I have fibromyalgia and find the pain and tiredness get me down the most

II was off my work for about 3 months. The pain in my neck and shoulders was terrible .i couldn't even squeeze my toothpaste as the pain and weaknes in my hands was terrible. I got acupuncture and lots of massages.

I'm back to work now, hopefully I'll manage to not be off with a severe attack again. As I'm worried 'll loose my job


11 Replies

  • Hello Angela and a warm welcome to our friendly fibro forum where you can find help, advice, support and understanding. Our mother site has a wealth of information about fibro, including guides and links.

    It sounds as though you have had a terrible flare of your symptoms which hopefully will now die down. It is difficult to work when you suffer so badly and I can understand your concern that it will come back and be marked against you at work.

    If you find you are being discriminated for taking sick time, do please talk to someone in your union.

    Looking forward to seeing you around the forum.


  • Hi bluebell99

    My work has been very supportive and got me all the help with physiotherapyo

    But Thank you for your kind thoughts

  • Hello and welcome

    Hi angela welcome to our lovely forum. Please share you wi find some lovely people here.

    Please look at the pinned posts on the homepage they will help with locking posts etc

    Please feel free to look at pur mother site for more information.

    Good luck on your journey my friend


  • Thank you for your lovely welcome 😊

  • Hi Benoua

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance.

    I want to sincerely wish you all the best of luck and please take care of yourself my friend.

    All my hopes and dreams for you


  • Thank you Ken, for your kind words. I had just finished my work and was feeling tired and sore. I read your message and it put a smile on my face and warmed my heart, that you knew what it's like living with fibromyalgia

    Bless you and I hope your well as you can be


  • Thank you and Good luck my friend.

  • Just remember it's a real accomplishment to keep working Angela. Also to try and pace yourself as much as possible and not take anything else on. Perhaps finding a way to deal with your worries would be good as for me stress is the number one trigger for a flare up. Maybe a weekly five minute meeting with your manager to discuss how things are or at least good communications with them. In my experience most employers are far more reasonable as long as they know what is going on.

    Best wishes

    Patrick x

  • Thank you Harleyhare2, stress is my biggest problem for triggering of my fibromyalgia, I also try and hide the fact I am so tired and in a lot of pain. I will try and speak with my bosses.

    I've cut down with what I do now and started to realise that I have to be kinder to my body as I have been in denial of my condition.

    Bless you for your kind words of wisdom, and I hope your feeling as well as you can


  • I really can empathise with you on this. Please take care of yourself x

  • Thank you Lizzy.m, it's comforting to know that you understand what I'm going through

    You too take care of yourself


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