Heya dont know where to post this - Fibromyalgia Acti...

Fibromyalgia Action UK

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Heya dont know where to post this

25 Replies

Hey guys hope your all well so iv been beded since friday like i do anything anyways but i got the worst letter from my doctor for my pip and then my periods started and i think that was down to stress because i am on the depo so then my endometriosis was like hello and fibro is kicking my bum too with my hands ect going numb also i keep getting migrains the joys of having 4 chronic illness and 3 mental health issues i honestly just feel like giving up becasue i dont think i can deal with anymore and now i have someone from pip coming to mine to assess me on wednesday which i know i dont want to deal with atm with everything else

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25 Replies
Taz2 profile image
Taz2

Can i ask how u managed to get the pip people out 2 ur house rather than going to an assessment centre pls ?

in reply to Taz2

they are coming to my house and i never needed to ask them as they know im not good outside i dont think they question my anxiety its everything else dunno how im going to cope also my dad will be with me but he doesnt really know my illness just knows bits as usually my mum knows but she cant get off work but they both help me everyday x

Taz2 profile image
Taz2 in reply to

Thats ashame does ur mum not have a day off she can take or xplain 2 her boss the importance that u need her.im sure her boss will understand unless he or she has no heart atall.

in reply to Taz2

they automatically put out a house assessment for me but then again they do know i have ptsd and some other anxiety issues i never needed to ask for one tbh like all the other times

Taz2 profile image
Taz2 in reply to

I hope it all goes well for u xx

Amy65 profile image
Amy65

Did it doctor write something bad to pip or didn't support ur claim try not to worry about pip assessments tell them ur worst days etc and don't trust them they ate known for telling lies own personal experiences

in reply to Amy65

hmm this is the thing we think her work was sloppy as she been so busy and rushed this letter also me learning of a new mental health thing off myself noone told me about has made me in a mess but ill deal with that when i feel better im better off not giving the letter i know not to trust them but i was talking to advisor who said i have alot of backup but i know that doesnr count its so funny im trying to move house coz i need help and i sent all that to them and still they want to annoye mylife

Amy65 profile image
Amy65

If u don't think gp letter will help don't give it I also sent them 30 pages of proof is illness I have 3 consultants 1for each condition I'm reg visual impaired pip said in report I could read to very high standard looked well didn't need any personal care help etc my advice look rough be tired etc I got 9 points standard care

in reply to Amy65

well thats not hard as thats what i look like now lol my flat is a mess as my mum aint came down to clean it as i feel so bad as shes working all the time i cant cook or do most things people do at my age just annoyed more then anything also missing the football on wednesday is taken me in a bad mood i just got a new psycitiries who days i have traitis of something new and thats all i can get as even the docotrs who i see said im too anxious and sore to be outside or anytihng

Amy65 profile image
Amy65

Hope it goes ok for u

in reply to Amy65

Thank you for your kind words xxx

Amy65 profile image
Amy65

No probs we are all been there or going through it hugs

aud01 profile image
aud01

Hi Nikki

Sorry to hear all that you are going through . We all have been there and got the tshirt for it ...

Please don't give up ... stay here and chat away as often as you can .. everyone here would miss you if you left the forum ....

So please try get your chin up and keep in touch babe x

in reply to aud01

im going to take a day at a time think today is a blah

Taz2 profile image
Taz2

What team is that on ur profile pic

in reply to Taz2

Aberdeen fc

Taz2 profile image
Taz2 in reply to

Ha !! Am a Tim n lookin fward to tmoro nite 😉

Taz2 profile image
Taz2 in reply to Taz2

P.s ment 2 say that i got into bother recently for havin a strip top as my profile pic !!!!! Ano a pure joke !!!!

in reply to Taz2

no one has said anything to me about that aberdeen is part of me actually it makes me happy

Taz2 profile image
Taz2 in reply to

Yeah me too..a Tim thro n thro. Its always the same...different rules for different teams. I was reging at the time coz its total discrimination. Maybe the person that was on a power trip is a hun hahaha xx

rebelist45 profile image
rebelist45

In a way it is a good thing that everything is happening at once as you want them to see you at your worst. Answer questions as though it is you at your very worst not sometimes I can do things.

Hope it goes well x

Taz2 profile image
Taz2

Thanks for thos ajay its a very useful answer xx

thank you all for the words I just feel so stress about it all xx

i just love everything about the club and what they repesent we have a good community team there i just cant go to games coz of my anxiety and eveerytime i hear the drum i want to kill someone as it gives me a migrain

Just had my assessment guys well i dont want to go through that again but i know i will need to for my esa but anyeays the lady was nice also some of the questions are hmm

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