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Fibromyalgia Action UK
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Good morning or is it?

Have a really bad back today but all I can think about is the tumour in my eye. Was at the eye specialist on Thursday and he says tumour is getting smaller. Have been hearing this for 2 years. I thought it would be gone by now. It scares me to think I still have cancer. Would love to say take the bloody thing out but then I chicken out. Between that, fibromialgia and copd my head is really screwed.

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Sorry to learn of your tumour, it is positive news that it is shrinking very worrying the time scale though. I do hope it all continues to improve. All best wishes. Lou xx


Hi Eileen

So sorry to hear you have a tumour in your eye. As Lou says, it is good news that it's shrinking. However it must be a huge worry for you.

This is just a thought and you may think it is not for you, but I'm a big worrier and I don't mean over the small stuff.

I've been through a huge amount the last few years with some very big worries. I was told once about giving myself ten to fifteen minutes worry time per day. During that time I could allow myself to worry and think about the what ifs as much as I wanted. Then after my "worry time" was over I say to myself. No. You've had your worry time and then try to focus on something else.

It isn't for everyone and takes a bit of training yourself, but it can work quite well.

I am by no means belittling the huge amount you have on your mind. I'm not surprised you are feeling the way you are.

All the very best.

Lu xx


I think Painful pixies idea of a timed freak out slot brilliant.

I try not to worry as it uses some of my much reduced energy but it can catch you when your guard is down.

Having a tumour is scary stuff as been there with thyroid cancer and had to have two surgeries ,the first one went horribly wrong and ended up with three months in hospital and then took some digging deep to go back and have second then radioactive treatment.Last tests were clear but because Lupus is severe I am having to take Imuran,a chemotherapy immunosuppressive drug ,which also happens to be carcinogenic so feel a bit between rock and hard place some days and then remind myself that actually I am so lucky to still be here for my kids I am not going to waste my time fretting what might happen just get on and enjoy any smiles and happies I can make or find.Quite a few on here so that helps.

Thinking of you and sending calm and caring smiley thoughts your way.

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I am so genuinely sorry to read of everything that you are having to endure, and have endured for the last few years, and I sincerely hope that you can find the answers that you so desperately desire and deserve. I want to genuinely wish you all the best of luck.

All my hopes and dreams for you



I so feel for you Eileen with all your problems and truly hope you get some relief especially your eye. A big gentle hug is on its way.xx

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