Newly diagnosed 2016

Hi I have in the past 3 months been diagnosed with Rheumatoid Arthritis and Fibromyalgia, have been given very little information from Dr. have had symptoms for about 4 years and thought it was stress, losing my mum break up of marriage relocation after divorce and it goes on, any advice how to move forward will be very helpful. Had horrendous time last week not feeling too bad today.

Thank you

8 Replies

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  • Hi Jens0n14 and welcome to our wonderful forum ☺I'm sure you will come to find the forum invaluable in chatting to others who are going through the same experience as you & talking to others at different stages of their lives with Fibro & learning from their experiences.

    It does help with the whole process & i wish I had found the site years ago. I have had Fibro for nearly 30 yrs & I'm still learning about it, like we all are.

    I'm sorry you have had the double whammy diagnosis of fibromyalgia & RA and I'm sorry you are having a bad time of it at the moment, I would say a flare up is with you after having so much stress.

    Please do go look at the mother site where you will find all the information you need and lots of useful links on Fibro and I look forward to chatting to you on the forum.

    fmauk.org

    Peace, luv n light

    Jan x

  • Hi Jens0n14

    I see Jan has given you great advice.

    It is thought that trauma can be a major contributing factor in getting fibro and you have certainly had that.

    You will also find that there will be periods when you cope quite well with your symptoms and also flare ups which can last days or weeks when the pain is really bad, and sometimes coincides with stressful situations.

    RA and Lupus, Hypothyroidism and other autoimmune diseases often go hand in hand with fibro and sometimes it ca be difficult to decide which condition is causing you more pain.

    You may find it useful to Google the "Spoon Theory" which helps you to pace throughout your day.

    I advise you to lock your post, instructions in PInned Posts in blue on the right of the screen. You will get more replies on a locked post too.

    Kay

  • Thank you kay

  • Thank you for reply x

  • You know I think our g.p,s assume the consultant has told you everything you need to know but many don't have the time ! I started with Ankylosing Spondilitis over 40 years ago during my first pregnancy it was all altered posture that set it off, I know these things are dorment in our system and it takes a trauma to set things off -not that I would call having a baby a trauma but the amount of weight I gained and fluid retention wasn,t monitored so long ago. I,m thankful that 7 uears episode went into remission but it has left me with "pushed forward posture"

  • Welcome jenSon14!

    I endorse the comments of Jan &Kay.

    The fmauk.org site has lots of good stuff including how to contact a local support group.

    I like many others railed 'Why me?' when I had Fibro diagnosed. The info out there was scarce, its a bit better now, but I found a number to call for a local group. Meeting people face to face who have travelled the same 'journey' as you can be bewildering but at the same time relief. Talking, laughing even crying together makes for strong bonds that when things are not so great you know they will understand and offer you a tissue!

    I really pray you will feel supported in anyway you feel comfortable.

    Skit

  • Hi Jens0n14

    Welcome to the forum and it is wonderful to make your acquaintance. I am so genuinely sorry to read of everything that you have endured and are still going through. I sincerely hope that you can find some resolution and relief to all of this my friend.

    I can see that you have been given some wonderful replies and so I will simply and sincerely wish you all the best of luck, and please take care of yourself.

    All my hopes and dreams for you

    Ken

  • Hi and welcome Jens0n14 . mine started with losing my dear Mum too.You just can't believe how well and lively you were before.I hope doctors are now looking after you and got you on good medication to dampen down these horrible diseases.

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