help with dla appeal after over 1 yea... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,300 members66,355 posts

help with dla appeal after over 1 year waiting

chrissy57 profile image
12 Replies

after having my dla reduced to low rate even though my fibromyalgia is considerably worse. I have my appeal soon, so could anyone help with do dla accept that walking is better some days and bad others. also the symptoms are intermittently better and then worse. I am dreading it

Written by
chrissy57 profile image
chrissy57
To view profiles and participate in discussions please or .
12 Replies
Mdaisy profile image
Mdaisy

Dear Chrissy,

If you would like the Benefits & Work Guides sent out for free , please email info@fibroaction.org and we can email them to you.

These may help advise you on how to proceed with the appeal

Best Wishes

Emma

chrissy57 profile image
chrissy57 in reply to Mdaisy

thank you Emma I will definitely do this. I am getting in such a state

regards Christine

Artmix profile image
Artmix

Hi Chrissy,

I have been having trouble getting DLA at all for my conditions. I am now at the stage where I have an upper tribunal appeal going in. It has taken me just over a year and numerous paper appeals and the lower tribunal hearing to get to this stage.

Apparently, The Government plan to replace DLA with a new benefit. They are also trying to get people off DLA and ESA /income support.

I am on ESA and was examined by an assessor for that. I used the EMA proof in my appeal and the lower tribunal challenged the Drs opinion saying they assumed he thought I had a serious heart problem. I have cardiomegaly and am currently waiting to be seen by a heart specialist after suffering angina.They even challenged my own GP and told me I exaggerate my symptoms. I was so angry. They whole process has got me down.

I had help from the citizens advice to fill in my forms but even then they are challenging it.

I wish you well Chrissy and hope you manage to get your amount back.

debbie...

chrissy57 profile image
chrissy57 in reply to Artmix

wow you poor thing. it makes me so angry when they mess with people's lives. to them we are just another potential saving.

thanks and good luck

hamble99b profile image
hamble99b

please both of you get the benefits & work info from admin as Emma [Mdaisy] suggests.

print out the sheets from pg 60, fill them in, make copies and give them to your gp's and consultants.

don't undersell yourself.

Ask them to write letters of support and to send them to you for your claim pack. copy these too.

good luck.

sandra.

chrissy57 profile image
chrissy57 in reply to hamble99b

thanks Sandra

regards

Chris

Artmix profile image
Artmix in reply to hamble99b

Thanks Sandra,

Ozzygirl64 profile image
Ozzygirl64

They are making it so tough now for us to get anything and it angers me so much. I think the government are of the same opinion as Joe Bloggs, if you cannot see it it must not be there. I wish you well in your appeal xxxxx

chrissy57 profile image
chrissy57 in reply to Ozzygirl64

I so agree with you. Because our disability is better someday than others people only tend to see me on better days because I don't or can't set foot out of my door on bad days so I don't have the excruciating pain they have heard about and I swear they are saying I am putting it on :’(

Ozzygirl64 profile image
Ozzygirl64 in reply to chrissy57

I know what you mean hun. But in my case it did not even matter to the judge that I also had an illness that at some point is going to kill me, especially if I do not get a handle on this smoking lark and quit. I have no idea how we are supposed to express how we feel without them thinking we are making it up, it really ticks me off. Plus I had been going to medicals on and off for over 20 years and each time I was declared unfit for work, even that was not taken into consideration. We as fibro sufferers are literally on a hiding to nothing and until the government sticks by what it has said, them saying they recognise fibro as a potentially disabling illness, then nothing will change xxxxx

chrissy57 profile image
chrissy57 in reply to Ozzygirl64

I know babe we can't just concentrate on our wellbeing and feeling better because on top of this we also have to spend so much time on the stressful fight to get the financial help we are entitled to, to help make our illness so much more manageable and less stressful by taking away the financial pressure we are experiencing. Sorry for the rant I think I have woken up that way out this morning :-)

Ozzygirl64 profile image
Ozzygirl64 in reply to chrissy57

Rant away, it does us the world of good and helps us think straight. Just trying to get a few replies in. Hoping hubby orders takeaway tonight, he normally does on my birthday, not mentioned it yet though lol xxxxxx I may have ti drop hints

You may also like...

DLA APPEAL... Please Help

up the stairs and have been sleeping on the sofa for the past year, have also had help through...

dla appeal, 27 to 31 week wait!!!

got letters back from DLA, and copies of appeal papers, i have the right to appeal and it will be...

DLA Turned down and now need to appeal , cant stop crying ;-( HELP?

diagnosed with other things....so i have re applied for a higher rate Fibromyalgia,chronic muscle...

STILL WAITING FOR DLA DECISION !!!!!

i dont get it i wont be any worse off than i was. I hope you all have a lovely day and may be...

DLA changed decision so your appeal will not continue

well dla changed decision in my favour no need to appeal, so i phoned tribunal up as already had...