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Fibromyalgia Action UK
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Living hell!!!!!

Well another day of living hell. Dont know how long i can carry on like this. I've been in work today in escrusiating pain. Neck, back, elbows, wrists and hips, pain seems like an understatement. Fibro fog, no concentration. The drive home was torture. I am now collapsed on the sofa having to send my 3 year old to his big brothers for the night. Feel like i am exisisting not living........ sorry guys for the rant just at the end of my tether. X

9 Replies

Hi there Claire, I so so understand what you are saying about feeling like you are existing and not actually living, it is something, I've thought for a long time. I know you are a new member and I haven't read all your posts (which I should have done) but I wanted to respond and let you know you are being heard. Maybe it is time to reassess whether you are actually physically capable of holding down a job and caring for a toddler, and I i don't mean this in any way unkindly, far far from it. You need to put your needs first and that is the most important thing.

I'm sending you huge load of positive healing vibes and I'm sure others will come and give much better advice than I have.

Foggy x

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Thanks so much for your reply. Your so right, i have been thinking maybe its time to rethink my working situation. 2 years ago i dropped from 40 to 20 hours due to this horrible condition, thinking i would cope better, and for a while i did but then i get a bitter reminder that this my life for good and i need to find a way to cope. I really dont want this fibro to beat me and dictate my living but its tough. I apprieciate your kind and wise words so much. I look forward to chatting often.

be well



Aww bless you Claire, I understand completely what a hard decision it is to have to make, I had to do so 10 years ago as I just didn't have any energy to work and "live". Do I like having to rely on benefits, nope, I certainly don't, but measured against the toll the work was taking on my health, the decision really rather made itself.

I don't really think it's a case of the fibro beating you, it's you taking care of you, and in doing so also being able to help your little boy too.

These are only my very humble thoughts, and please forgive me if I'm speaking out of turn :o

Still more positive healing vibes coming your way :-) :-)

Foggy x


Your not speaking out of turn, its good to hear your thoughts of expierience. It helps put things into perspective. Xx


That's exactly how I feel and I don't work I had to give it up.

I know its horrible for you, but it makes me feel less alone with this fibromyalgia. Have you been to pain clinic/management. It's really worth it they will teach you how to pace and other techniques for coping skills. Try and rest. Take care. Vonny


Hi vonny, thanks. I am at the docs on friday so will ask him about the pain clinic. I have physio, hydrotherpy pool anf relaxation therapy at the hospital my first appointment is 2nd march cant wait. I just hope it helps. Your right about not feeling alone with this forum. Its so good to hear from others going through this and the support you get.



Hi ClaireJeff lovely to meet you, so sorry you are in so much pain

Really hope your pain eases very soon,

All the very best.



Bless you! I completely understand how you feel xx take care xxx


Hi clairejeff

I am so sorry to read that you are suffering and struggling in this way, and I genuinely hope that you start to feel more like your usual self again soon.

Take care



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