Lidocaine Infusion, anyone had this?

I've struggled on with fibromyalgia now for 5-6 years. I take between 20-25 pills a day depending on my pain.

I have a terrible rash type, sore in my groin area, just where my underwear lines are in the groin area is. It's red raw! Hurts like hell, itches and skin is now peeling off.

GP gave me a cream But still ouch!

Has anyone tried Lidocaine Infusion?

I definitely have enough pain 24/7 can't walk because of the pain, can't stay in work because I need strong pain relief, and can't deal with work, telephone work or driving as my medication is strong.

I read about the above and wondered how it works plus how often, does it work??

Lottieonline

19 Replies

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  • I can't address any Lidocaine matters, which I know are your main questions, but on the rash issue: perhaps you have developed an allergy to the elastic in your undies!?! If you could just go without for awhile till the rash heals, then I'd try some with the no-show, no-line, non elastic legs, and see what those do for, or to, you ...

    You don't need this on top of all the FIBRO issues!

  • I am so genuinely sorry to read this and I sincerely hope that you can find the answers that you are looking for. I have never undergone Lidocaine infusion myself but I want to genuinely wish you all the best of luck with this.

    As for the itch, I was wondering f you perspire at all in this area? As many Fibro sufferers also appear to develop hyperhidrosis whereby they sweat excessively which can cause this kind if thing? (Sorry for asking such a personal question).

    I have pasted you the NHS Choices link to this below:

    nhs.uk/Conditions/Hyperhidr...

    I want to genuinely and sincerely wish you all the best of luck.

    All my hopes and dreams for you

    Ken x

  • Hi Lottie

    Has your GP seen your rash?

    Due to all of us being run down due to pain, have you thought that you may have Shingles?

    Just a thought. I know there are thousands of things a rash can be, but I do know how painful Shingles is. I've had it a couple of times.

    Let us know how you get on.

    Hugs Lu xx

  • Hi Lu,

    Thanks for your reply.

    I never thought of shingles, something my mum has had twice.

    I never thought it looked like mine which is large area red raw, I thought Shingles is more like chicken pox spots in a rash?

    I,know,itching and scratching makes it worse etc so pretty sure it's not shingles.

    I think without going into to much details, today I shall wear a long cool summer dress without any undies, to see if this can make any difference?

    Thanks for answering.

  • Hi Lottie

    Shingles doesn't look like Chicken Pox. Anyway, it was just a thought.

    Have you tried some unfragranced talc? Aloe Vera gel is marvellous too.

    Hope it clears up soon.

    Lu xx

  • Hi Lu,

    I did try unperfurmed baby talc, simple soap and clean swabs in between my knicker elastic and my rash....going to hobble into shower so I can it out properly this morning.

    Big thanks for caring Lu....

    Xx

  • I do care, a lot. Fibro has robbed me of so much. I want to be able to use my experiences to help others who are suffering.

    I hope you've managed to get some relief today xx

  • Oh lu that's lovely :-) bless you! You have such a kind heart x

  • I sound like a Miss World contestant wanting world peace 😂

    Seriously though, I did mean every word I said xx

  • Oh thank you for asking! I wore a very summery dress and no knickers!! Ooh Matron!! Feels so much better...thanks Hun xx

  • it ould possibly be a fugal infection which is very common in rundown people with chronic ill health or compromised immunity.It is similar to thrush and occurs in groin FOLDS or within and between folds of skin areas.. Sometimes known as jock itch called Jock itch. Which can affect athletes etc... Ts is easily treated wth an antifungal cream praps including a llow dose hydrocortisone soothing cream.it can take a few weeks to completely eradicate as it tends to flare up again but it is far easer to cope with the pain rawness and itching when treatment is ongoingIts .Just a suggestion of course , and as always best to consult your G.P. TO BE CERTAIN.Goodluck

  • i have had lidocaine injections. they do help. they seem to help the most for generalized fibro pain but not other pain (ie-bulging discs, cervical stenosis, etc.). i get my infusions from my naturopath. he understands my issues knowing i am a bit "fragile" so he is very slow and careful with the infusions. mine take two hours at a time. i should go at least 2 times a week but am lucky if get there once a week. they are not covered by insurance. at least not by mine. if have any further questions regarding the infusions feel free to ask. hope you can find some relief. i think anything that helps even if it's a tiny help makes a huge difference.

  • Thank you both xx

  • Intravenous Lidocaine Infusions are a treatment offered by my Hospital Pain Management Unit. They do them in the Day Case Unit and you are admitted to a bed for half a day. The infusion takes place in a side room off an operating theatre and it is done over an hour by an intravenous pump with a nurse taking heart and blood pressure readings at 5 minute intervals. This is because the Infusion could cause heart problems or blood pressure spikes and this is why they should be done in Hospital settings (where any complications can be coped with) whereas injections can be done in the community.

    I have had 3 infusions a year since 2008 and they reduce my pain levels by at least 50%. They don't work for everyone but it's worth you finding out more. Your GP can refer you to the Pain Clinic who will advise you on whether it is an appropriate treatment for your particular circumstances.

  • Thank you. I received a letter to attend a Pain Management Appointment soon. I am on so many pills, patches all at the highest doses, not much else to be offered that why I thought of Lidocaine Infusion.

    Does it hurt?

    I sound like a baby but I'm not. I've had many canula's fitted this year and last year for A&E visits and operations. They don't bother me at all. Just wondered if this procedure hurts when the stuff goes through?

    Best wishes

    Lucy

  • The worst part is the canula being inserted. After that, you usually feel nothing but they ask you to tell them if you feel dizzy or your lips tingle, in which case they slow it down a bit. Sometimes I get a headache afterwards but it clears by the next day. I just take two paracetamol. You are not allowed to drive for 24 hours after an infusion so you'll need someone to take you home just in case you have any after effects.

  • Thank you, is it every 3 months and would you agree it's worth it?

  • I have three infusions a year but it varies according to what your local NHS will pay for. They reduce my pain levels by at least 50% but they don't work for everyone.

  • Let's pray I'm allowed them in my area?

    Let's pray they work?

    Let's pray I tolerate them?

    Shall we all just pray, I'm not even that religious! 🙏🏼🙏🏼🙏🏼🙏🏼

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