I have been to the rheumatologist this morning and walked away with a diagnosis, drug management plan, referral to physio for a walking aid and referal for a low impact exercise group!!!!
I am so so happy although a little bitter sweet. I am not overwhelmed with the fact I have fibromyalgia, a chronic pain disorder 😞 but am very happy that after 21 years of being in pain and fighting with the medical professionals I walked into an office this morning knowing that there was something more to my illnesses/symptoms and walked out impowered and with the knowledge that I AM ILL....ITS NOT IN MY HEAD!!!
So I guess now the real battle starts? I have fought for so long just trying to be heard and understood and not be thought as "a hypochondriac mad woman!" That now I have to focus on how do I deal with this?
So please all you others that suffer with this debilitating illness can you tell me some of your coping strategies? What helps you? Do you take regular exercise which has been suggested I do? Any medication you couldn't cope without? And any complimentary therapies I should look into? Are they available on the Nhs? And if not approximate costs of these? ...........AND THEN THE DREADED PIP APPLICATION!!! I applied late last year as my symptoms effect my daily living... Got 0 points... Couldn't prove I had an illness that would effect me as it was not diagnosed till today! Went to reconsideration also got 0 points...... The big question is should I reapply now I have concrete proof I have an illness that can be attributed to the daily difficulties I face???
Lots of questions I am sorry but any help for this 21 years of suffering newly diagnosised lady would be greatly appreciated xx