Living but not to the fullest~

i am so thankful to be a part of this support Group as no one understood what I was talking one sometimes doesn"t believe me..its all in my head! Now I look back and I believe this Fybro started around2007 as I developed RLS, I come from a small town in Alberta, but now live in the pain is in all the pressure points neck area and hips , legs, lower back on both side my mid back.. and I have bouts of chronic Fatigue.. Fybo fog, and bad attention span, bad memory and Chronic pain, and I am stiff in the morning when I wake up..I recently started gettng cramping in my calves..I try to keep dehydrated..I am also easlily stressed expecially around my grandkids..noise bothers me, I love them and am looking for relieving stress techniques, I am on medical as I cannot work.. I am on cymbalta, gabapentin, trazadone and temapazapam for sleep, just looking for info on medication and I am looking for a doctor who specializes in Fybromyalgia..anyone have seen a doctor who specializes in this illness? living..but not really living...thank you.. GBU and my prayers to every person on this site..

7 Replies

  • Hi Jesusisno01

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link to our mother site, FMA UK which hosts loads of useful Fibro information:

    I am so genuinely sorry to read of how your Fibro affects you and I want to sincerely wish you all the best of luck with finding a suitable Fibro doctor. Please take care of yourself.

    All my hopes and dreams for you


  • Hi I have exactly the same symptoms as you - I live in the uk - as far as I no there are no fibromyalgia specialists here I just saw a rheumatologist, a neurologist, to be diagnosed- you are right - I can't live life to the fullest but I do my best - neese. X

  • There are fibro specialist in the UK but not many and you'll be lucky if you can get to see one on the NHS we have one here in South Wales that. I know of, but he's about an hour away and has a waiting list.

    Love the heading, so true we're all Living life of some sort

  • I would like to say welcome. We do have several members from America who may be able to help you with a specialist. You are not alone as you could be describing me most days with the symptoms.

    I too hate loud noises going to a book club today and a small group go to a coffee shop. I love the company but dread the noise of the coffee machines. Many also said they adore their grandchildren but can only stand the noise for a short time.x

  • Welcome to the forum. We're all fibromites here and understand your situation all too well. So sorry you're having so much pain and many difficulties related to your fibro. There are some people in this group who come from the other side of the pond and are likely to have answers regarding the specialist fibro doctors and medication available to you.

    It is very difficult when those around you greet you with disbelief, it adds yet another stress to your burden. Know that you are always welcome here, even in the middle of the night there will be several people raiding the fridge and online to chat, to listen. So come here whenever you need to, to rant, to moan, to give updates or just to have a chat and a laugh. As people who 'don't have a life' we're remarkably full of fun :)

    Gentle hugs. Anna xx

  • Welcome to a rather assorted group of friends who all happen to have Fibro plus other related disorders...I think you have come to the right place...but cannot help with a Fibro specialist. Can you search your internet to find one in your area..Best of luck and keep smiling....xx

  • Hi welcome. I hate noise too but I think thats partly because I have bad tinnitus. Not sure if its part of fibro but started just before I was diagnosed. I found that magnesium spray with aloe vera helps with cramps ( after making sure you are hydrated). I got mine from amazon but think a good health food shop would sell it. Life has certainly changed with this condition! Gentle hugs Joolz.x

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