SEA, SUN & VITAMINS: Its been a very... - Fibromyalgia Acti...

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SEA, SUN & VITAMINS

nomad37 profile image
6 Replies

Its been a very long time since i have written about my then 14/15 year old daugher. we were having a rather difficult time, faced being homeless moved from one place to another trying to find health care that did not involve medication (or too much medication).

We considered Spain - did it work....YES YES and a bigger YES.

Firstly she is not cured, nor has all her symptoms disappeared but what has changed:

* she does not research suicide methods and has not considered suicide

* her moods are balanced and depression or low moods considerably reduced

* pain levels reduced and increased ability to walk

*fatigue levels reduced significantly - increased ability to get involved in schooling, social life etc.

* Fibro fog reduced ( we relooked at different ways of thinking and planning.. her ability to read has not changed; reading and remembering what she has read is still extremely poor). We have looked at text to speech programmes.

Massage/physio/holistic treatments - Much cheaper, much cheaper (though with pound getting expensive). Her hips become stiff and kind of lock - she does stretching exercises daily to deal with this

All in All - a planned programme of change, the sea air and the salt has made a huge difference. Of course I can no longer afford to be in Spain, schooling fees and drop of pound has wiped me out but I had to take her out of school for the last term and taught her at home.

Schooling - was a major problem;

* she was put in a group for children who spoke English as second language (it meant the school did not have to think about her 'fibro fog')

Actually I don't wont to fill you in with the problems but for any parents the following would be helpful

* quiet space to learn

* text to speech programmes

* sen who understands fM and its impact on work

* structure learning with additional support to grasp new concepts

* school that is honest and willing to train teachers

The school was a problem and I only realise very late that they had made up a lot of information, hence I took my daughter out of school and got her ready for her IGCSE

it has been 2 years, i am tired and what more can i say, poor but happier. I have had no shoes for months (flipflops) because I gave up the little job i had and the pound lost its value. we have come home now, because we cannot afford to stay, but Spain was not a long term destination for me. Ah I forgot

Vitamin B complex 100% - she takes these daily and we do notice a difference after a week of not taking these. Its a cheap brand we found in Aldi ( dissolvable).

We are back for her 6th form options but right now my daughter walks without aid, stays awake all day, moods lifted. I might be quite poor right now and looking for work again but my daughter is so much happier if I could send you a photo of before and after it would be surprising.

We have decided that if her ability starts to be affected I might send her back...but I don't know. Oh her grades of course I am her mother and I believe I am a good teacher and well i will post her results..

I am back and my daughter is a very different child..it was not easy in Spain, not at all for a child with a disability (in a British School), but I think that we have found a way of tackling FM and it was done to taking pain killers steriods, etc..i still think not much is known and drugs are a plaster for symptoms that we really don't understand. I think going to a hot climate should be part of a child's treatment, perhaps a 6 month programme or 1 year programme. Spain has saved the NHS a great deal of money.

I will let you know about 6th form and her GCSE results!!! I would like to send her to a small private school so that she is not affected by the 'hustle and speed' of larger schools. But right now unless I get a job it may be home schooling for A levels..either way its like having a very different child.

Again hi all and I hope you are all well!!! Crossed fingers for results! first one is due is 10th August!!! then 24th August!!!

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nomad37
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6 Replies
Janet28 profile image
Janet28

Hi nomad37 it's good to see you and I'm so pleased your daughter is getting on so well. I lived in Spain for a few years & it is so much better for your health, swimming in a warm sea, eating all the lovely fresh Mediterranean foods & just being warm all the time,,I must admit it done wonders for me and my arthritis. I still had flares where I was unable to walk at one stage but know where near as bad as I am now. Like you say, unless your well off, it's not easy and I had to come back to UK also but if I had the money, that's where I'd be for sure.

Oh I wish your daughter lots of luck with her exam results and good for her. It's so lovely to read such a happy post my friend.

Luv Jan xx

Creativeness1 profile image
Creativeness1

Hi nomad37 its is great to hear your daughter is like a different child.

Sounds like the homeschooling has done wonders for her.

The move to spain for short period sounded like a good decision you obviously spent a lot of time and effort fir her.

What a wonderful job you are doing caring for her in her education medical needs etc

I am so glad her symptoms have improved to GCSE' how brilliant.

I wish the family all the best for the future. I pray you will get all the future support you need.

Love and hugs

Kitten-kat23 profile image
Kitten-kat23

I am so pleased you have found a solution that's helping.

Rose54 profile image
Rose54

Good luck to her with exams

And hope you and your daughter keep up the good work

Trikki profile image
Trikki

What a wonderful uplifting story....thank you xx

TheAuthor profile image
TheAuthor

Hi my friend

I is truly wonderful to hear from and I am genuinely delighted that your daughter is doing well. I want to sincerely wish you both all the best of luck and please take care of yourselves my friend.

All my hopes and dreams for the both of you

Ken

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