Too Much Pain

When I was two years old I fell of a trampoline. When I was 16 years old I was diagnosed with scoliosis. I was informed that I needed an operation. I never got the operation because my parents couldn't afford it. I have always struggled with my back. Years later as you know I have been diagnosed with M.E, fibromyalgia and a nerve condition that affects my whole body and I now have to use a wheelchair anywhere I go and my husband is my full time carer. Yesterday and today I have been in so much pain with my back. It hurts to breathe, stand, sit or move. Its my entire back from the top down to the bottom. It just hurts and I just wanted to post on here because you guys always give encouragement and support when I really need it. My family are superb and always give me support but I do wonder if any one else here suffers with their back? I pray for you all and send you gentle fibro hugs and love.

Kimberley

Xxxxx

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  • Yep all my life. I was born with broken hips and mom was told I would never walk. My mom was my rock for first twenty years of my life! On July 4 I sit down to watch fireworks and fractured my back. I have done a lot of things doctors have told me not to. Long story short I have 7 collapsed disc and8 more bulging. I am still walking with a great deal of pain but this time it just might put me in a chair. I think I am more scared of the chair than I am the pain of walking. So I am not in a great place emotionally. But I am determined to take things as they come and do what I need to do when I have to do it. I go for results of MRI today! Funny thing is I am not worried about it. I know my pain and I am doing what needs to be done. You see I am allergic to so much surgery is not a option for me. My chances of surviving that is around 3 percent so I will have to deal with the pain.

  • Gosh Regno - sounds like you are a force to be reckoned with - keep fighting and if the chair reduces your pain - just think about what you could do in the chair - nothing is impossible these days - have you seen the paralympics - with your spirit I bet you would reach the top xxx

    Kimberley - my back was one of the first signs of fibro - even though nobody knew at the time. Completely immobilisation was a regular occurrence. I went to special back classes and learned some techniques to help when I could feel it start - has really worked for me. I still get pain but I am more in control of my back these days.

    Look up 'happy cat, angry cat' and .... forget the word tsk tsk but it is pushing your bottom out whenever you bend - looks a bit like a waddle and you feel silly but it really takes the pressure off your back xx aaah - it is called 'hingeing'

    Look up this xx

    nhs.uk/video/pages/backstre...

    hope it helps xx

  • PS I have tried all of the stretches on the NHS link and they really do work. When you feel the pain starting to kick in try to get yourself on the floor/couch/bed for just a few minutes and it really does ease xx

  • Hello Kimberley

    I'm sorry to hear the extreme pain you're in. I can completely empathise.

    I appreciate that you know what conditions you have, but in this instance I do think that a trip to see your GP would be best.

    I appreciate that we could possibly spend our lives at our surgeries, but I do think that any new pain should be checked out, if not for anything else but for your peace of mind.

    Gentle hugs

    Lu xx

  • I am so genuinely sorry to read that you are in so much pain at the moment and I sincerely hope that you can find some resolution and relief to these issues. I would let the doctor know exactly how you are feeling as nobody should be left in pain.

    I want to genuinely and sincerely wish you all the best of luck.

    All my hopes and dreams for you

    Ken

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