New Girl

Hi everyone, i read all the post but i have never wrote myself, i don,t spell to good ,but i think its about time i come out of my shell so here goes , ive had fibro for 4years now before that i hadn,t heard of it in my life, i am middleaged mum of two who used to be life and soul of any party that was going on lol now well you all no now, on a good note i,d like to say i was awarded DLA highest rate in March after being refused first time, after reading some of your post i realise I am one of the lucky few , all i can say is don,t give up hugs and best wishes to you all, if anyone wants to now about my application for DLA just ask xx

14 Replies

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  • Welcome to the site and don't ever worry about spellings, nobody cares about that here. It is good to hear that some people are getting the help from DLA that they deserve, so thanks for sharing.It inspires the rest of us! Jane x

  • Thankyou xx

  • Lovely to hear from you - the more the merrier :-) It is great news about your DLA ! Good for You - it's great to hear that they get it right sometimes!!

    S xx

  • Hi , thanks for your kind welcome xx

  • Hello and welcome to our lovely forum! It's great to have you here with us! :) Take a look around the Questions, Blogs and Tags, there is so much information, advice, support, friendship and personal experiences too!

    If you have any worries or concerns, please don't hesitate to contact Admin, we are always happy to help and support you where we can. We all understand, we are all in the same boat.

    I hope you enjoy your time with us here at FibroAction. :)

  • hello mrs mouse ive been declined dla 2 times now i have fibromyalgia for about 2 years now and rhemtoid aithritus for 20 years i was wondering how you did your application and if anyone know about getting a blue badge to so when i do have a bad day i dont have to walk far to my shopping center from the car park?

    hope all is well take care

    tara xxx

  • HI tara , got my blue badge because you can only get one when you are awarded highest rate mobility on the DLA i had my application filled in for me by welfare rights xx

  • I'm waiting for DLA to reconsider my application.They said I could do all the things I'd said I couldn't do! What sort of things did you say on yours?

  • HI Amanda, i went to the welfare rights office they helped me fill the form in , but i insisted a doctor come out to my house to see me to assess me properly, on the day she came out i was having such a bad week anyway really bad flare up so i gave it all i had eg up 5 times a night 30 to 40 minutes each time , help with washing and dressing morning and bed time 15 minutes at least each time carn,t walk without help for more than 5yds in severe pain crutches dont help because you have to use your arms with crutches and my arms pain to much, what i am saying just use your worst days and you no the pain you are in then well thats what you say you are like all the time , you see they don,t want to no what you carn,t do they just go on what you can do on a good day and disregard what you say when your bad , i no this is wrong but i think you have to insist you cannot do certain things your not lying and for most of the time we are in terrible pain and we are all entitled to this extra money good luck

  • Tara0606- you get your blue badge thru local council some charge but mine don't. The first time my doctor had to fill in a form from them, but I just renew it now without prob. If you get dla mobility hr you automatic qualify for you blue badge.

    Mrsmouse glad to hear some people get dla ok, iv had fibro over 10 yrs I get LR care Iv been refused higher rate 3 times now but won't give up. Did you have someone to help you fill your forms in, and do you get care and mobility. Iv asked for a review so I'm waiting for answer. Fingers crossed.

    I love fibroaction sight it's given me help, and courage to carry on, friends and family think they understand, but they don't really. Everyone is a friend on here and they really do know what you talking about, it's an extended family to me xxx

  • Hi goldwing yes i get care and mobility after being refused 1st time i went to welfare rights to help me with the form and i couldn,t believe it when i got awarded highest rate , it is so unfair i think anyone who has fibro should get it no questions asked xxx

  • Hi there I think you may have to post a master class on here for us all on how to get high rate dla.... Congrats on getting it and welcome :)

    VG x

  • Hi thankyou xx

  • hi mrsmouse welcome to this lovely group where people are so welcoming and understanding and will do their best to inform and support your decsicions, i look forward to hearing more about your life when you are ready warm hugs x J

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