Hello everyone, I'm Nicola, I'm 23 and I was diagnosed with firbromyalgia at 21 after years of undiagnosed joint pain which was put down to anything from "growing pains" to "depression".
I have since tried a range of medications including cocodamol, fluoxitine and sertraline. I currently take Amitryptiline 10-30mg ( I control the dose based on how bad I feel), Gabapentin 200mg 3 times a day, Paracetamol 1g 4 times a day and I have MST and oramorph on prescription but that's because I also have Crohns disease.
I recently had an allergic reaction to an infusion treatment I was receiving for my Crohn's and since then things have really kicked off. My main points of pain are my lower back, my hips and my knees, along with inflammation in my hands. I went to the doctors last week to try and address this before it went out of control but she couldn't be sure if its the Fibro causing my pain or if the joint pain is actually related to my Crohns which is flaring quite strongly at the moment. Her only suggestion was to take MST (continuous release morphine) for the next few weeks while I wait to start a new Crohns med to see if it settles. This is alright while I'm in the house but I find it quite difficult to do if I have to get up and go somewhere as the side effects make me feel very drowsy and light headed.
I hope to learn a lot from the people here and maybe make some friends who understand what this is like, particularly as a young person being unable to walk some days. I also hope I may be able to help some in a similar position as I learn more myself.