Bone pain

[cathy1110]

It mentions nothink atall about bone pain for fibo i do have fibo been n terrible pain have relise it in my bones going to my doctor read alot. On fibo for 12years does not mention bone pain

[Hidden]

Hello Cathy welcome,,many fibro sufferers are get home pain too..where the muscles meet the bone tips of these muscles are weak and painful it puts pressure on on the joints and some bones..BUT you could also have osteoarthritis which is common with fibro..you are correct to go g.p and insist on a hospital appt to get both things confirmed,,you might ask for some physio help,I have hydrotherapy that helps both conditions..good luck getting help and diagnosis,ask your g.p to give you pain relief for muscle and bone pain until you get a consultants appt.. I hope your pain subsides soon..

[cathy1110 in reply to Hidden]

Thanks this pain can be tomuch to cope with feel like cutting my legs off didnt know fibo did that

[bluebell99 in reply to cathy1110]

Hi

Have you had your Vitamin D level checked recently? A low level can cause bone pain and the consensus is that most people in the UK are deficient because of the lack of sunshine, particularly during the winter months. It may be worth asking your GP for a blood test to check.

Kay

[cathy1110 in reply to bluebell99]

I had to go on vitamin b a whirle ago it was low but have been thinking about having another text done now thankyouxx

[cathy1110 in reply to cathy1110]

Ment vitamin d

[cathy1110 in reply to bluebell99]

Ment to say have been on vitamin d sometime go ae it was low they not check me since i going to ask for another test thankyoux

[Craftysue1956 in reply to Hidden]

Hi Cathy. Just a question bout what we describe bout bone pain, do u get in in ur wrist aswell? Take care. Sue

[cathy1110 in reply to Craftysue1956]

It goes in my arms and hands but my legs that bad can cut them off

[Craftysue1956 in reply to cathy1110]

Ya no what u mean. Hope it really does ease for u very very soon Cathy. Take care. X

[Hidden in reply to Craftysue1956]

Crafty Sue Crafty Sue , pretty pretty pretty crafty Sue you know I love you girl and I want you Crafty Sue BUDDY HOLLY 😂😂😂😂

[Craftysue1956 in reply to Hidden]

That put a smile on my face. Cheered me up a bit . Really down at mo. Ad ambulance out to me this morning cuz off my breathing , then ad to go to Asda Drs, now waiting for my dr ring me bk. so ur mess above deff cheered me. Thank you.

[Hidden in reply to Craftysue1956]

Glad it did I'm here if you need help. we all are . Keep in touch

[cathy1110 in reply to Hidden]

Thankyoux

[Hidden]

Fibro does get into your bones I believe I know it in my finger and toe bones and numbness too Hope your doctor has got some answers for you x

[cathy1110 in reply to Hidden]

Thankyoux

[Craftysue1956]

Hi Cathy. I know exactly what you mean by bone pain. I've just getting over another episode of like u what I call bone pain. N yes it's very painful. I just put loads of deep heat on n hot water bottle. Help a little bit, Do hope u get sorted out soon though. Let's u no what they say. Take care. Sue

[cathy1110 in reply to Craftysue1956]

Thankyoux

[cathy1110 in reply to Craftysue1956]

Hi i been reading on my fibo for years evan join fibo group on face book that told you everythink you need to no about fibo and not once ever was said you have it in your bones only that you have it in mussels and joints

[TheAuthor]

Hi cathy1110

I am so genuinely sorry to read that you are experiencing this issue, and many Fibro sufferers do have secondary conditions that accompany their Fibro such as arthritis. If this is a new symptom or becomes persistent it may be best to get it checked out just to have other medical conditions ruled out of the equation.

I want to sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

[cathy1110 in reply to TheAuthor]

Thankyoux

[TheAuthor in reply to cathy1110]

Good luck my friend x

[Craftysue1956]

Hi Ken. Have you heard or read anything that fibro affect our breathing. I've Bn in hos for other reasons, but I'm getting so breathless, I know when I av panic attacks ect my breathing is bad, n I hypoventalate a lot. But whilst waiting to come home they still kept telling me to control my breathing n slow it down. My daughter n I looked at each other, n both said I was much much beta n I thought my breathing was calm. Anyway when I got home I remembered my phyisophapis telling me that some people with fm, don't breath probably. But can't seem to find anything on it on sites. Just wondered if u or anybody else has, had that said to then, or if there's an article I could read up more bout it. Hope u all as pain free as we can b. Take care all. Thank you. Sue

[TheAuthor in reply to Craftysue1956]

Hi Craftysue1956 I am so sorry that you are having this issue and there is quite a bit of information about Fibro sufferers having breathing issues. I have pasted you an excerpt below from the *Fibromyalgia Symptoms website:

*Fibro Breathing Trouble

Fibromyalgia sufferers often report that they have trouble breathing or taking deep breathes. Combined with the many other fibromyalgia symptoms commonly experienced, like chronic headaches, having a hard time breathing is just one more thing you don’t want to deal with.

But why can it be difficult for fibromyalgia patients to breathe and why does it affect your other symptoms? Learning the answers and how to alleviate breathing problems can help you breath easy again.

How Does Fibromyalgia Affect Breathing?

Why You Have Difficulty Breathing

Studies have shown that shortness of breath, or feeling a strong need for more air, is common in fibromyalgia patients. A 2001 study in the Journal of Muscoskeletal Pain found that 50% of FMS patients reported feeling short of breath, a condition called dyspnea.

Yet, the study also found that the volume of inhaled air was the same for the 35 female FMS sufferers and the 20 healthy controls participating in the study. This was true while the study participants were both exercising and at rest.

The authors speculated that the feeling of being out of breath despite having a normal amount of oxygen could be related to chest wall pain. However, there is no evidence to back this hypothesis up.

Another theory as to why FMS patients report perceiving a lack of breath when they are not actually experiencing one was put forward in a 1989 report that appeared in the Journal of Internal Medicine.

The report suggested that brain stem abnormalities could account for dyspnea. Again, there was little evidence to support the theory, however, a 2000 report published in Arthritis and Rheumatism reported documented low blood flow in the brain stem region of patients with fibromyalgia.

Another idea behind dyspnea is that it could result from a lack of thyroid hormone regulation. This results in weakness of the respiratory muscles, including the diaphragm and the phrenic nerves, which regulate the contractions of the diaphragm.

The nerves might not be sending strong enough signals to the diaphragm, impairing its ability to contract normally.

[Craftysue1956]

Thank you .Kentucky very much for that. All my sat test all came bk ok. But on excretion even mild excretion, even talking I get so so breathless. Then get the pins n needles. But all this time my oxygen levels r fine. Would this b part of a flare up do u know? Or will I b like this all time now? Thank you so much for your help. Take care. Craftysue.

[TheAuthor in reply to Craftysue1956]

Craftysue1956 Hi again my friend, it is difficult to say whether is part of a flare or permanent? I think only time will answer that for you? I genuinely hope that is fades away for you and that your breathing goes back to normal for you. Please take care of yourself.

All my hopes and dreams for you

Ken

[Craftysue1956]

Thank you again Ken will let u no how I get on. Have go under other useful info on line now, thanks to ur help. Thanks again. Take care. Sue