Fibromyalgia Action UK
40,284 members52,392 posts

Hi

I'm new to this site but just wanted to talk to other people with fibromyagia and c how they deal with it I aso have rheumatoid arthritis,osteoarthritis and spondylitis so I'm in constant pain every day I have replacements done on my knee and wrist but they still hurt

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H Babsy_52 and a warm welcome to our friendly fibro forum where you can find help, advice, understanding and support.

Have you seen our Mother Site fmauk.org ? Here you will find a wealth of useful information including links and guides.

I am sorry you are still in pain despite having replacement joints, I am guessing your RA is active at the moment?

I am not sure what medications you are on but perhaps you need a review of them. The usual ones for fibro are Pregabelin, it's sister Gabapentin, Tramadol and Amitriptyline. It may be worth trying these if you have never had them before.

Have you been referrred to a Pain Clinic? This might help you.

Another thing that is helpful is hydrotherapy or swimming in a warm pool. Anything to stop you from stiffening up too much.

Many of our members have other conditions along with fibro, in particular, autoimmune diseases.

I am sure you will find many friends here.

Please do lock your post for your internet security. An unlocked post is open to the whole internet as are the replies which will also be unlocked. Many members are reluctant to answer an unlocked post for this reason. Simple instructions can be found in Pinned Posts on the right as well as tips for getting the most out of the community.

Hope to see you around the forum.

Kay

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I've been on gabapentin and amatriptiline sinceit started and was on tremadol for years and it made me seriously ill and yes done it all pain clinic operations tablets always physio nothing helps me

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Hello Babsy_52

I just wanted to wish you a very warm welcome to the forum :)

I am sorry to hear that you are in constant pain. I can truly empathise with you.

I am assuming that you have tried various meds to see how you get on?

As bluebell99 has said, have you ever been referred to a Pain Clinic or a Pain Management Clinic?

The former tend to help with the medication side of Fibro and the latter is usually a course of 6 sessions with other people who suffer with chronic pain, to teach you how to manage pain.

I hope you enjoy being part of the forum. We all do our best to care for and support each other.

If you need any help at all navigating your way around the forum please give me a shout and I will be more than happy to assist you.

I have written various easy to follow guides on how to use the forum which can be found on the right of your screen under Pinned Posts in blue.

Once again a very warm welcome and I look forward to chatting to you again.

Lu x

Administrator

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Yes Ive done pain clinic pain management as I told bluebell and thanku

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Many apologies :) Your reply wasn't there when I was typing my message.

I am so sorry that nothing as worked for you.

Lu xx

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Hi there. I too have RA osteoarthritis and fybro and in some sort of pain every day, but different pain, I know which one is flaring up, what do you think is worse at the moment? If my fybro is flaring the only thing for me is lots of rest, hot baths and heat, but my arthritis is better after gentle exercise like walking, do you find this? Hope you can find something to help with the pain, take care

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I don't no all I no is it never gives me a break even tho I take 25 tablets a day in week and 35 on a sat when I have to take my methotrexate

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Hi Babsy_52 welcome to our wonderful forum ☺ I'm sure you will come to find the forum invaluable in chatting to others who are going through the same experience as you, talking to others at different stages of their lives with Fibro and learning from their experiences.

It does help with the whole process and I wish I had found the site years ago. I have had Fibro for nearly 30 yrs and I'm still learning about it, like we all are. I'm sorry your in so much pain, it wears you down dosn't it ?. I have Polymyagia also and like you am always in some kind of pain. Anyway just wanted to say Hi & look forward to chatting with you on the forum.

Peace, luv n light

Jan x

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Hi Jan thanku for saying hello I hope this site helps me I also got 4 degenerative discs in my back to as well as everything else like u being in pain yes it does wear u down I'm antidepressants cause of constant pain but I'm sure I will find out how others cope to

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How do I put a pic on here please

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If you mean a profile pic, go to your profile by tapping on the funny face that's your pic at the moment & when your on profile, it says edit picture written on the big space at the top & the one with funny face. Then it will ask you where to get your picture from, i.e. pictures, gallery, then add & scroll down and save it. You can only do this on a laptop or tablet because the phone app is still in the pipeline but should be around soon.

If you mean, how do you post a picture on the forum, you go to write a post and scroll down & it gives you an option to add a picture & will ask you, where or what file you want it from, then just add & post. Just to remind you the rules of the forum are, only 1 picture a day can be posted

if you still get stuck get back to me

Luv Jan x

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Hi Babsy_52

There is lots of insightful information on here, hope you come accross something that is helpful. I try everything, from Epsom salt baths to Magnesium oil, vitamins, counseling and I am looking into CBT and mindfulness to. Luckily I have a dog who has to be walked, so, I manage to do that twice a day, luckily the local park is across the road and has lots of benches scattered around and the dog is well behaved.

Wishing you nicer pain free days

Carol

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Thanku carol how long u been like it then

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I have had it since Easter 3 years ago so nearly 4 now. Woke up one morning and could not move lower half at all, really frightening, took me around 3 hours to fall out of bed literally. Then only burning and tenderpoints and little stiffness walking especially up and down stairs but could function fine and hold down a full time job, til November last year and then had really bad flare up, could move this time, barely, but has lasted ages. I feel I am getting better but seems to take ages. I think I am getting there then something happens causing anxiety and then steps backwards :(. Also my blood tests came back and show possible ANA indicating Lupus, so further tests being done.

Carol

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Do you do anything to help take your mind off the pain, I do a lot of crocheting which helps me very much, as said the pain is always there in the background but unfortunately we have to learn ways to live with this horrible condition, take care

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I've got bad arthritis in my hands so I can't sew or crochet or knit tried to but can't and I've had my wrist taken out so I can't bend my wrist anymore got metal plate in there washing up is even getting harder for me to all the things u take for granted my sons have to do alot for me every part ofy body is affected by something I got but I have to keep smiling

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Hello good to see you.

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Thanku u to

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