I still new at this being I haven't been on in while trying to find out what can I do to hurry and get better so I can return to work and so far I haven't been successful with this illness. I was hoping for a speedy recovery from this and realized that it going to take some time with trying to go on natural. I feel like I haven't made any progress in getting off the pain medication because of the fibro.
I think I am going to have to leave my job all together, right now I am on short term disability and I gotten worse with the swelling it takes me so long to do anything and it's just so frustrating because sometimes I feel so helpless all I can do is just lay down. It takes so much energy out of me to just take a shower. I had my hopes in going back to work😞
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jellio114
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Hello Jellio- Caz sometimes known as Nurse Gladys Emanuel (open all hours) I too went thru this dilemma last years, I had been off for 4 months in the Summer 2015 and went back to work in Sept, I was only back a month and off again exhausted! Prior to having so much fatigue and pain I had been having steroid injections (kenalog) into the big muscle in my bum which provided heaps of energy, pain relief and restful sleep, but I had a bone Dexa scan only to find this was reducing my bone density to being osteopaenic, and so the sessions were stopped, I went down hill very fast! I am 62 today and I have taken early retirement, I don't know how old you are and if you could try his route or even if you want to BUT you have to decide if your body can hold our working-maybe reduce your hours and claim ESA, whatever you decide you will need letters from G.P consultants, and any physio you have had... I wonder also have you tried Hydrotherapy?? a wonderful aquatic physio to help with sore muscles and toning them up.
I am 49 years younger and I am not able to work part time at work due to there isn't a position available my job is full time I am the resceptioist at a national upscale furniture store that I worked for the past six years and I couldn't do the simplest little tasks with this illness, I had so many problems after I had a blood transfusion from the medicine I was taking Motrin 800 to help with the pain and inflammation for about 3 years and had to stop because of the transfusion. It's been downhill after that I started taking 2 nerve medicine along with pain medication than I started with swelling throughout my whole body, my feet and legs hurt so much couldn't walk sometimes my arms and risk started getting so weak I can't hold anything hardly and had to start with pain cream and risk brace with compression gloves for my hands to keep them warm and not stiffing. I can go on and on. I thought if I got off the chemical medication and started all natural healing I can hurry and get better to go back to work soon and now coming to grips that it's going take a long time for recovery.
my job isn't going to wait for me to get better like that it's not fair to keep waiting when or if I able to work because I don't know what going to happen with my body from day to day, time is running out. My pain management doctor advised me to try what you mention and I think I going to have do it along with the acupuncture and vitamins and other things which is going to take time and money.
Thank you for your advice and I will look into it.
Hi hun- going further a blood transfusion leaves you exhausted and you need time to recover, as blood is pushed around your body it makes it work overtime and so fatigue can come after. I have arthralgia in my hands and I have fingerless glove supports and splints// Your job- well that's a hard occupation for someone like us.. you really need something more user friendly, you seems to be able to use a keyboard well- maybe when you get more energy you could do a sit down job for a couple of hours a day? I worked in a bank at night time 14 years ago (as well as my day job) when I was having steroid injections, it was a fone in and keyboard job which was very interesting and rewarding,I wsn,t hammering the keyboard constantly and so I didn,t find it taxing- as a Nurse totally different from what I was ever used to. I too have had acupuncture to my coccyx and I have hydrotherapy weekly via the NHS, you need to ask your g.p to forward you for some therapies or maybe ask your pain team if they can offer hydro..
Hi Caz, I've never heard of acupuncture to the coccyx - could you please explain the aim and benefits of this treatment? I have a wonderful acupuncturist here but I've never discussed the FM with him - I guess cos I've only really come to terms with it myself over the last few weeks and Really started investigating how I can help myself hold down my job. Single mum with a mortgage and our disability benefit is below basic living costs. Thanks 😊
Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site, FMA UK which hosts loads of useful Fibro information:
I am so genuinely sorry to read that you are suffering and struggling with your Fibro and I want to sincerely wish you all the best of luck. I am afraid I cannot answer your question as it is not that easy with Fibro to find an answer? Please take care of yourself.
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