Fibo x cprs

[cathy1110]

Does anyone else feel like cutting there legs off with pain i have fibo but i just read someone else is post where they feel the same but they have cprs i just look it up and its defo same pain i have debelating

[TheAuthor]

Hi cathy1110

The two conditions can easily be confused as the symptoms are very similar. It would appear the real difference between the two is how we develop them and how they affect us. I have pasted an excerpt below from *HealthCentral website:

*CRPS and FM have some real similarities and I wouldn't be surprised if they didn't end up being closely related to each other. CRPS, however, however tends to affect one's arm or one's foot in a very dramatic manner; there's often localized swelling and changes in skin color or texture accompanied by intense pain. The problem appears to lie in sympathetic nervous system dysfunction which also plays a role in fibromyalgia and chronic fatigue syndrome and other diseases like this. The difference is that CRPS tends to be more localized and obvious while the problems in fibromyalgia and CFS appear to be more generalized (ie body-wide) and less physically obvious.

My legs are one of my worst pain areas for my Fibro, and added with my Lymphedema I need to use a tri-walker when I go out. I want to sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

[cathy1110 in reply to TheAuthor]

Thankyou

[TheAuthor in reply to cathy1110]

Good luck my friend.

[My-chinaman]

Thought it was just my legs unfortunately fibromyalgia has a lot of symptoms even though I was told there's no such thing as fibromyalgia I am livid with people that says this and the answer to your post is yes I feel like this too every day .....

[cathy1110 in reply to My-chinaman]

Thankyou fibo is cronic illness ignore

[cathy1110 in reply to cathy1110]

Its so hard as to what we go though tell them people to look it up before they say things they dont know

[nannat76 in reply to My-chinaman]

my docs either dont believe in it or just totally igronant about fibro/cfs had it for 8yrs but only diagnosed in dec 2015 and yes i often say to my partner chop my legs of or if i was a animal they would put me down having a terrible attack today hope ur pain gets better swn

[Tomcat98]

Know exactly how you feel, have just had two very bad nights, nothing seems to help. Just got to keep going!

[Sheila-Squirrel]

I started with shoulder-hand syndrome crps after an injury in 2010. since then it has spread. it took about 10 months before I started getting symptoms in my other arm and not long after I got symptoms in my foot and lower leg. Now I have all over body pain which is different types, my arms and upper body being most affected. FIbromyalgia is considered to be the closest type of neuro pain but there are other extreme pains that reach the top of the Magill pain scale. I have dropped to the floor unable to move or speak and thrown up with pain. It's worst than when I gave birth to my son who's shoulder tore me on the way out. I had 12 stitches without anaesthetic and that pain was no where near what I have now on a regular basis. The other thing with CRPS is the physical restrictions, temperature control problems, internal organ problems and issues with increased hair and nail growth, amongst other things. I liken my condition to MS with 24hr pain because of the physical restrictions. My friend also has fibromyalgia symptoms from hypermobility. The treatment of nerve pain is similar. When I was doing my nurse training my tutor taught me a valuable phrase . ......"Pain is what the patient says it is, whether real or imagined". Great words to explain the subjectivity of pain.

[cathy1110 in reply to Sheila-Squirrel]

Fibo is real and registed illness cronic illness thats real people wouldnt get dla for it if wont illness

[Sheila-Squirrel in reply to cathy1110]

I totally agree with you. the quote was to teach us nurses to respect patients physical and psychological pain.

[Hidden]

Morgan Freeman contracted CRPS in his arm after a car crash. He has since gone on to develop Fibro.

If you watch him in an interview you will see him constantly rubbing that hand and he always wears a glove on it.

[Sheila-Squirrel in reply to Hidden]

I didn't know that. I wear gloves, well fingerless mittens that I managed to knit to cover my hands as any wind blowing on them causes pain.

[Hidden]

Its the palms of my hands. If the bottom corner of the toothpaste tube any thing else with a squared off edge is not nice. I have a set of cutlery with rounded handles for me.

[Sheila-Squirrel in reply to Hidden]

I use plastic cutlery as metal leaves a strange taste in my mouth and has the effect like licling a battery. I have some tubing for cutlery which I got from an occupational therapist. I have no use for it now and can send it to you if you would like it.

[nannat76 in reply to Hidden]

im like that with the bottom of my feet i can only wear certain shoes i say to the doc imagine you have a stone in your shoe irritatig isnt it but you can take it out and its gone WELL triple thoes stones by 10 and you can NEVER take thoes shoes of you have to walk and live with the feeling in you feet 24 hrs a day 365 days a year how would you feel want to put my shoes on xx so yes i understand your pain in your hands well wishes 4 u mayrose54 xxxxx

[Maria1958]

Hi Cathy yes I feel pain in my legs a lot and they also get weak and seem to go from under me not that I go right down but nearly very scary if I am out and when I don't get sleep even harder to cope with pain killers don't do much for it I get a bottle of Arnica oil with rosemary and lavender oil from Amazon and rub it in it's nice and relaxing take care Maria 😋

[cathy1110 in reply to Maria1958]

Tankyoux