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Fibromyalgia Action UK

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Odhran4 profile image
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Hi just joined today,I have suffered from fibromyalgia for about 7 years now but only diagnosed 3 years ago I am on MST for pain but am still in a lot of pain, any time I go to the doctor she just says I am on the highest amount of pain relief and can do no more for me. Was just wondering if anyone else got this sort of reply from doctors or can advise me on what they get for the pain...

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Odhran4 profile image
Odhran4
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BlueMermaid3 profile image
BlueMermaid3

Hi there

Welcome to the forum 😊 I'm sorry to hear you are struggling with pain at the moment. I can completely empathise with you. 

Have a look at our mother site for some useful information fmauk.org

My personal advice would be for you to either see a different GP at your practice or change your surgery altogether. 

It is perfectly normal for Fibro sufferers to be on a cocktail of different meds for pain. 

You could ask your GP if he would consider prescribing you Pregabalin or Gabapentin for your pain. These are good meds for tackling pain although they both have the side effect of weight gain. 

Another medication you could ask for is Amitryptyline.  This is a medication that is often prescribed by Rheumatologists when you are diagnosed.  This drug helps with pain, low mood and sleep.

If for some reason you have to see the same GP take someone with you to your appointment. GP's tend to behave differently when there is someone else there. 

Make another appointment to see your GP and ask about one of the above meds. I am not medically trained but just speaking from my own experiences of these meds. 

It's best to only try one new medication at a time as otherwise you won't know which one is or is not working. 

Please let us know how you get on. 

Wishing you less pain and more peace

Lu x

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ukmsmi4 profile image
ukmsmi4

Hi Odhran4

Or as Lu says go to your doctor and ask them to refer you to a pain specialist.  They are usually more up to date with pain meds than your average GP (obviously as it's their specialty).

Margaret.xx

Odhran4 profile image
Odhran4 in reply to ukmsmi4

Thank you

Sorebones profile image
Sorebones

Oh yes! Not for Fibro pain though, but for my osteoarthritis. I'm still waiting for an explanation other than 'you're on some very strong painkiller as it is'. Great, it isn't helping....... The subject is swiftly changed. I'm going to ask to be referred back to the pain clinic. If you haven't been referred yet ask your GP to do so. They can be very helpful.

I take amitriptylene for Fibro but I don't get the kind of pain some forum members get. Either that or the osteoarthritis pain drowns it out lol 😀🐸

rosewine profile image
rosewine

Just to say welcome to this site others have given you excellent advice.  Many doctors are now of the opinion (my last doctor was) that hefty pain killers don't do any  more for fibro than perhaps something like Pregablin and cocodamal with an antiinflammatory if you have something like arthritis as well.  Mind you that don't have to stand the pain.

I think they have to treat every patient as an individual whereas one person with fibro might be better on !older painkillers other fibro sufferers need what I call the "full monty)".  I think like others have said you could do with an urgent referral to a Pain Management Clinic to get some alternative ways of getting pain relief.  Unfortunately many of us, me included, find that despite a cocktail of drugs we are still in pain.  I personally make this choice of being on a lower dose of Pregablin. Than perhaps my doctor would prescribe as I still wish to function and drive and I know that a higher dose would probably help more with the pain but would impair my ability to go out and drive. Life with fibro can be a bit of a balancing act.  Do let us know how you get on look forward to your future posts.x

peck profile image
peck

Hi and welcome to our lovely forum.You should find lots of help and lots of laughs!! I take a couple of strong pain killers but I have other issues besides FM.Good luck.Peck☺

TheAuthor profile image
TheAuthor

Hi Odhran4

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I concur with your other respondents as it may prove beneficial to ask your GP for a referral to a pain management clinic. I want to genuinely wish you all the best of luck.

All my hopes and dreams for you

Ken

Odhran4 profile image
Odhran4

Thanks everyone for the advice will look into it. 

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