon...sending you some love 💕 and hugs 🤗right now.

💕🤗💕🤗💕🤗💕🤗💕🤗💕

😊🌸 🤗💕xxxx

YASMINTINA profile image
YASMINTINAFMA UK Volunteer

Afternoon and welcome, I hope you get to chat to some of our younger members on the forum and you get to share the stories and advice from us here. It isn’t till you join a forum like this you learn so many thousands have fibro and I feel for you younger ones What help have you been given so far ???? The tiredness and pain are tough so I’m hoping you have some sun where you are and can sit for awhile . Are you able to work /college ???? Hope to see you posting again sending gentle hugs xxxx

Pilipala18 profile image
Pilipala18

Hi Robyngisbourne8

I was diagnosed with fibromyalgia last week. I agree it’s hard to know whether the pain or fatigue is the worse. Also because you can do something one day doesn’t mean you can do it the next.

Are you taking any medication? I’ve started 10mg Amitriptyline at night. It is making the pain better and I am sleeping more but don’t think it’s had time to work to it’s full effect yet.

I find tens machine, Epsom salt bath and microwave heat bags a lifesaver during the day.

Hope your pain especially eases.

Sending gentle hugs 😀

Thank you to all your lovely replies, it's so nice to speak to others whom are the same as I am, And thank you for all the advice and help xx

Jackiejack123 profile image
Jackiejack123

Hello there I’m so sorry that you r going through this especially at such a young age , it defo stops you in your tracks I can’t do things that I want to do and I’m 50 ,,, I truly feel for you , please feel free to ask anything that you feel and someone on here will defo get back to you , gentle hugs 🤗 x

khaleeseebrown1 profile image
khaleeseebrown1

Hi Robyn your not alone I was recently diagnosed and all the fellow sufferers on this site have helped with advice , moral support and a kindly shoulder to cry on . Loads of gentle hugs xxx carol from south wales

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