Nerve damage isnt easy : hello i am new... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,346 members66,394 posts

Nerve damage isnt easy

21 Replies

hello i am new was disnoised with neurapathy years ago mostly all damage in my feet numbness tungling heavy legs feel like lead in them pins and neddles burning below my knees down burning every where except my face

21 Replies
neesey1005 profile image
neesey1005

So sorry for your pain - hope this site gives you some support and comfort x

in reply to neesey1005

hello and thank you for talking to me i really am happy for this site instead of what i been doing for years just sitting alone

neesey1005 profile image
neesey1005 in reply to

Since struggling with fibromyalgia for five years - and only just being diagnosed - I have found people on this site friendly, helpful and very understanding - and I also gain lots of information about fibromyalgia - you are not alone now - neese

anat123 profile image
anat123 in reply to

Tammy,

You said it well. I have been sitting alone in my house for three years now due to what my doctors says I have fibro on steroids. I am in pain all the time mostly in my legs. The worst thing is being lonely. Maybe this will help.

in reply to anat123

hello thank you for replying, yes i have yet to find out new things about how to cope i have had this 11 yrs i have tried steroids and i end up worse so i stop them entirly i take percocet plus lyrica flexural they all help . i have meet with others where i live ask them many questions most do not take pain pills i have tried to stop them after hearing nobody takes pills i tried to go off of them and only paid worse for trying

Trikki profile image
Trikki

So sad Tammy18.....I am sure you will find some useful info here to help with your neuropathy....I think many of us have tingling/burning sensations to our extremities and we all find a way of coping....sometimes heat and sometimes cold....we are all so different with our symptoms but there is always someone with an answer......Please look at the links to see which helps you. Personally I find cold for my hands and heat for legs!!! Keep in touch...xx

in reply to Trikki

thank you glad you talk to me i find that a hot bath at times help then we all have a bum leg or foot that cant do that either tendinodias of my right foot feet always cold my rt foot feels dead

Trikki profile image
Trikki

I can certainly understand how you feel....hot...cold...whatever! I wish I cold get in a bath of warm water....my best bet is a hot shower and sometimes I have to turn down the pressure as they jets hurt....needless to say we all find a way to cope in the end and I am sure you will do to. Have you checked out our links to see if there is an answer there for you from someone? I wish you a good nights sleep...x

in reply to Trikki

yea thanks im looking have a good night sleep and hopfully you can sleep. it is 3:56 pm here ttyl

i cant seem to find the site only replys odd but i am only using cell

Janet28 profile image
Janet28

Hi tammy18 & welcome to the site, I'm sure you will love it as much as we all do ☺.

I have Fibro & lots of nerve damage in my feet like you, as well as my back, which is very painful & it's all the other sensations that are very difficult to live with. You will get lots of understanding and help from other members with similar pains as you & sometimes it's just good to talk to someone.

You should go check out the sister site where you will find lots of useful information about Fibro..I will get link for you and post here.

Peace, luv n light

Jan x

in reply to Janet28

thank you so much for nice kind words

Janet28 profile image
Janet28

Here is link

healthunlocked.com/api/redi...

in reply to Janet28

thank you for the link

TheAuthor profile image
TheAuthor

Hi Hidden

Welcome to the forum and it is wonderful to make your acquaintance. I am so genuinely sorry to read that you have neuropathy and I sincerely hope that you can find some relief to this issue. I was wondering if you were a diabetic? Or did you suffer this for other reasons?

I want to sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

in reply to TheAuthor

hello ken wow such a kind sweet wonder man and very kind works thank you very much and i will be okay and make it i dont know how i found all of you but i am greatful it is just another reason to believe in jesus he lead me right straight to all of you

TheAuthor profile image
TheAuthor in reply to

Good luck my friend :)

in reply to TheAuthor

thank you and good luck to you and also i am sorry for all that is going on with you good luck to you to and i am greatful so many people are out here to just help another person out have a very nice day

TheAuthor profile image
TheAuthor in reply to

Thank you my friend that is genuinely appreciated. It is members like yourself that make the forum the wonderful place that it is :)

in reply to TheAuthor

oh also ken no diabetic here just runs in the family

TheAuthor profile image
TheAuthor in reply to

I am genuinely delighted to read that there are no diabetics in your family, as neuropathy is so associated with it :)

You may also like...

Fibro pain or nerve damage?

diagnosed with fibro about a year ago and have had RA for about 5 years (which is currently in...

Nerves and burning sensation

Curious of those who have the burning sensation how long it lasts and how/if you are able to treat...

Coming off meds not easy!

ease fibrompain in feet mainly. Anyway decided couldn't go on so am back on them now awaiting some...

Fibromyalgia Pain Relief and easy digestion

Hello Brothers and sisters battling with Fibro. Im so glad to join this forum. No one can undestand...

Trapped nerves and balance problems

my head. I feel like I'm seasick and the feelings last for maybe 10 seconds which feels quite a...