Sick of Pain

Hi, I'm new to this site so I'm not sure how this works but I'll give it a go. I've been diagnosed with Psoriatic Arthritis and Fibromyalgia and have been on Methotrexate and another drug whose name eludes me. I am now on Humira and I'm still in a great deal of pain, granted I've only been on it since March but I thought I would be feeling better. Sometimes I think maybe they have misdiagnosed me. I am hoping that I may get some ideas from all of you on what to do since I am probably a novice at this. Thank you for any ideas. :-)

7 Replies

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  • Hello and welcome

  • I'm sure you will come to find the forum invaluable in chatting to others who are going through the same experience as you, talking to others at different stages of their lives with Fibro and learning from their experiences.

    fmauk.org

    It does help with the whole process and I wish I had found the site years ago. I

  • Hi Szuszi welcome to our wonderful forum ☺ I'm sure you will come to find the forum invaluable in chatting to others who are going through the same experience as you, talking to others at different stages of their lives with Fibro and learning from their experiences.

    It does help with the whole process and I wish I had found the site years ago. I have had Fibro for nearly 30 yrs and I'm still learning about it, like we all are. I have Polymyagia and Fibro & i get eczema on my hands which gets extremely sore & looks very much like Psoriasis, so i do understand what you are going through. There are other medications that can help but most of these kind of meds do tend to take a few weeks before they kick in. It can be a very frustrating time trying to get medication right & most people take a concoction of meds that help. I take Amitriptyline, Quinuine Sulphate, Pregablin, solpadol and Butrans Patches, which all help with the pain. Depending how long you have been taking them, but I would go back to your gp. Maybe you just need them increasing slightly, or you could possibly need steroids if you have a lot of inflammation.

    Please do go look at the mother site where you will find all the information you need and lots of useful links on Fibro and I look forward to chatting to you on the forum.

    fmauk.org

    Peace, luv n light

    Jan xx

  • Hello and a warm welcome to our friendly fibro forum where you can get information, understanding, help and support.

    Having a diagnosis of fibro can be a bit bewildering at first, it is good to have a name to the symptoms, and then there is the realisation that this is a chronic incurable condition.

    Fibro often accompanies many other conditions including autoimmune and it sometimes seems they are merge into each other so you are not sure which way is up!

    That is normal, if confusing. If you think you have been misdiagnosed, I suggest you go back to your GP and perhaps see a rheumatologist.

    Looking forward to seeing you around the forum.

    Kay

  • Welcome to the site. I've not been a member for long but have found some great advice on here. If you think your diagnosis I would consider following bombshells advice and go back to the Gp's and start with a discussion with them and also possibly as for a referral back to the Rheumatologist.

  • Hi Szuszi

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance.

    I am so genuinely sorry to read of your suffering and struggling my friend, and the Humira will only help treat your Psoriatic Arthritis and not your Fibro (in my personal opinion), as Fibro is not an inflammatory illness like arthritis. I have pasted below an excerpt from the WebMD cache on Humira:

    .

    *Humira subcutaneous

    Uses

    Adalimumab is used to reduce pain and swelling due to certain types of arthritis (such as rheumatoid, psoriatic, juvenile idiopathic, ankylosing spondylitis). This medication is also used to treat certain skin disorders (such as plaque-type psoriasis, hidradenitis suppurativa). It works by blocking a protein (tumor necrosis factor or TNF) found in the body's immune system that causes joint swelling and damage in arthritis as well as red scaly patches in psoriasis. Adalimumab belongs to a class of drugs known as TNF blockers. By reducing joint swelling, this medication helps to reduce further joint damage and preserve joint function.

    .

    Humira is not one of the drugs that I have come across before on the forum as a treatment for Fibro? It may be best to talk to your doctor about alternatives. I have listed a few below as suggestions that you could ask them about, and these are listed by *WebMD:

    Amitriptyline, Pregabalin and Gabapentin.

    .

    I want to sincerely wish you all the best of luck and please take care of yourself my friend.

    All my hopes and dreams for you

    Ken

  • Hi Szuszi

    I was dx with fibro in 2008 after almost 30 years of joint pain. Polymyalgia in 2011 and Psoriatic Arthritis in 2015 after a dx of Sero-Negative Rheumatoid arthritis in 2012..

    I am on Methotrexate, Gabapentin, Tramadol, Hydroxichlorquine and Humira.

    I too think that the dx of Psoriatic Arthritis is incorrect and that the previous dx is the correct one.

    It took around 6-8 weeks for the methotrexate to kick in. So you are in early days...

    I have had little or no relief from the Humira and have developed psoriasis due to being on it... ( was dx on the basis of having family with psoriasis not having it myself). I am now coming off of it and am going to try a different DMARD...

    All in all I would stick it out and give the medicationso a chance to get into your system

    I sincerely hope that you start to see some benefits soon.

    Xx

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