Hi I'm new to this web site. I didn't realise so many suffered from this condition until I started reading the posts. I have suffered from fibro for 12 years now and have at times found it a very misunderstood condition. I was diagnosed with a brain tumour 3 years ago and although it is benign because it is on my pituatary gland there is always a fear that if it starts growing I could lose my sight. I suffer from anxiety and disc problems and have to have facet joint injections every six months in my sacroiliac thoracic and lumber spine. I have just had eight injections and am hoping that it will ease some of the pain I'm in. I find social occasions difficult unless it is with family I get stressed in a social situation. I have a lovely family and I'm lucky but sometimes I mourn the person I used to be. Is there anyone else who feels like this or is it just me feeling sorry for myself. I tend to get more like this after injections perhaps because it can be so stressful. I would love to hear from someone.

11 Replies

  • Hello chrisann

    Welcome to our lovely forum.

    I can only speak for myself, but yes, I certainly do mourn the fact that I can no longer do the things I used to be able to.

    I have had Fibro for over 30 years. I worked for 34 years, had two children and ran my home.

    I pushed myself through daily agony (with the aid of prescribed pain killers) day in day out, year in year out.

    I have also battled chronic clinical depression for what seems like forever and suffer from severe anxiety.

    Unfortunately due to a trauma a couple of years ago my Fibro went ballistic and I ended up having to resign from my beloved job due to ill health.

    I wonder every single day, whether if I hadn't pushed myself over and over and over to try to carry on as usual, would I be in the position I am now in.

    I have no social life, my pain is unbearable and when my depression really rears its ugly head I am in big trouble.

    It must be incredibly hard for you to cope with the fact that you may lose your sight.

    It's nice to 'meet' you and I look forward to chatting with you again.


    Lu xx

  • Hello bluemermad1 thank you fr your kind welcome and your reply. I was a bit reluctant to post something and wasn't quite sure water. We get any replies. I didn't really think anyone would be interested in what I had to say. I suppose it's a confidence thing. But thank you again and look forward to speaking to you again.

    Lots of hugsxx

  • Hi again :)

    Of course people will be interested to hear what you have to say. Especially on this forum. Everyone is so kind caring and most of all we understand how you feel.

    It tends to be slightly more quiet at this time of night but I am sure you will have more replies later (when the night owls arrive) and in the morning, when the larks arrive!

    Yes, it does take a lot of confidence to write your first post, so well done for getting up the courage to do it.

    Please do join in our chats and conversations. Ginsing, one of our Admnistrators, holds a Coffee and Chat slot in the mornings, which usually turns hilarious with all our very witty members. I so wish I could be as quick witted as them.


    Lu xx

  • I myself would love to be who I was, but feel and know that will never be, but I am trying to invent and be positive about who and what I can be today and tomorrow. I am actually feeling more positive about not being an individual anymore since having the freedom on this site to express wbo I am today and not be afraid of showing when I am hurting,afraid,angry and depressed. I am slowly the more I hear actually thinking that maybe one day soon, I will own and accept what I have. Maybe I can actually write something not so glum in the future.

    All who have the sleeping prob, maybe we could arrange a 2.00amcheese and wine party and sync into what we see in the night sky and make it a positive.

    How silly i am talking, sorry about the drdribling. Feel free not to comment on my ramblings please.

  • Hi Cathy

    If I'm awake at 2 am I'll join you for cheese and raspberry lemonade (I don't drink alcohol) :)


    Lu xx

  • Thanks mermaid I'm hoping I won't be, but pink lemonade would be fine. And thanks for the other day

    Hugs back at everyone x

  • You're very welcome x

    I'm hoping I wont be either :)

    I thought after I wrote my reply that cheese and pink lemonade wouldn't make such a good match!!

    Hope you get some sleep.

    Hugs xx

  • I hope that you saved me some. :)

  • Saved u a glass of red xx

  • Hi and welcome :-)

    really miss the old me, I had so much energy, always being silly and dancing with the little one! But I like the calmer me as well iv learned how important family is, slowing down to watch the fun, sitting down and talking to my daughter.... Don't get me wrong I'd rather the old me with no pain or limits but going through something so hard makes the important people shine! The low moods and anxiety have made me focus on the present and not keep thinking about the past or future because let's face it we don't no how our health will be in 5 10 years.

    I hope you find this site helpful, I do! Everyday I come online and it's great to know we are not alone :-)


  • Welcome to the forum and it is wonderful to make your acquaintance. I genuinely hope that you find the forum useful, informative and loads of fun! I am so genuinely sorry to read that you have been struggling so much with so many health issues and I want to sincerely wish you all the best of luck.

    All my hopes and dreams for you


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