New girl aboard!: Good morning, I've... - Fibromyalgia Acti...

Fibromyalgia Action UK

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New girl aboard!

7 Replies

Good morning, I've just discovered this little community and have been scrolling through. My fibro has halted my journey to work, again, today. I have a lovely manager who lets me work from home at these times but I feel so guilty! Am I alone in wishing that there was something for others to SEE when a fibro attack is happening? I always look well and I'm sure people think I'm making it up! It's so frustrating! Anyhow, it's nice to know I'm not alone x

7 Replies
Trikki profile image
Trikki

Hello and Welcome ktb.....I think most of us would agree with you that it would be good if there was some outward symptoms of fibro+ as we may get a little more understanding. One thing is for sure....Never feel guilty!! I know exactly what you mean and I am sure we have all felt it at times but I am glad you can work from home when necessary.....You are no longer alone and you can rant and rave and cry and laugh with us any time......xx

BlueMermaid3 profile image
BlueMermaid3

Good morning :)

Welcome to the forum :) It is wonderful to have you here with us.

I couldn't agree more with regard to looking well, but being in immense pain.

I am in pain 24/7 and after 34 years of work, have finally had to give in and give up.

Here is a link about how to lock your posts, just for the sake of internet safety:

healthunlocked.com/fibromya...

This is just a very quick hello. I don't have an answer to looking well but some days barely being able to move or walk.

I hope you enjoy the forum.

Wishing you less pain and more peace

Lu x

Admin

bluebell99 profile image
bluebell99 in reply to BlueMermaid3

Hello and welcome to our friendly supportive site where you can get great advice and information with a giggle to lighten the day.

Have you looked at our mother site? fmauk.org

The blue pinned posts at the right side and the topics will give you a flavour of what we do here.

You are right, we can feel our worse yet still look quite well. I just smile when someone comments about me looking well although sometimes I wish there was a flashing sign on my forehead that said I am not!

You are really lucky you have such a thoughtful employer, it does help with the stress of working.

Hope to see you around posting more.

Take care

Janet28 profile image
Janet28

Hi Hidden I see you have been given site link that will answer your questions by Lu so I just wanted to say Hi & welcome to our lovely forum.

Peace, luv n light

Jan x

Lou1062 profile image
Lou1062

I do understand what you mean but I for one am glad I don't look as dreadful as I feel, I look positively robust until I walk xx

TheAuthor profile image
TheAuthor

Welcome to the forum and it is wonderful to make your acquaintance. I want to genuinely wish you all the best of luck and please take care of yourself.

All my hopes and dreams for you

Ken

Hartleyhare2 profile image
Hartleyhare2

Hello and welcome! Your right it is a little community not just a page or site, I hope you come to enjoy and be lifted it as I do.

One think I was taught was never give yourself negative self talk that you wouldn't give to a friend. So ditch the guilt, you are ill! Your doing an amazing job just by working alone. I'm afraid I had to give up a career in something I thouroughly enjoyed three years back at 45 and had a lot of guilt about that being a macho, chest thumping, bread on table alpha male! Lol

I hope your having a low pain day

Patrick x

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